rough tongue
As lavodopa and dopamine agonsits have sideeffect of the above syndomes I am one of the sufferers, The doctor prescribed me BENZHEXOL to treat the saliva as it's dryness and as it should avoided in the elderly as it adds more thick and sticky saliva, dry mouth and rough tingue desides crack on both side of lips. I do not excessive saliva as told by my dentist that drooling and she introduced me to Bioteii moutn wash and gel to moiturize the dryness. The doctor replaces me amantadine 1/2 dosages and sinemet CR with sinemet 25/100 three times a day. I have stopped taking the Benzhexol but are still not improving. He would optimize progressively. Kindly advise
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Tue Jan 29, 2008 4:04 pm Post subject:
It has not been my experience that levodopa and agonists lead to dry mouth. In fact a lot of times levodopa helps the swallowing which then helps to keep the mouth fresh and not dry. The anticholinergics however as you have observed may result in dry mouth/tongue. Besides cutting dose or not using them I am at a loss to address this issue. Perhaps someone on the forum has a tip?_________________Michael S. Okun, M.D.
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Wednesday, January 30, 2008
Tuesday, January 29, 2008
Are Diets delaying PD Progression?
Mon Jan 28, 2008 11:49 am Post subject: Are diets delaying PD progression?
What's about small amounts of liqour or beer per day as it shown that there is a decreased risk on heart attack and stroke on some people? It relieves the risk of sideeffect of Levodopa and Dopamine Agonists taking. and slowdown or delaying PD progression_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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GautamJoined: 01 Mar 2007Posts: 39Location: Goa, India
Posted: Tue Jan 29, 2008 2:33 am Post subject:
Are you asking a question or making a statement? I used to love a glass of beer or red wine before, but after PD I find it difficult to tolerate alcohol .
What's about small amounts of liqour or beer per day as it shown that there is a decreased risk on heart attack and stroke on some people? It relieves the risk of sideeffect of Levodopa and Dopamine Agonists taking. and slowdown or delaying PD progression_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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GautamJoined: 01 Mar 2007Posts: 39Location: Goa, India
Posted: Tue Jan 29, 2008 2:33 am Post subject:
Are you asking a question or making a statement? I used to love a glass of beer or red wine before, but after PD I find it difficult to tolerate alcohol .
Are nutrients associated with PD progression?
Fri Jan 25, 2008 4:02 am Post subject: Are nutrients associated with PD progression?
As Parkinson's disease (Lifetime partner) is a not going away disease we need nutrient(weapon) to battle the diseases from it's progression and slowdown the diseases. Besides exercises to strenthen your muscle stiffness and rigidity and mobilities nutrients are important for us to arm ourself to fight the PD. As Parkinson's have motor and non motor symptoms, Nutrients help patient stay healthy and keep fit._________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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Joe or BobJoined: 12 Aug 2007Posts: 79
Posted: Sun Jan 27, 2008 3:26 pm Post subject:
Dopamine doesn't just make itself. Nutrients such as L-tyrosine, ferrous iron and pyridoxine are essential for the formation of dopamine. The formation of dopamine increases or decreases according to their concentrations. see Biochemistry of Parkinson's Disease http://viartis.net/parkinsons.disease/biochemistry.htm
As Parkinson's disease (Lifetime partner) is a not going away disease we need nutrient(weapon) to battle the diseases from it's progression and slowdown the diseases. Besides exercises to strenthen your muscle stiffness and rigidity and mobilities nutrients are important for us to arm ourself to fight the PD. As Parkinson's have motor and non motor symptoms, Nutrients help patient stay healthy and keep fit._________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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Joe or BobJoined: 12 Aug 2007Posts: 79
Posted: Sun Jan 27, 2008 3:26 pm Post subject:
Dopamine doesn't just make itself. Nutrients such as L-tyrosine, ferrous iron and pyridoxine are essential for the formation of dopamine. The formation of dopamine increases or decreases according to their concentrations. see Biochemistry of Parkinson's Disease http://viartis.net/parkinsons.disease/biochemistry.htm
Sunday, January 27, 2008
Is Exercise harmful or worsen Parkinson ;pateint?
