Posted: Wed Mar 28, 2007 11:34 am Post subject:Teo you are my hero!!68 years young and working out in the gym for"only" one hour--I'm feeling really embarrassed at 63 years old and hardly ever make t to the gym at all!!
Posted by Hero Teo at 3:53 AM
Saturday, May 5, 2007
Well Done Teo"
Well Done Teo"
Kathrynne,I was about to "register" for your new Forum, when I decided to go back =andread the only other Reader Input that you posted today. It was the oneabout another Reader's dilemma regarding her husband's balance.The =VERYWISE answer was from David P, of course. =20I also have noticed that stopping and slowly trying to figure out how tobalance my body has given me much better confidence in how to navigate myself during these past few days, wherein the weather has been =slightlyhorrendous with snow storms, ice build--ups, and what have you. Talk =about stressful pushing of my body's capabilities! This is after thirteen =yearsof suffering with PD!Please note, that I had three plus wonderful, postsurgical years in the Spheramine Protocol Clinical Trial (Being Patient =No.1 in the Stage 2 Trial.)The benefits are either wearing off or I amoverloading my system with stress. So, I have begun backsliding a bit =andam now having the intermittent freezing again.Also a bit of imbalanceagain.=20I find that David P.'s suggestions are very wise.Also I believe that =Teo'speriodic suggestions have great wisdom in them!His are ="observational,"his having PD himself.Like me, he only offers his experiences of what seems to work for him.=20David P. has taken me on as a friend /patient of sorts.He is one of =themost non-aligned thinkers I have had the luck to run in to. Like Teo, =PatW., and a few others whom I have had the good fortune to meet thru yourDigest, my life
has been greatly benefited! That is why I end my =missivesto you with "God Bless." I am not a religious fanatic, but I do know =how tosee the hand of Godliness in everybody's vectoring around you, dearKathrynne.So, thanks for the "Forum." I am, like a wobbly Don Quixote, riding off =tosee how to utilize your new base for informational thoughts that may, noWILL, help other sufferers climb back up out of this hell hole we arewallowing in. It is not an ILLNESS. It is a condition that could bereversible. Like the Pritikin Promise gave hope and remedy to those whosuffered severe angina, there is a solution to our condition.I am more firmly convinced than ever that the root cause of our c condition isPeripheral Arterial Disease, like with leg cramps. But what it does to =us,with our particular DNA weakness/vulnerability is that the resulting =oxygendepravation starves our neuron cells.Therefore, no dopamine. All stem =celladvances will only provide a temporary fix. It is blending the infusion =ofthe stem cells, PLUS a reworking of daily regimen that will keep our =motorsin good condition. (Note, even if Glenn's amazing IV drip of umbilical =cordfluids gives him amazing relief of symptoms, it will ultimately play =out,without a supplemental repair of the toxins that originally triggered =hisPD.The Pritikin Promise only worked/works for the followers whoworked/work the program religiously.As a society, we have a lot of reorganizing to do re: our daily livinghabits vs. choosing new habits that are more beneficially supportive of =ourwell being.It is certainly a wonderful time to be alive!=20God Bless, Kathrynne, and Teo, et al...See you on the Forum!Terry[Terry George Hoffman]=20 --- End Message ---
Posted by Hero Teo at 6:10 AM
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Kathrynne,I was about to "register" for your new Forum, when I decided to go back =andread the only other Reader Input that you posted today. It was the oneabout another Reader's dilemma regarding her husband's balance.The =VERYWISE answer was from David P, of course. =20I also have noticed that stopping and slowly trying to figure out how tobalance my body has given me much better confidence in how to navigate myself during these past few days, wherein the weather has been =slightlyhorrendous with snow storms, ice build--ups, and what have you. Talk =about stressful pushing of my body's capabilities! This is after thirteen =yearsof suffering with PD!Please note, that I had three plus wonderful, postsurgical years in the Spheramine Protocol Clinical Trial (Being Patient =No.1 in the Stage 2 Trial.)The benefits are either wearing off or I amoverloading my system with stress. So, I have begun backsliding a bit =andam now having the intermittent freezing again.Also a bit of imbalanceagain.=20I find that David P.'s suggestions are very wise.Also I believe that =Teo'speriodic suggestions have great wisdom in them!His are ="observational,"his having PD himself.Like me, he only offers his experiences of what seems to work for him.=20David P. has taken me on as a friend /patient of sorts.He is one of =themost non-aligned thinkers I have had the luck to run in to. Like Teo, =PatW., and a few others whom I have had the good fortune to meet thru yourDigest, my life
