Anonymous
Posted: Fri Jul 04, 2008 5:31 am Post subject: colonoscopy
Dear Dr, I am scheduled to have a colonoscopy. Are there any products that should be avoided in preparation or during the procedure my being a parkinsons patient? I am taking sinemet, mirapex and amantadine. I assume I can take my usual medications while getting ready for the test. Thank you for your help.
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Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Fri Jul 04, 2008 10:25 am Post subject:
Don't worry too much. Just follow the typical procedure for colonoscopy. Take your pills regulary until they tell you to stop taking all meds. Then bring your pills with you so that you are able to take it as soon as you are told that you can do so. Yours,_________________Hubert H. Fernandez
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Saturday, July 5, 2008
Friday, July 4, 2008
Medication
Anonymous
Posted: Wed Jul 02, 2008 4:51 am Post subject: medication
Dear Doctors, I have been told that I have a dropped bladder, and have to get up many times during the night to urinate. Can I safely take Detrol with my Sinemet, Mirapex and Amantadine? Do you have any other suggestions? Thank you for always being available to us.
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Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Wed Jul 02, 2008 3:33 pm Post subject:
In general you can safely take detrol. However, call your doctor if you experience confusion, hallucinations, dry mouth, blurred vision as they could be from the anticholinergic effects of detrol. Good luck!_________________Hubert H. Fernandez
Posted: Wed Jul 02, 2008 4:51 am Post subject: medication
Dear Doctors, I have been told that I have a dropped bladder, and have to get up many times during the night to urinate. Can I safely take Detrol with my Sinemet, Mirapex and Amantadine? Do you have any other suggestions? Thank you for always being available to us.
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Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Wed Jul 02, 2008 3:33 pm Post subject:
In general you can safely take detrol. However, call your doctor if you experience confusion, hallucinations, dry mouth, blurred vision as they could be from the anticholinergic effects of detrol. Good luck!_________________Hubert H. Fernandez
Wednesday, July 2, 2008
Vitamin and Parkinson's
Anonymous
Posted: Thu Jun 26, 2008 8:30 am
Post subject: Vitamins
Dear Ms. Holden;
Does taking supplements (multivitamins, B12, folic acid and fish oil) after dinner or after breakfast make a diffrence to the body's activities. Thank you
Back to top Kathrynne Holden, MS, RDJoined: 22 Jan 2007Posts: 94Location: http://www.nutritionucanlivewith.com/Posted: Thu Jun 26, 2008 6:39 pm Post subject:
Dear Friend,
Only a few supplements are of importance in PD. Iron supplements and vitamin B6 in amounts larger than 10-15 mg can interfere with levodopa absorption; these should be taken separately from levodopa by about 2 hours. Otherwise, the supplements you mention are fine; and all of them are best taken after meals, either breakfast or dinner should be okay. They should not interfere with any of the PD medications nor cause any unwanted PD symptoms._________________Best regards, Kathrynne Holden
Good question!
I ran a Google search a minute ago; here's one "reliable source" (IMHO) that provides answers of sorts:
http://neurotalk.psychcentral.com/archive/index.php/t-3675.html
(snip):
Vitamin B6 in doses higher than 5 mg per day might also impair the effectiveness of levodopa, and should be avoided.42 However, if you take levodopa/carbidopa combinations, this restriction may not necessarily apply. Talk with your physician about an appropriate dose of vitamin B6.
(snip):
Other substances may also interact with Parkinson's drugs. Iron supplements can interfere with absorption of levodopa and carbidopa, and should not be taken within 2 hours of either medication.39 Amino acid supplements, such as BCAAs (branched-chain amino acids), can temporarily decrease levodopa's effectiveness, as may methionine and phenylalanine, two amino acids studied for treatment of Parkinson's disease.40,41
Hope this helps!