Joined: 03 Mar 2007Posts: 33Location: Malaysia
Posted: Sun Jan 20, 2008 4:40 am Post subject: Is Exercise harmful or worsen Parkinson patient?
Exercise is helpful for PD to slowdown from it's progression. However, some exercises are not suitable for PD. It depends on individual's physcial abilities/endurance. Let us discuss what are exercises suitable for PD and not worsen the diseases?_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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GautamJoined: 01 Mar 2007Posts: 36Location: Goa, India
Posted: Fri Jan 25, 2008 4:51 am Post subject:
I am not sure which exercises are harmfull for PD, but I recommend Yoga, Tai Chi, Deep breathing exercises and swimming. In addition, stretching exercises are a must. Cycling, provided you can still maintain your balance!! Gautam
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wheelersceJoined: 02 Mar 2007Posts: 270Location: MI
Posted: Fri Jan 25, 2008 7:42 am Post subject:
I walk and do Curves. I've wondered if any of the other women out there do Curves. It may not be as good for stiffness and balance as Yoga or Tai Chi, but I figure something is better than nothing when it comes to exercise, and this works well with my schedule and lifestyle. sw
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granniDJoined: 21 Oct 2007Posts: 71Location: Calgary Alberta Canada
Posted: Sat Jan 26, 2008 12:49 pm Post subject: Curves Grannid
wheelersce wrote:
I walk and do Curves. I've wondered if any of the other women out there do Curves. It may not be as good for stiffness and balance as Yoga or Tai Chi, but I figure something is better than nothing when it comes to exercise, and this works well with my schedule and lifestyle. swI go to Curves as much as I can I have had to take a 3 months break because the weather keeps me confined for alot of days. and my shoulder was acting up Anyway it helped me a lot and I wasn't really aware of how much it did for me until I quit going. It is very good for the legs and feet and the depression. Somehow i don't know why but exercise lifts the Spirit as well. I will be going back in April for sure Grannid
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Posted: Sun Jan 20, 2008 4:40 am Post subject: Is Exercise harmful or worsen Parkinson patient?
Exercise is helpful for PD to slowdown from it's progression. However, some exercises are not suitable for PD. It depends on individual's physcial abilities/endurance. Let us discuss what are exercises suitable for PD and not worsen the diseases?_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to top
GautamJoined: 01 Mar 2007Posts: 36Location: Goa, India
Posted: Fri Jan 25, 2008 4:51 am Post subject:
I am not sure which exercises are harmfull for PD, but I recommend Yoga, Tai Chi, Deep breathing exercises and swimming. In addition, stretching exercises are a must. Cycling, provided you can still maintain your balance!! Gautam
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wheelersceJoined: 02 Mar 2007Posts: 270Location: MI
Posted: Fri Jan 25, 2008 7:42 am Post subject:
I walk and do Curves. I've wondered if any of the other women out there do Curves. It may not be as good for stiffness and balance as Yoga or Tai Chi, but I figure something is better than nothing when it comes to exercise, and this works well with my schedule and lifestyle. sw
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granniDJoined: 21 Oct 2007Posts: 71Location: Calgary Alberta Canada
Posted: Sat Jan 26, 2008 12:49 pm Post subject: Curves Grannid
wheelersce wrote:
I walk and do Curves. I've wondered if any of the other women out there do Curves. It may not be as good for stiffness and balance as Yoga or Tai Chi, but I figure something is better than nothing when it comes to exercise, and this works well with my schedule and lifestyle. swI go to Curves as much as I can I have had to take a 3 months break because the weather keeps me confined for alot of days. and my shoulder was acting up Anyway it helped me a lot and I wasn't really aware of how much it did for me until I quit going. It is very good for the legs and feet and the depression. Somehow i don't know why but exercise lifts the Spirit as well. I will be going back in April for sure Grannid
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Patient's with deficient sodium?
