Anonymous
Posted: Sun Aug 03, 2008 1:49 am Post subject: Lifestyle of PD and the family
Lifestlye of PD and the family
As PD is not a going on disease the nature of PD disease and the rate of progression, varies differently from one to other. They have to learn how to overcome difficulties i.e. lifestyle that it takes longer or concentration to accomplish a task once considered automatic. There are emotional, psychological, financial, family relationsip and social life for them to learn how to cope up. "Why me" anxiety, fear, helplessness and loss of control if are not managable made worsen by PD disease.These are normal reactions amongst the PD patients. Teo Kim Hoe
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Mon Aug 04, 2008 6:14 am Post subject:
Thanks for the comments._________________Michael S. Okun, M.D.
Monday, August 4, 2008
Sunday, August 3, 2008
Is Parkinson's not a so bad disease and is easy to control?
Anonymous
Posted: Thu Jul 31, 2008 3:45 am Post subject: Is Parkinson's is not a so bad disease and easy to control?
Dear Doctor,
I was diagnosed as a Parkinson's patient in the year of 2005. Besides medications I do exercises in the gym daily. I spend two hours in the gym and I have two personnel trainers who help me to strenghten my physical mobility and body flexibilities. I do yoga,body combat,pump, Box and kick exercise and cardio training. I am normal and don't look like anything is wrong actually had been told by my doctor, physical trainers and members of my family. Though it is expensive to battle. Is Parkinson's not a bad disease and is so easy to control?
TeoKimHoe
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Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Sat Aug 02, 2008 3:34 pm Post subject:
Thanks, Tim. PD affects people differently. For some people, the symptoms are very mild, they don't even realize they have PD. Yet for others, they are devastated by the ilness.
Fortunately, for those with significant illness, we now have better drugs to help patients.
There are a few more factors that play a role into this:
1. presence of co-morbidities. PD patients who are affected by the illness who are otherwise healthy will tolerate the disease much better than those who also have heart disease, diabetes, high blood pressure, etc.
2. interaction with doctors. Pd patients and families who have a good relationship with their doctors have better adjustments of their medications.
3. caregiver support. PD patients who have good family and social support do better than those who do not.
4. Patient's outlook and attitude. Like any other illness, patients with a great attitude go a long way than those who do not.
Yours,_________________Hubert H. Fernandez
From my experience, I have learnt that all Parkinson's patient is different from each other, in many aspects such as symptomatology, rate of disease progression and response to treatment. Managing my Parkinson's patients has been made easier by respecting the differences between each Parkinson's patients - there are no "two Parkinson's patients who are identical". One day, a man came to my clinic and asked me why his 62-year-old wife, who suffered from Parkinson's, could hardly walk despite having the illness for only four years. "I read an article in the newspaper which described how an elderly Parkinson's patient, who had been having the illness for twelve years, was doing some rather strenous exercises in a gym. How come my wife can't do even 5% of this exercise?" he commented. As I have treated his wife for about six years, I could easily understand why she behaved so differently from the other "super-fit" Parkinson's patient. His wife suffered from severe anxiety and depression, while her Parkinson's was actually quite mild. In other words, what "crippled" her was her mood disorder, and not the Parkinson's. Almost all the time, she would just lie on the bed or sit on a chair. Whenever her husband tried to help her to stand up, she would complain of dizziness and feeling like falling down. In addition, she had numerous other symptoms such as blurring of vision, numbness of hands, palpitation, etc (which were the symptoms of anxiety). Her social life was almost zero - she stayed at home all the time and even refused to follow her children to the restaurant. Thus, an important factor that contributes to the varying response to treatment is co-existing psychiatric disorders. Most Parkinson's patients have anxiety or depression or both, in varying degrees, which I think are partly due to difficulty in accepting their illness (i.e. Parkinson's). Some Parkinson's patients are devastated by Parkinson's while others are crippled by the psychiatric disorders (anxiety / depression). Unfortunately, psychiatric disorders in PD are very often neglected by both the patients and doctors. Mr Teo is fortunate that he does not have any psychiatric disorder. In fact, he has a very unusually "outgoing" personality, which most Parkinson's patients do not have. Mr. Teo is an optimistic person who has accepted his Parkinson's, and he always tries his best to cope with his illness. It is this "optimistic" personality that has made him so different from other Parkinson's patients. Dr Chew Nee Kong, Kuala Lumpur.