Posted: Thu Jun 26, 2008 8:30 am
Post subject: Vitamins
Dear Ms. Holden;
Does taking supplements (multivitamins, B12, folic acid and fish oil) after dinner or after breakfast make a diffrence to the body's activities. Thank you
Back to top Kathrynne Holden, MS, RDJoined: 22 Jan 2007Posts: 94Location: http://www.nutritionucanlivewith.com/Posted: Thu Jun 26, 2008 6:39 pm Post subject:
Dear Friend,
Only a few supplements are of importance in PD. Iron supplements and vitamin B6 in amounts larger than 10-15 mg can interfere with levodopa absorption; these should be taken separately from levodopa by about 2 hours. Otherwise, the supplements you mention are fine; and all of them are best taken after meals, either breakfast or dinner should be okay. They should not interfere with any of the PD medications nor cause any unwanted PD symptoms._________________Best regards, Kathrynne Holden
Good question!
I ran a Google search a minute ago; here's one "reliable source" (IMHO) that provides answers of sorts:
http://neurotalk.psychcentral.com/archive/index.php/t-3675.html
(snip):
Vitamin B6 in doses higher than 5 mg per day might also impair the effectiveness of levodopa, and should be avoided.42 However, if you take levodopa/carbidopa combinations, this restriction may not necessarily apply. Talk with your physician about an appropriate dose of vitamin B6.
(snip):
Other substances may also interact with Parkinson's drugs. Iron supplements can interfere with absorption of levodopa and carbidopa, and should not be taken within 2 hours of either medication.39 Amino acid supplements, such as BCAAs (branched-chain amino acids), can temporarily decrease levodopa's effectiveness, as may methionine and phenylalanine, two amino acids studied for treatment of Parkinson's disease.40,41
Hope this helps!
Testimonial from Shalom CG Members
Testimonial from Shalom CG Members
Andree Surianta
I have known Mr. Richard and Mrs. Rosalind Teo for about 2 years now. He is the kind host for our Shalom CARE group, opening the doors of his house to us every Wednesday nights to allow us to have a small mid-week gathering of church members around the area. He leads a very active lifestlye, despite his age and condition, which might be the main reason on how he can maintain his health well. Of course, he would not be able to do this alone. The support of Mrs. Rosalind Teo is clearly one of the defining factor in his fight against his condition. And of the utmost importance, I believe, is the blessing of our Lord God. His guidance and healing hands has certainly supported Mr. Teo in his fight against PD. We pray that his testimony through this book can truly be a light for people that is travelling on the same path.
Nancy Khong
Mr. Teo is definitely a God loving man, full of strong determination and a self discipline person. Due to all these factors, he managed to fight a good battle and overcome the PD.
Bravo to Mr. Teo and give praise and honour to our Lord Jesus Christ.
Peter Chow
Having known Mr. Teo for the past 7 years, his fighting spirit has been known by all in the CareGroup. His passion to help others who are struggling with parkinson disease is truly commendable. Even though I may or will not be a victim of this dreaded illness (by God's grace), it is certainly an encouragement to know that ageing does not diminish a person's fighting spirit. Mr Teo is truly a living example of this fact. God’s grace is trully sufficient for His children.
Andy Eng
I think Mr. Teo has a very strong determination to fight this PD battle with much support from his loved one, family members, church and close friends around him. I thank the Lord for his grace and mercy that Mr. Teo is still holding on to a good fight as I know many would have give up easy with his conditions. So, I hope and pray that his testimony will be an encouragement to others to follow. Keep it up Mr. Teo.
Lisa Pan
I have known Mr. Teo since I joined the Shalom caregroup in the late 90s hosted by Mr & Mrs Teo at their home in Taman Desa and personally have been blessed by their kindness, generousity and warm hospitality as a CareGroup host all these years. I have witnessed how both Mr. & Mrs. Teo have grown in their Christian faith over the years. It is through their unfailing, unceasing love and faithfulness in trusting and serving our Almightly God, holding strong in their faith that has made the fight with Parkinson Disease a success. Mr. Teo has indeed fought Parkinson Disease like a true fighter with zest and positive spirit .
Khong Mei Ling
It has been a journey of discovery for all, not only for Mr. Teo, a.k.a HeroTeo, but Mrs. Teo, her family and all of us in our close knitted Shalom caregroup.