Posted: Sat Jan 26, 2008 7:22 pm Post subject: Patient's with deficient sodium
Parkinson's patient with deficient sodium What are the symptoms for parkinson's patient with deficient sodium? What are the signs of sodium deficiency for parkinson's patient? What are the function of sodium in our body? What are the causes of deficiency? One major cause of sodium deficiency is excess sweating.
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Sun Jan 27, 2008 8:12 am Post subject:
Serum sodium is an electrolyte in the blood and its deficiency is often a reflection of the hydration status as well as an indirect measure of its balance (blood versus excretion). In PD we have not discovered any link between sodium and the neurodegeneration. We treat deficiency (usually an internist or family practice doc) by identifying the cause and addressing it. Abnormal sodium in anyone including PD patients can be seen with symptoms including things like dehydration, seizures, mental status issues (confusion). Abnormal electrolytes can theoretically worsen the clinical symptoms in a patient with a neurodegenerative disease such as PD and that is why we aggressive correct these problems when identified. Serum sodium if very deficient has to be corrected slowly to prevent damage to the brainstem (central pontine myelinolysis).______
Parkinson's patient with deficient sodium What are the symptoms for parkinson's patient with deficient sodium? What are the signs of sodium deficiency for parkinson's patient? What are the function of sodium in our body? What are the causes of deficiency? One major cause of sodium deficiency is excess sweating.
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Sun Jan 27, 2008 8:12 am Post subject:
Serum sodium is an electrolyte in the blood and its deficiency is often a reflection of the hydration status as well as an indirect measure of its balance (blood versus excretion). In PD we have not discovered any link between sodium and the neurodegeneration. We treat deficiency (usually an internist or family practice doc) by identifying the cause and addressing it. Abnormal sodium in anyone including PD patients can be seen with symptoms including things like dehydration, seizures, mental status issues (confusion). Abnormal electrolytes can theoretically worsen the clinical symptoms in a patient with a neurodegenerative disease such as PD and that is why we aggressive correct these problems when identified. Serum sodium if very deficient has to be corrected slowly to prevent damage to the brainstem (central pontine myelinolysis).______
Saturday, January 26, 2008
Is it a shame for the medical world?
Fri Jan 25, 2008 3:53 am Post subject: Is it a shame for the medical world?
Do you agree that Parkinson's progression with time? Despite there are new medications i.e one, second and third lines for Parkinson's treatment there are still no way to stop it's progression with time. Is it a shame for the medical world?_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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GautamJoined: 01 Mar 2007Posts: 36Location: Goa, India
Posted: Fri Jan 25, 2008 4:58 am Post subject:
Now thats going in to the Danger Zone! Just make sure that your Neuro or MDS isn't reading your postings in this forum
Joined: 12 Aug 2007Posts: 77
Posted: Sun Jan 27, 2008 3:28 pm Post subject:
I've known people who have rid or reduced their symptoms. It's not all one way. In future you won't have Parkinson's Disease. Nor will anyone else
Posted: Fri Jan 25, 2008 3:53 am Post subject: Is it a shame for the medical world?
Do you agree that Parkinson's progression with time? Despite there are new medications i.e one, second and third lines for Parkinson's treatment there are still no way to stop it's progression with time. Is it a shame for the medical world?_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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GautamJoined: 01 Mar 2007Posts: 45Location: Goa, India
Posted: Fri Jan 25, 2008 4:58 am Post subject:
Now thats going in to the Danger Zone! Just make sure that your Neuro or MDS isn't reading your postings in this forum!!
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Joe or BobJoined: 12 Aug 2007Posts: 88
Posted: Sun Jan 27, 2008 3:28 pm Post subject:
I've known people who have rid or reduced their symptoms. It's not all one way. In future you won't have Parkinson's Disease. Nor will anyone else.