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Parkinson's Is "Not Such a Bad Disease?"
by Patricia LightnerEmotional Impacts
Diane, a woman with Parkinson’s, recently explained an unfortunate experience.
I actually had a doctor tell me: "Parkinson's is not such a bad disease. It’s so easy to control. Look at you; you don't look like anything is wrong," I didn't even respect the comment by an answer. I was so mad.He doesn’t see me when I'm at the end of a dose, or my meds are not working, or he doesn't realize many reasons why it’s very difficult to live with. It’s a very expensive disease and a battle.
People with Parkinson's interact with people who do not have all the information about the disease or medical research.Keep in mind that these are opportunities for you to share some of your experiences and develop some understanding. Who knows? You may convince someone to be an advocate for Parkinson's disease and the science that could render a cure.
Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Tue Sep 23, 2008 9:22 am Post subject:
Thanks for the wonderful note!_________________Michael S. Okun, M.D.
Posted: Thu Jul 31, 2008 3:45 am Post subject: Is Parkinson's is not a so bad disease and easy to control?
Dear Doctor,
I was diagnosed as a Parkinson's patient in the year of 2005. Besides medications I do exercises in the gym daily. I spend two hours in the gym and I have two personnel trainers who help me to strenghten my physical mobility and body flexibilities. I do yoga,body combat,pump, Box and kick exercise and cardio training. I am normal and don't look like anything is wrong actually had been told by my doctor, physical trainers and members of my family. Though it is expensive to battle. Is Parkinson's not a bad disease and is so easy to control?
TeoKimHoe
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Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Sat Aug 02, 2008 3:34 pm Post subject:
Thanks, Tim. PD affects people differently. For some people, the symptoms are very mild, they don't even realize they have PD. Yet for others, they are devastated by the ilness.
Fortunately, for those with significant illness, we now have better drugs to help patients.
There are a few more factors that play a role into this:
1. presence of co-morbidities. PD patients who are affected by the illness who are otherwise healthy will tolerate the disease much better than those who also have heart disease, diabetes, high blood pressure, etc.
2. interaction with doctors. Pd patients and families who have a good relationship with their doctors have better adjustments of their medications.
3. caregiver support. PD patients who have good family and social support do better than those who do not.
4. Patient's outlook and attitude. Like any other illness, patients with a great attitude go a long way than those who do not.
Yours,_________________Hubert H. Fernandez
From my experience, I have learnt that all Parkinson's patient is different from each other, in many aspects such as symptomatology, rate of disease progression and response to treatment. Managing my Parkinson's patients has been made easier by respecting the differences between each Parkinson's patients - there are no "two Parkinson's patients who are identical". One day, a man came to my clinic and asked me why his 62-year-old wife, who suffered from Parkinson's, could hardly walk despite having the illness for only four years. "I read an article in the newspaper which described how an elderly Parkinson's patient, who had been having the illness for twelve years, was doing some rather strenous exercises in a gym. How come my wife can't do even 5% of this exercise?" he commented. As I have treated his wife for about six years, I could easily understand why she behaved so differently from the other "super-fit" Parkinson's patient. His wife suffered from severe anxiety and depression, while her Parkinson's was actually quite mild. In other words, what "crippled" her was her mood disorder, and not the Parkinson's. Almost all the time, she would just lie on the bed or sit on a chair. Whenever her husband tried to help her to stand up, she would complain of dizziness and feeling like falling down. In addition, she had numerous other symptoms such as blurring of vision, numbness of hands, palpitation, etc (which were the symptoms of anxiety). Her social life was almost zero - she stayed at home all the time and even refused to follow her children to the restaurant. Thus, an important factor that contributes to the varying response to treatment is co-existing psychiatric disorders. Most Parkinson's patients have anxiety or depression or both, in varying degrees, which I think are partly due to difficulty in accepting their illness (i.e. Parkinson's). Some Parkinson's patients are devastated by Parkinson's while others are crippled by the psychiatric disorders (anxiety / depression). Unfortunately, psychiatric disorders in PD are very often neglected by both the patients and doctors. Mr Teo is fortunate that he does not have any psychiatric disorder. In fact, he has a very unusually "outgoing" personality, which most Parkinson's patients do not have. Mr. Teo is an optimistic person who has accepted his Parkinson's, and he always tries his best to cope with his illness. It is this "optimistic" personality that has made him so different from other Parkinson's patients. Dr Chew Nee Kong, Kuala Lumpur.