The road to recovery from Parkinson disease was full of faith, spirit, strength and belief where the vibes flow unselfishly among all. The patience, adoration and selflessness of Mrs. Teo reminds us of the vows we took “in sickness and in health” which struck chords in our hearts.
May this book brings hope to all PD patients and further strengthen our faith and trust in our beloved Lord Jesus Christ.
Wan Mei Yiun
Mr Teo has been a kind, thoughtful and helpful person. When he gets to know about a need, he will always help by way of finding information from the internet or referring to professionals or people who can provide a solution. I, as a member of his Care Group, are blessed by him in many ways and am happy that he is able to recover and share his experience from this PD that most people are ignorant and not willing to talk about. May God use his testimonies to help and encourage many PD patients out there.
Robert Wong
I got to know Mr Teo Kim Hoe since early 90s. At that time our Church Pastor John is the leader to the Care Group. As being new I'm always quiet and most of the time just an observer to the group. My first impression about Mr Teo would always be someone that is elderly and a good heart. He and his wife have always been an encouragement to us all at the CG because of their hospitality.
Few years ago Mr Teo was diagnosed with Parkinson Disease. Instead of feeling sorry for himself, he became a very aggresive person. When I say he is aggressive I don't mean his temper, but rather aggressiveness of knowing more about the Disease that he is down with. He would not give up a single chance of knowing more about the courses of having it and also the way to deal with it. He did a lot of research himself through the Internet and got a lot of advises from professional doctors that are in this field. His attitude towards fighting against this Disease has indeed helped him to come out as a 'Hero' today. This fine day he is a new man in term of physical and also mental. He has fight a good war and he has indeed won a good battle. May God continue to bless him and family for all that he is.
Chee Kai Yap and Taeko Funaoka
The Great Love of The Wonderful Earthly Host
Praise The Lord! We have been blessed with such a wonderful and marvelous host like Mr. & Mrs. Teo. We have known them for almost three years since the Lord placed us here in this Shalom CG. Mr.Teo is known for his undying spirit and persistency to fight against his Parkinson Disease (PD) which he had been diagnosed several years ago. His strong dedication in combating the PD has been witnessed by his passion in doing lots of research on PD, educating others on PD, cultivating a balance diet and a healthy exercise in the fitness centre. We also admire Mrs. Teo’s love and untiring support to Mr. Teo in combating his PD, her full submission and total obedience as a wife and also their wonderful children’s support to him. Mr. & Mrs. Teo are a lovely exemplary couple who walk in God’s love. We would like to use Romans 8:28 for this great testimony that God has work on him…” More (Mr. Teo is more) Than Conquerors…….. And we know that in all things God works for the good of those who love him who have been called according to His purpose”. We pray that God will continue to bless him and his family and his great testimony on his complete healing from PD to be shared to others so as all glories and praises will be due to our Heavenly Father. Amen!
Kenneth & Kim
Through the direction and guidance of our heavenly Father Jesus Christ, we came to know Mr Teo by joining the Shalom care group. His impression to us is a positive and very strong determination person especially fighting against the Parkinson Disease. Nevertheless, the understanding and caring wife – Mrs Teo has played an important role in winning the battle over the war of this disease. Both the hosts had shown the mercy of GOD in faith and taught us a valuable lesson and method for being kind, generous and faithful in life. The group’s spirit and bonding among all the Shalom members had brought us to another level of how we behave and treat people in our daily life. In conclusion, Mr Teo also name as Hero Teo – you are always my HERO forever. Your fighting spirit against the PD had deeply injected into our blood stream and now is being functioning actively as an immunity system for all “crying in pain” circumstances
Andree Surianta
I have known Mr. Richard and Mrs. Rosalind Teo for about 2 years now. He is the kind host for our Shalom CARE group, opening the doors of his house to us every Wednesday nights to allow us to have a small mid-week gathering of church members around the area. He leads a very active lifestlye, despite his age and condition, which might be the main reason on how he can maintain his health well. Of course, he would not be able to do this alone. The support of Mrs. Rosalind Teo is clearly one of the defining factor in his fight against his condition. And of the utmost importance, I believe, is the blessing of our Lord God. His guidance and healing hands has certainly supported Mr. Teo in his fight against PD. We pray that his testimony through this book can truly be a light for people that is travelling on the same path.