Do you agree that Parkinson's progression with time? Despite there are new medications i.e one, second and third lines for Parkinson's treatment there are still no way to stop it's progression with time. Is it a shame for the medical world?_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to top
GautamJoined: 01 Mar 2007Posts: 36Location: Goa, India
Posted: Fri Jan 25, 2008 4:58 am Post subject:
Now thats going in to the Danger Zone! Just make sure that your Neuro or MDS isn't reading your postings in this forum
Joined: 12 Aug 2007Posts: 77
Posted: Sun Jan 27, 2008 3:28 pm Post subject:
I've known people who have rid or reduced their symptoms. It's not all one way. In future you won't have Parkinson's Disease. Nor will anyone else
Posted: Fri Jan 25, 2008 3:53 am Post subject: Is it a shame for the medical world?
Do you agree that Parkinson's progression with time? Despite there are new medications i.e one, second and third lines for Parkinson's treatment there are still no way to stop it's progression with time. Is it a shame for the medical world?_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to top
GautamJoined: 01 Mar 2007Posts: 45Location: Goa, India
Posted: Fri Jan 25, 2008 4:58 am Post subject:
Now thats going in to the Danger Zone! Just make sure that your Neuro or MDS isn't reading your postings in this forum!!
Back to top
Joe or BobJoined: 12 Aug 2007Posts: 88
Posted: Sun Jan 27, 2008 3:28 pm Post subject:
I've known people who have rid or reduced their symptoms. It's not all one way. In future you won't have Parkinson's Disease. Nor will anyone else.
Friday, January 25, 2008
The dilemma of early parkinson's patient?
Sun Jan 20, 2008 4:49 am Post subject: The Dilemma of early Parkinson's patient?
As an early PD patient I experience emotional disorders - anxiety,depression, apathy, uncertainties and stress. : I have fear as follows:- When do I tell others, and what do I say? Whether to tell " is a question posed by many people in the early stage of PD disease. 1. Is it jeopardize my job? Don't let other people feel sorry for me and for my wife and children? 2. Keep it yourself as secret and privacy and once it reveals you feel sorry as you cannot take it back. 3. I feel relieve as I tell out and I could get some support. 4. It is hard to keep it secret as PD is a not ' going on "disease and the tension of hiding it. 5. It helps more people to aware the diseases_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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Rogerstar1Joined: 14 Mar 2007Posts: 191
Posted: Thu Jan 24, 2008 5:44 pm Post subject:
Teokimhoe- I disclosed to my family the day I was diagnosed many years ago and have never regretted doing so. And to friends within days. As a trial lawyer with a busy schedule of serious cases it was professionally and ethically incumbent to make immediate, full disclosure to my clients and courts before whom I appeared. So I had no option. The further points you raise favoring disclosure I agree with. Thanks for posting and all the best to you, Teokimhoe. Rogerstar
Hi Teokimhoe and welcome to the forum. You have raised an extremely valid and important point. I was dx'd at age 41, 11 years back. My family knew about my ailment and were extremely supportive. However, I did not want to reveal it to my friends and started going in to a shell, withdrawing myself from all social get-togethers and activities. Being an extrovert, my friends were puzzled at the change and tried to draw me out, but eventually gave up and I became a recluse, wallowing in self pity – the ‘Why Me’ syndrome as I call it! Luckily Geeta my wife of 29 years, stood besides me like a rock, putting up with my depression, tantrums and the perpetual chip on my shoulders!! In addition to the support she gave me, she also had to ensure that our 2 young kids were not traumatised by their dad's strange behaviour and had to cope with her own fears as well. I am eternally grateful to her. I then came across the wonderful bunch of folks in this forum and cannot quantify the support I received from them. Today, I tell people right away that I have Parkinson’s and find that they are more comfortable once they know my problem. I normally give the example of Diabetics and their need to take synthetic insulin. If there is no social stigma against Diabetics, why should there be against PWP’s? Finally, I thank God that it’s just PD, it could have been something much worse!! All the best and keep participating actively in the forum. Regards Gautam
Joined: 09 Mar 2007Posts: 133Location: Whittier, California
Posted: Sat Jan 26, 2008 11:39 am Post subject: Early diagnosis of PD
Gautam, What a great posting! I think you said it very well. It is such a pleasure to see you back on the forum. I hope you are well. John_________________We are working to raise awareness and find a cure.