has been greatly benefited! That is why I end my =missivesto you with "God Bless." I am not a religious fanatic, but I do know =how tosee the hand of Godliness in everybody's vectoring around you, dearKathrynne.So, thanks for the "Forum." I am, like a wobbly Don Quixote, riding off =tosee how to utilize your new base for informational thoughts that may, noWILL, help other sufferers climb back up out of this hell hole we arewallowing in. It is not an ILLNESS. It is a condition that could bereversible. Like the Pritikin Promise gave hope and remedy to those whosuffered severe angina, there is a solution to our condition.I am more firmly convinced than ever that the root cause of our c condition isPeripheral Arterial Disease, like with leg cramps. But what it does to =us,with our particular DNA weakness/vulnerability is that the resulting =oxygendepravation starves our neuron cells.Therefore, no dopamine. All stem =celladvances will only provide a temporary fix. It is blending the infusion =ofthe stem cells, PLUS a reworking of daily regimen that will keep our =motorsin good condition. (Note, even if Glenn's amazing IV drip of umbilical =cordfluids gives him amazing relief of symptoms, it will ultimately play =out,without a supplemental repair of the toxins that originally triggered =hisPD.The Pritikin Promise only worked/works for the followers whoworked/work the program religiously.As a society, we have a lot of reorganizing to do re: our daily livinghabits vs. choosing new habits that are more beneficially supportive of =ourwell being.It is certainly a wonderful time to be alive!=20God Bless, Kathrynne, and Teo, et al...See you on the Forum!Terry[Terry George Hoffman]=20 --- End Message ---
Posted by Hero Teo at 6:10 AM
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Comments by reader
1 comments:
Anonymous said...
I am impressed. You look pretty normal and flexible. Doesn't look like a PD patient from the pictures.Best wishes,Emanuel Deschaux
April 9, 2007 8:47 AM
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Friday, May 4, 2007
Forum: How do you do if you are an early PD patient?
Author
Message
teokimhoeJoined: 03 Mar 2007Posts: 9Location: Malaysia
Posted: Thu Apr 12, 2007 3:11 am Post subject: How do you do if you are an early PD patient?
Posted: Sun Apr 08, 2007 10:21 am Post subject: Q: What is the behaviours of early PD Patient? --------------------------------------------------------------------------------
The behaviours of early PD patient as follows: When do I tell others, and what do I say? Whether to tell " is a question posed by many people in the early stage of PD disease.
1. Is it jeopardize my job? Don't let other people feel sorry for me and for my children?
2. Keep it yourself as secret and privacy and once it reveals you feel sorry as you cannot take it back.
3. I feel relieve as I tell out and I could get some support.
4. It is hard to keep it secret as PD is not a' going away "disease and the tension of hiding it.
5. It helps more people to aware the diseases and encourage more support group i.e fund raising for the fund and learn to manage the disease and feel you are not alone.
TEO KIM HOE
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wolfJoined: 08 Apr 2007Posts: 50
Posted: Thu Apr 12, 2007 7:54 am Post subject:
Hello, I noticed you come from Malaysia, To answer your questions I would need to know the customs and culture of your society. Only you can judge whether to open up or not. Here in America it is good to tell people of our PD, but not to overwhelm them or cry our troubles. There is always a balance between what is appropriate to tell and what to keep to yourself, and this is depending on the culture. Peace Jack
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Message
teokimhoeJoined: 03 Mar 2007Posts: 9Location: Malaysia
Posted: Thu Apr 12, 2007 3:11 am Post subject: How do you do if you are an early PD patient?
Posted: Sun Apr 08, 2007 10:21 am Post subject: Q: What is the behaviours of early PD Patient? --------------------------------------------------------------------------------
The behaviours of early PD patient as follows: When do I tell others, and what do I say? Whether to tell " is a question posed by many people in the early stage of PD disease.
1. Is it jeopardize my job? Don't let other people feel sorry for me and for my children?
2. Keep it yourself as secret and privacy and once it reveals you feel sorry as you cannot take it back.
3. I feel relieve as I tell out and I could get some support.
4. It is hard to keep it secret as PD is not a' going away "disease and the tension of hiding it.
5. It helps more people to aware the diseases and encourage more support group i.e fund raising for the fund and learn to manage the disease and feel you are not alone.
TEO KIM HOE
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wolfJoined: 08 Apr 2007Posts: 50
Posted: Thu Apr 12, 2007 7:54 am Post subject:
Hello, I noticed you come from Malaysia, To answer your questions I would need to know the customs and culture of your society. Only you can judge whether to open up or not. Here in America it is good to tell people of our PD, but not to overwhelm them or cry our troubles. There is always a balance between what is appropriate to tell and what to keep to yourself, and this is depending on the culture. Peace Jack
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Wednesday, May 2, 2007
Forum: Five behaviours or 5 stages of Grieving ?