Nancy Khong
Mr. Teo is definitely a God loving man, full of strong determination and a self discipline person. Due to all these factors, he managed to fight a good battle and overcome the PD.
Bravo to Mr. Teo and give praise and honour to our Lord Jesus Christ.
Peter Chow
Having known Mr. Teo for the past 7 years, his fighting spirit has been known by all in the CareGroup. His passion to help others who are struggling with parkinson disease is truly commendable. Even though I may or will not be a victim of this dreaded illness (by God's grace), it is certainly an encouragement to know that ageing does not diminish a person's fighting spirit. Mr Teo is truly a living example of this fact. God’s grace is trully sufficient for His children.
Andy Eng
I think Mr. Teo has a very strong determination to fight this PD battle with much support from his loved one, family members, church and close friends around him. I thank the Lord for his grace and mercy that Mr. Teo is still holding on to a good fight as I know many would have give up easy with his conditions. So, I hope and pray that his testimony will be an encouragement to others to follow. Keep it up Mr. Teo.
Lisa Pan
I have known Mr. Teo since I joined the Shalom caregroup in the late 90s hosted by Mr & Mrs Teo at their home in Taman Desa and personally have been blessed by their kindness, generousity and warm hospitality as a CareGroup host all these years. I have witnessed how both Mr. & Mrs. Teo have grown in their Christian faith over the years. It is through their unfailing, unceasing love and faithfulness in trusting and serving our Almightly God, holding strong in their faith that has made the fight with Parkinson Disease a success. Mr. Teo has indeed fought Parkinson Disease like a true fighter with zest and positive spirit .
Khong Mei Ling
It has been a journey of discovery for all, not only for Mr. Teo, a.k.a HeroTeo, but Mrs. Teo, her family and all of us in our close knitted Shalom caregroup.
The road to recovery from Parkinson disease was full of faith, spirit, strength and belief where the vibes flow unselfishly among all. The patience, adoration and selflessness of Mrs. Teo reminds us of the vows we took “in sickness and in health” which struck chords in our hearts.
May this book brings hope to all PD patients and further strengthen our faith and trust in our beloved Lord Jesus Christ.
Wan Mei Yiun
Mr Teo has been a kind, thoughtful and helpful person. When he gets to know about a need, he will always help by way of finding information from the internet or referring to professionals or people who can provide a solution. I, as a member of his Care Group, are blessed by him in many ways and am happy that he is able to recover and share his experience from this PD that most people are ignorant and not willing to talk about. May God use his testimonies to help and encourage many PD patients out there.
Robert Wong
I got to know Mr Teo Kim Hoe since early 90s. At that time our Church Pastor John is the leader to the Care Group. As being new I'm always quiet and most of the time just an observer to the group. My first impression about Mr Teo would always be someone that is elderly and a good heart. He and his wife have always been an encouragement to us all at the CG because of their hospitality.
Few years ago Mr Teo was diagnosed with Parkinson Disease. Instead of feeling sorry for himself, he became a very aggresive person. When I say he is aggressive I don't mean his temper, but rather aggressiveness of knowing more about the Disease that he is down with. He would not give up a single chance of knowing more about the courses of having it and also the way to deal with it. He did a lot of research himself through the Internet and got a lot of advises from professional doctors that are in this field. His attitude towards fighting against this Disease has indeed helped him to come out as a 'Hero' today. This fine day he is a new man in term of physical and also mental. He has fight a good war and he has indeed won a good battle. May God continue to bless him and family for all that he is.