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pdgoawayJoined: 25 Jan 2008Posts: 3
Posted: Sat Jan 26, 2008 4:13 pm Post subject:
Hello, Teokimhoe Massage is very good to cure emotion disorder. Chines Tuina, Accupress massage, Japanese Tsiashu can help you a lot. Meanwhile, take the treatment of Chiropratic or ostheopathic to keep your neck spin in good placement, these treatments work together to prevent the developing of PD. Practice streching yoga (If the yoga teacher knows well the structure of spine and design the yoga posture special for you, it could be better.), running, swimming like fish to make the joins of your spine loosen, all these will be special good for the early pd patient. If you find a good massotherapist, the immediate relaxation will drive the bad emotion away from you. Once a month enough. Then you will have interest to do other things. I have two early pd patients, their pd doesn't develop, just a little bit tremor.
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GautamJoined: 01 Mar 2007Posts: 37Location: Goa, India
Posted: Sun Jan 27, 2008 11:32 pm Post subject:
Thanks John, good to be back. Have been quite busy and have not been on the net for quite some time. Will try and participate more often. Regards Gautam
Joined: 09 Mar 2007Posts: 133Location: Whittier, California
Posted: Sat Jan 26, 2008 11:39 am Post subject: Early diagnosis of PD
Gautam, What a great posting! I think you said it very well. It is such a pleasure to see you back on the forum. I hope you are well. John_________________We are working to raise awareness and find a cure.
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pdgoawayJoined: 25 Jan 2008Posts: 3
Posted: Sat Jan 26, 2008 4:13 pm Post subject:
Hello, Teokimhoe Massage is very good to cure emotion disorder. Chines Tuina, Accupress massage, Japanese Tsiashu can help you a lot. Meanwhile, take the treatment of Chiropratic or ostheopathic to keep your neck spin in good placement, these treatments work together to prevent the developing of PD. Practice streching yoga (If the yoga teacher knows well the structure of spine and design the yoga posture special for you, it could be better.), running, swimming like fish to make the joins of your spine loosen, all these will be special good for the early pd patient. If you find a good massotherapist, the immediate relaxation will drive the bad emotion away from you. Once a month enough. Then you will have interest to do other things. I have two early pd patients, their pd doesn't develop, just a little bit tremor.
Back to t0p
GautamJoined: 01 Mar 2007Posts: 37Location: Goa, India
Posted: Sun Jan 27, 2008 11:32 pm Post subject:
Thanks John, good to be back. Have been quite busy and have not been on the net for quite some time. Will try and participate more often. Regards Gautam
As an early PD patient I experience emotional disorders - anxiety,depression, apathy, uncertainties and stress. : I have fear as follows:- When do I tell others, and what do I say? Whether to tell " is a question posed by many people in the early stage of PD disease. 1. Is it jeopardize my job? Don't let other people feel sorry for me and for my wife and children? 2. Keep it yourself as secret and privacy and once it reveals you feel sorry as you cannot take it back. 3. I feel relieve as I tell out and I could get some support. 4. It is hard to keep it secret as PD is a not ' going on "disease and the tension of hiding it. 5. It helps more people to aware the diseases_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to top
Rogerstar1Joined: 14 Mar 2007Posts: 191
Posted: Thu Jan 24, 2008 5:44 pm Post subject:
Teokimhoe- I disclosed to my family the day I was diagnosed many years ago and have never regretted doing so. And to friends within days. As a trial lawyer with a busy schedule of serious cases it was professionally and ethically incumbent to make immediate, full disclosure to my clients and courts before whom I appeared. So I had no option. The further points you raise favoring disclosure I agree with. Thanks for posting and all the best to you, Teokimhoe. Rogerstar