Back to top
Parkinson's Is "Not Such a Bad Disease?"
by Patricia LightnerEmotional Impacts
Diane, a woman with Parkinson’s, recently explained an unfortunate experience.
I actually had a doctor tell me: "Parkinson's is not such a bad disease. It’s so easy to control. Look at you; you don't look like anything is wrong," I didn't even respect the comment by an answer. I was so mad.He doesn’t see me when I'm at the end of a dose, or my meds are not working, or he doesn't realize many reasons why it’s very difficult to live with. It’s a very expensive disease and a battle.
People with Parkinson's interact with people who do not have all the information about the disease or medical research.Keep in mind that these are opportunities for you to share some of your experiences and develop some understanding. Who knows? You may convince someone to be an advocate for Parkinson's disease and the science that could render a cure.
Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Tue Sep 23, 2008 9:22 am Post subject:
Thanks for the wonderful note!_________________Michael S. Okun, M.D.
Thursday, July 31, 2008
Forum: Is Parkinson's not a bad disease and is easy to control?
Dear Doctor,
I was diagnosed as a Parkinson's patient in the year of 2005.
Besides medications I do exercises in the gym daily. I spend two hours in the gym and I have two personnel trainers who help me to strenghten my physical mobility and body flexibilities.
I do yoga,body combat,pump, Box and kick exercise and cardio training.
I am normal and don't look like anything is wrong actually had been told by my doctor, physical trainers and members of my family. Though it is expensive to battle.
Is Parkinson's not a bad disease and is so easy to control?
TeoKimHoe
http://www.patient.co.uk/showdoc/23068879/
PeterMidJoined: 20 Jun 2008Posts: 12
Posted: Fri Aug 01, 2008 6:30 am Post subject:
Teokimhoe
You are joking, aren't you? I excercise as much as my PD allows, and that isn't very far, I'm afraid. A walk of 150 metres is about my limit, and even then, my legs are on fire and the Oedeema is bursting eruptions through my skin. Dbviously, you work hard on your personnal fitness and I admire you for that, but to suggest PD is not a bad pox is a little extreme. What about my Diabetes? Is that not a bad disease too? Pokermid
PeterMidJoined: 20 Jun 2008Posts: 13
Posted: Fri Aug 01, 2008 7:32 am Post subject:
Oh, and by the way Teokimhoe. In the UK, personnal fitness trainers charge £50 per hour 2 x trainers for 2 hours = £200 GBP or $400 USD 7 Days = £1400 GBP or $2800 USD 1 Year = £72,800 or $145,600 USD pokermid
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teokimhoeJoined: 03 Mar 2007Posts: 106Location: Malaysia
Posted: Fri Aug 01, 2008 7:59 am Post subject:
Dear Pokermid Am I joking? Certainly not. It's obvious that you did not get the gist of my message, do you? The point is that for people suffering from PD, you could at least have the option of adjusting your lifestyle to control the advancement of the disease. Working out regularly and correctly is a way of slowing down the effect of the disease. As compared to other diseases, whose advancement are somewhat beyond your control, eg. cancer whereby save and except for very few, you will die pretty soon. In such a sense, definitely PD is a "better" disease to have. Of course given the choice, nobody would want to be suffering from any disease right? If 150 metres is your limit, I pity you. Obviously you have not been taking care of yourself well enough. Diabetes is again a result of your lifestyle. That is your own choice!!! It obvious that your lifestyle has been downright unhealthy. Too much sugar intake eh?? Working out in the gym is again an option. If you can't afford it, you can always work out elsewhere. Nobody says that working out must be limited to the gym or expensive!! My advice to you is grab a hold of your life and turn it around, rather than displaying such negative attitude. Embark on a healthier lifestyle and you will see the results._________________
CatsPajamasJoined: 06 Aug 2008Posts: 1
Posted: Wed Aug 06, 2008 5:43 pm Post subject: geez...
Perhaps this forum should be monitored. I can see why so few post here. The tone is confrontive, to say the very, very least.