Chee Kai Yap and Taeko Funaoka
The Great Love of The Wonderful Earthly Host
Praise The Lord! We have been blessed with such a wonderful and marvelous host like Mr. & Mrs. Teo. We have known them for almost three years since the Lord placed us here in this Shalom CG. Mr.Teo is known for his undying spirit and persistency to fight against his Parkinson Disease (PD) which he had been diagnosed several years ago. His strong dedication in combating the PD has been witnessed by his passion in doing lots of research on PD, educating others on PD, cultivating a balance diet and a healthy exercise in the fitness centre. We also admire Mrs. Teo’s love and untiring support to Mr. Teo in combating his PD, her full submission and total obedience as a wife and also their wonderful children’s support to him. Mr. & Mrs. Teo are a lovely exemplary couple who walk in God’s love. We would like to use Romans 8:28 for this great testimony that God has work on him…” More (Mr. Teo is more) Than Conquerors…….. And we know that in all things God works for the good of those who love him who have been called according to His purpose”. We pray that God will continue to bless him and his family and his great testimony on his complete healing from PD to be shared to others so as all glories and praises will be due to our Heavenly Father. Amen!
Kenneth & Kim
Through the direction and guidance of our heavenly Father Jesus Christ, we came to know Mr Teo by joining the Shalom care group. His impression to us is a positive and very strong determination person especially fighting against the Parkinson Disease. Nevertheless, the understanding and caring wife – Mrs Teo has played an important role in winning the battle over the war of this disease. Both the hosts had shown the mercy of GOD in faith and taught us a valuable lesson and method for being kind, generous and faithful in life. The group’s spirit and bonding among all the Shalom members had brought us to another level of how we behave and treat people in our daily life. In conclusion, Mr Teo also name as Hero Teo – you are always my HERO forever. Your fighting spirit against the PD had deeply injected into our blood stream and now is being functioning actively as an immunity system for all “crying in pain” circumstances
Tuesday, July 1, 2008
yoga and parkinson's Disease by JongHau Foo
Yoga and Parkinson Disease
Yoga, what is it all about? Everyone seems to talk about it. Many people are doing yoga or at least try it once. Yoga has suddenly become a worldwide obsession. Many superstars have personal instructors while millions of people in cities and towns around the world head to their fitness centers, dance studios or yoga studios to stretch and sweat it out to become more flexible, stronger and leaner. Newspapers and magazines claim it is a solution to our stressful lives, an antidote for health malady and much more. However, the yoga that we practice today bears little resemblance to what it is 2000 years ago as it has evolved to meet the current cultures.
So what is yoga actually? Can Parkinson disease’s (PD) patient do yoga and can it improve their conditions, help them to cope with everyday lives and live better? To answer these questions let us just understand yoga a little bit better. Now, from a distance observation, yoga is a physical exercises comprising of postures and stretches, some simple while others are mind boggling. Nevertheless, it is more than that as there is a strong connection between the body, mind and spirit of the yoga practitioners. The combination of the body, mind and spirit exercises are to promote stillness and subdue distractions. By calming your mind, you will be able to bring positive aspects of life and see the joy of living, give thanks to what you have, what you are and the fact that you are still alive. In short, be aware of your well being.
Awareness is a key theme for yoga. It helps you to understand yourself better, especially when it comes to balancing postures. For instance, a normal person would usually be able to balance when he/she raises one leg up because the brain manages the action unconsciously. However, for PD patients, it’s an extremely difficult task to achieve as the connectivity between the brain the other parts of the body are some what distorted. Therefore, yoga teaches you to use your mental awareness and tap into your consciousness to gain some stability. It is a new learning process as it tries to get the brain and the body to connect. It is something like a baby trying to learn to stand for the first time.
We are living in an instant world where everyone wants things “NOW!” instant food, instant service, instant money and even instant health. We pop a pill down our throat and expect to recover instantly or at least by tomorrow. Unfortunately things don’t work this way. Yoga can indeed help to improve many illnesses, including PD, but it is also through hard work, consistency and determination. Some people may see the result after a few lessons, some in a few months but others in a few years. Eventually it all boils down to your own perseverance and patient is indeed a virtue here. Never give up and you will see light at the end of the tunnel.