Forum: Five behaviours or 5 stages of Grieving ?
Discussion Corner Forum Index -> Open Forum
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teokimhoeJoined: 03 Mar 2007Posts: 9Location: Malaysia
Posted: Fri Apr 13, 2007 4:01 am Post subject: New Patient has five behaviours?
Do you agree the new patient has five behaviours? 1. Total self denail 2. Angry 3 Bargain 4 Grief (inflicted pain) 5. Accept Teo Kim Hoe
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IngeJoined: 01 Mar 2007Posts: 28Location: San Diego
Posted: Sun Apr 29, 2007 7:34 am Post subject:
no
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amlor2Joined: 04 Mar 2007Posts: 67Location: Arizona
Posted: Sun Apr 29, 2007 4:06 pm Post subject: A Considered Response
Hi Teo, What you have listed are the 5 stages of Grieving......... 1- Denial 2- Anger 3- Bargaining 4- Depression 5-Acceptance_________________Warm Regards from Arizona, Ralph :-)
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'
Discussion Corner Forum Index -> Open Forum
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Author
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teokimhoeJoined: 03 Mar 2007Posts: 9Location: Malaysia
Posted: Fri Apr 13, 2007 4:01 am Post subject: New Patient has five behaviours?
Do you agree the new patient has five behaviours? 1. Total self denail 2. Angry 3 Bargain 4 Grief (inflicted pain) 5. Accept Teo Kim Hoe
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IngeJoined: 01 Mar 2007Posts: 28Location: San Diego
Posted: Sun Apr 29, 2007 7:34 am Post subject:
no
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amlor2Joined: 04 Mar 2007Posts: 67Location: Arizona
Posted: Sun Apr 29, 2007 4:06 pm Post subject: A Considered Response
Hi Teo, What you have listed are the 5 stages of Grieving......... 1- Denial 2- Anger 3- Bargaining 4- Depression 5-Acceptance_________________Warm Regards from Arizona, Ralph :-)
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'
What are the 4 stages of PD?
Wed Apr 04, 2007 6:18 pm Post subject: 4 stages
What are the 4 stages of Parkinson's Disease?
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slumpyJoined: 07 Mar 2007Posts: 5Location: Ridgecrest, CA
Posted: Wed Apr 04, 2007 7:37 pm Post subject: Stages
Thelma, There are actually 5 stages and they're listed right here on the NPF website under "About Parkinson's Disease" -> UPDATES.
Here they are:
1. Stage One 1. Signs and symptoms on one side only
2. Symptoms mild
3. Symptoms inconvenient but not disabling
4. Usually presents with tremor of one limb
5. Friends have noticed changes in posture, locomotion and facial expression
2. Stage Two 1. Symptoms are bilateral
2. Minimal disability
3. Posture and gait affected
3. Stage Three
1. Significant slowing of body movements
2. Early impairment of equilibrium on walking or standing 3. Generalized dysfunction that is moderately severe
4. Stage Four
1. Severe symptoms
2. Can still walk to a limited extent
3. Rigidity and bradykinesia
4. No longer able to live alone
5. Tremor may be less than earlier stages
5. Stage Five
1. Galactic stage
2. Invalidism complete
3. Cannot stand or walk
4. Requires constant nursing care This rating system has been largely supplanted by the Unified Parkinson's Disease Rating Scale, which is much more complicated_________________Slumpy
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What are the 4 stages of Parkinson's Disease?
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slumpyJoined: 07 Mar 2007Posts: 5Location: Ridgecrest, CA
Posted: Wed Apr 04, 2007 7:37 pm Post subject: Stages
Thelma, There are actually 5 stages and they're listed right here on the NPF website under "About Parkinson's Disease" -> UPDATES.
Here they are:
1. Stage One 1. Signs and symptoms on one side only
2. Symptoms mild
3. Symptoms inconvenient but not disabling
4. Usually presents with tremor of one limb
5. Friends have noticed changes in posture, locomotion and facial expression
2. Stage Two 1. Symptoms are bilateral
2. Minimal disability
3. Posture and gait affected
3. Stage Three
1. Significant slowing of body movements
2. Early impairment of equilibrium on walking or standing 3. Generalized dysfunction that is moderately severe
4. Stage Four
1. Severe symptoms
2. Can still walk to a limited extent
3. Rigidity and bradykinesia
4. No longer able to live alone
5. Tremor may be less than earlier stages
5. Stage Five
1. Galactic stage
2. Invalidism complete
3. Cannot stand or walk
4. Requires constant nursing care This rating system has been largely supplanted by the Unified Parkinson's Disease Rating Scale, which is much more complicated_________________Slumpy
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