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From my experience, I have learnt that all Parkinson's patient is different from each other, in many aspects such as symptomatology, rate of disease progression and response to treatment. Managing my Parkinson's patients has been made easier by respecting the differences between each Parkinson's patients - there are no "two Parkinson's patients who are identical". One day, a man came to my clinic and asked me why his 62-year-old wife, who suffered from Parkinson's, could hardly walk despite having the illness for only four years. "I read an article in the newspaper which described how an elderly Parkinson's patient, who had been having the illness for twelve years, was doing some rather strenous exercises in a gym. How come my wife can't do even 5% of this exercise?" he commented. As I have treated his wife for about six years, I could easily understand why she behaved so differently from the other "super-fit" Parkinson's patient. His wife suffered from severe anxiety and depression, while her Parkinson's was actually quite mild. In other words, what "crippled" her was her mood disorder, and not the Parkinson's. Almost all the time, she would just lie on the bed or sit on a chair. Whenever her husband tried to help her to stand up, she would complain of dizziness and feeling like falling down. In addition, she had numerous other symptoms such as blurring of vision, numbness of hands, palpitation, etc (which were the symptoms of anxiety). Her social life was almost zero - she stayed at home all the time and even refused to follow her children to the restaurant. Thus, an important factor that contributes to the varying response to treatment is co-existing psychiatric disorders. Most Parkinson's patients have anxiety or depression or both, in varying degrees, which I think are partly due to difficulty in accepting their illness (i.e. Parkinson's). Some Parkinson's patients are devastated by Parkinson's while others are crippled by the psychiatric disorders (anxiety / depression). Unfortunately, psychiatric disorders in PD are very often neglected by both the patients and doctors. Mr Teo is fortunate that he does not have any psychiatric disorder. In fact, he has a very unusually "outgoing" personality, which most Parkinson's patients do not have. Mr. Teo is an optimistic person who has accepted his Parkinson's, and he always tries his best to cope with his illness. It is this "optimistic" personality that has made him so different from other Parkinson's patients. Dr Chew Nee Kong, Kuala Lumpur.
wheelersceJoined: 02 Mar 2007Posts: 503Location: MI
Posted: Mon Aug 11, 2008 6:11 am Post subject:
Hi, CatsPajamas, Its true that this exchange seems confrontive. But like any group of people, we on this forum have a range of personalities and styles. Please add to the discussion, the way you would like to see it. I'd like to know you better--haven't seen you post before. Sue W.
cfinlaysonJoined: 29 Jun 2007Posts: 125
Posted: Mon Aug 11, 2008 10:16 am Post subject:
Hi CatsPajamas, It is nice to see your name on this forum. Like Sue said, this forum has a range of personalities, but we have all agreed to disagree at times. When it comes down to it, we do lean on each other to help us through the hard times. Some of us lean on the Lord and some of us have other ways of dealing with this disease, but we are all in it together. I know that I keep us all in my prayers every night. So please, post and let us know more about you. Candy
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wheelersceJoined: 02 Mar 2007Posts: 513Location: MI
Posted: Sat Aug 16, 2008 6:57 am Post subject:
Gautam, I was very disturbed by this response to Peter. Whether Teokimhoe or Dr. Chew wrote it, pouring out guilt on us PWPs is hardly the best encouragement. Good to see you. Sue W.
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PeterMidJoined: 20 Jun 2008Posts: 17
Posted: Sat Aug 16, 2008 7:46 pm Post subject:
No more Heroes No need to worry about Pokermid, Teo’s a hero right out of the ID. Could he be Batman, crusader of right Maybe Darth Vader whose just seen the light. Silver with surfboard? Or is he the Thing? Mr Fantastic with his rubber ding!!! What of the Lantern with green in his eyes, Or is he Clark Kent without his disguise? Could he be Hulkster who bounds through the air, Is he the Devil in red and can Dare. No-one can see the invisible man, Only Sue Richards who probably can. Is he the X-man we know as Cyclops, Is he Dick Fosbury with his famous flops. What about Spidey who likes spinning webs, Or is he James Bond who romances Debs. Could he be Torchy who “flames on” in 4, Could be a Viking that we know as Thor. OR IS HE Homer, the Simpson not Greek, Eating a donut like a little geek What is the matter with Teokimhoe, Or is he really American Joe. Chip on his shoulder? It sounds like to me, Who is this Hero? Oh who could it be? Pokerman
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PeterMidJoined: 20 Jun 2008Posts: 17
Posted: Sat Aug 16, 2008 8:06 pm Post subject:
he's probably just a "Family guy"
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teokimhoeJoined: 03 Mar 2007Posts: 108Location: Malaysia