Hi Teokimhoe and welcome to the forum. You have raised an extremely valid and important point. I was dx'd at age 41, 11 years back. My family knew about my ailment and were extremely supportive. However, I did not want to reveal it to my friends and started going in to a shell, withdrawing myself from all social get-togethers and activities. Being an extrovert, my friends were puzzled at the change and tried to draw me out, but eventually gave up and I became a recluse, wallowing in self pity – the ‘Why Me’ syndrome as I call it! Luckily Geeta my wife of 29 years, stood besides me like a rock, putting up with my depression, tantrums and the perpetual chip on my shoulders!! In addition to the support she gave me, she also had to ensure that our 2 young kids were not traumatised by their dad's strange behaviour and had to cope with her own fears as well. I am eternally grateful to her. I then came across the wonderful bunch of folks in this forum and cannot quantify the support I received from them. Today, I tell people right away that I have Parkinson’s and find that they are more comfortable once they know my problem. I normally give the example of Diabetics and their need to take synthetic insulin. If there is no social stigma against Diabetics, why should there be against PWP’s? Finally, I thank God that it’s just PD, it could have been something much worse!! All the best and keep participating actively in the forum. Regards Gautam
Joined: 09 Mar 2007Posts: 133Location: Whittier, California
Posted: Sat Jan 26, 2008 11:39 am Post subject: Early diagnosis of PD
Gautam, What a great posting! I think you said it very well. It is such a pleasure to see you back on the forum. I hope you are well. John_________________We are working to raise awareness and find a cure.
Back to top
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pdgoawayJoined: 25 Jan 2008Posts: 3
Posted: Sat Jan 26, 2008 4:13 pm Post subject:
Hello, Teokimhoe Massage is very good to cure emotion disorder. Chines Tuina, Accupress massage, Japanese Tsiashu can help you a lot. Meanwhile, take the treatment of Chiropratic or ostheopathic to keep your neck spin in good placement, these treatments work together to prevent the developing of PD. Practice streching yoga (If the yoga teacher knows well the structure of spine and design the yoga posture special for you, it could be better.), running, swimming like fish to make the joins of your spine loosen, all these will be special good for the early pd patient. If you find a good massotherapist, the immediate relaxation will drive the bad emotion away from you. Once a month enough. Then you will have interest to do other things. I have two early pd patients, their pd doesn't develop, just a little bit tremor.
Back to top
GautamJoined: 01 Mar 2007Posts: 37Location: Goa, India
Posted: Sun Jan 27, 2008 11:32 pm Post subject:
Thanks John, good to be back. Have been quite busy and have not been on the net for quite some time. Will try and participate more often. Regards Gautam
Joined: 09 Mar 2007Posts: 133Location: Whittier, California
Posted: Sat Jan 26, 2008 11:39 am Post subject: Early diagnosis of PD
Gautam, What a great posting! I think you said it very well. It is such a pleasure to see you back on the forum. I hope you are well. John_________________We are working to raise awareness and find a cure.
Back to top
pdgoawayJoined: 25 Jan 2008Posts: 3
Posted: Sat Jan 26, 2008 4:13 pm Post subject:
Hello, Teokimhoe Massage is very good to cure emotion disorder. Chines Tuina, Accupress massage, Japanese Tsiashu can help you a lot. Meanwhile, take the treatment of Chiropratic or ostheopathic to keep your neck spin in good placement, these treatments work together to prevent the developing of PD. Practice streching yoga (If the yoga teacher knows well the structure of spine and design the yoga posture special for you, it could be better.), running, swimming like fish to make the joins of your spine loosen, all these will be special good for the early pd patient. If you find a good massotherapist, the immediate relaxation will drive the bad emotion away from you. Once a month enough. Then you will have interest to do other things. I have two early pd patients, their pd doesn't develop, just a little bit tremor.
Back to t0p
GautamJoined: 01 Mar 2007Posts: 37Location: Goa, India
Posted: Sun Jan 27, 2008 11:32 pm Post subject:
Thanks John, good to be back. Have been quite busy and have not been on the net for quite some time. Will try and participate more often. Regards Gautam
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