Yoga, what is it all about? Everyone seems to talk about it. Many people are doing yoga or at least try it once. Yoga has suddenly become a worldwide obsession. Many superstars have personal instructors while millions of people in cities and towns around the world head to their fitness centers, dance studios or yoga studios to stretch and sweat it out to become more flexible, stronger and leaner. Newspapers and magazines claim it is a solution to our stressful lives, an antidote for health malady and much more. However, the yoga that we practice today bears little resemblance to what it is 2000 years ago as it has evolved to meet the current cultures.
So what is yoga actually? Can Parkinson disease’s (PD) patient do yoga and can it improve their conditions, help them to cope with everyday lives and live better? To answer these questions let us just understand yoga a little bit better. Now, from a distance observation, yoga is a physical exercises comprising of postures and stretches, some simple while others are mind boggling. Nevertheless, it is more than that as there is a strong connection between the body, mind and spirit of the yoga practitioners. The combination of the body, mind and spirit exercises are to promote stillness and subdue distractions. By calming your mind, you will be able to bring positive aspects of life and see the joy of living, give thanks to what you have, what you are and the fact that you are still alive. In short, be aware of your well being.
Awareness is a key theme for yoga. It helps you to understand yourself better, especially when it comes to balancing postures. For instance, a normal person would usually be able to balance when he/she raises one leg up because the brain manages the action unconsciously. However, for PD patients, it’s an extremely difficult task to achieve as the connectivity between the brain the other parts of the body are some what distorted. Therefore, yoga teaches you to use your mental awareness and tap into your consciousness to gain some stability. It is a new learning process as it tries to get the brain and the body to connect. It is something like a baby trying to learn to stand for the first time.
We are living in an instant world where everyone wants things “NOW!” instant food, instant service, instant money and even instant health. We pop a pill down our throat and expect to recover instantly or at least by tomorrow. Unfortunately things don’t work this way. Yoga can indeed help to improve many illnesses, including PD, but it is also through hard work, consistency and determination. Some people may see the result after a few lessons, some in a few months but others in a few years. Eventually it all boils down to your own perseverance and patient is indeed a virtue here. Never give up and you will see light at the end of the tunnel.
Parkinson's shall have a cure?
Posted: Sun Jun 29, 2008 5:23 pm Post subject: Parkinson's shall have a cure?
The researchers are working very hard to find a cure. The people in the US are petitioning for more allocation for research. PD shall have a cure. The day may not too far away? It is not dream but soon will be a reality. But when? TEOKIMHOE
The researchers are working very hard to find a cure. The people in the US are petitioning for more allocation for research. PD shall have a cure. The day may not too far away? It is not dream but soon will be a reality. But when? TEOKIMHOE
New generic Requip
Anonymous
Posted: Mon Jun 30, 2008 2:13 am Post subject: New generic Requip
I've read that a new generic Requip is available. Is there a once a day tablet option? Does the generic have the same compulsive tendencies associated wih it as the Requip?
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Mon Jun 30, 2008 2:29 pm Post subject:
In May 2008 generic requip became available and it definitely has the same side effect profile. It is unclear how similar it will behave pharmacologically to regular requip and only time and manufacturing will tell- but remember generic and regular sinemet absorb differently. Requip CR is not generic and is said to last about 14 hours or so and is usually taken once a day._________________Michael S. Okun, M.D.
Posted: Mon Jun 30, 2008 2:13 am Post subject: New generic Requip
I've read that a new generic Requip is available. Is there a once a day tablet option? Does the generic have the same compulsive tendencies associated wih it as the Requip?
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Mon Jun 30, 2008 2:29 pm Post subject:
In May 2008 generic requip became available and it definitely has the same side effect profile. It is unclear how similar it will behave pharmacologically to regular requip and only time and manufacturing will tell- but remember generic and regular sinemet absorb differently. Requip CR is not generic and is said to last about 14 hours or so and is usually taken once a day._________________Michael S. Okun, M.D.
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