Posted: Sun Aug 17, 2008 3:50 am Post subject:
The main purpose of my entries is to share my experience with sufferers of PD, and to get across the message that you alone can make a difference to your life by turning it around, as in my case, exercising correctly. Everybody has their own ways of expression, some confrontational and some more diplomatic. But the intention still remains the same, that is to share my experience with the hope that it may help others. If you think this is a laughing matter by throwing scorn around and making fun of others, so be it. As far as I am concerned, this matter is closed._________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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GautamJoined: 01 Mar 2007Posts: 84Location: Goa, India
Posted: Mon Aug 18, 2008 12:26 am Post subject:
Teo, Sorry if I sounded rude in my post. While we all appreciate your contribution, you do have to keep in mind that PD symptoms and progression differs from person to person. While on one hand we have John Ball who participates in marathon runs despite having PD for almost 3 decades, we also have Peter and several others, including me, who have difficulty in exercising and walking. I used to walk 5 kms daily, today after walking less than half a Kilometre my ankles start twisting and gives away and I am unable to even return back home! What Peter was trying to point out was that PD is also an expensive disease, and not everybody can afford personal fitness trainers. Imagine my plight, we do not have Social security in India and the cost of medication, DBS, etc. has to be borne by the individual patients.If my MDS advices me to go in for a DBS surgery, I just cannot afford to have one as it costs almost Rs.500,000 in India! So lets appreciate and understand each other on this forum. kind regards Gautam quote="teokimhoe"]The main purpose of my entries is to share my experience with sufferers of PD, and to get across the message that you alone can make a difference to your life by turning it around, as in my case, exercising correctly. Everybody has their own ways of expression, some confrontational and some more diplomatic. But the intention still remains the same, that is to share my experience with the hope that it may help others. If you think this is a laughing matter by throwing scorn around and making fun of others, so be it. As far as I am concerned, this matter is closed.[/quote]
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PatientsLikeMe Forum
http://www.patientslikeme.com/forum/show/20095?view=last#229639
I was diagnosed as a Parkinson's patient in the year of 2005.
Besides medications I do exercises in the gym daily. I spend two hours in the gym and I have two personnel trainers who help me to strenghten my physical mobility and body flexibilities.
I do yoga,body combat,pump, Box and kick exercise and cardio training.
I am normal and don't look like anything is wrong actually had been told by my doctor, physical trainers and members of my family. Though it is expensive to battle.
Is Parkinson's not a bad disease and is so easy to control?
TeoKimHoe
http://www.patient.co.uk/showdoc/23068879/
PeterMidJoined: 20 Jun 2008Posts: 12
Posted: Fri Aug 01, 2008 6:30 am Post subject:
Teokimhoe
You are joking, aren't you? I excercise as much as my PD allows, and that isn't very far, I'm afraid. A walk of 150 metres is about my limit, and even then, my legs are on fire and the Oedeema is bursting eruptions through my skin. Dbviously, you work hard on your personnal fitness and I admire you for that, but to suggest PD is not a bad pox is a little extreme. What about my Diabetes? Is that not a bad disease too? Pokermid
PeterMidJoined: 20 Jun 2008Posts: 13
Posted: Fri Aug 01, 2008 7:32 am Post subject:
Oh, and by the way Teokimhoe. In the UK, personnal fitness trainers charge £50 per hour 2 x trainers for 2 hours = £200 GBP or $400 USD 7 Days = £1400 GBP or $2800 USD 1 Year = £72,800 or $145,600 USD pokermid
Back to top
teokimhoeJoined: 03 Mar 2007Posts: 106Location: Malaysia
Posted: Fri Aug 01, 2008 7:59 am Post subject:
Dear Pokermid Am I joking? Certainly not. It's obvious that you did not get the gist of my message, do you? The point is that for people suffering from PD, you could at least have the option of adjusting your lifestyle to control the advancement of the disease. Working out regularly and correctly is a way of slowing down the effect of the disease. As compared to other diseases, whose advancement are somewhat beyond your control, eg. cancer whereby save and except for very few, you will die pretty soon. In such a sense, definitely PD is a "better" disease to have. Of course given the choice, nobody would want to be suffering from any disease right? If 150 metres is your limit, I pity you. Obviously you have not been taking care of yourself well enough. Diabetes is again a result of your lifestyle. That is your own choice!!! It obvious that your lifestyle has been downright unhealthy. Too much sugar intake eh?? Working out in the gym is again an option. If you can't afford it, you can always work out elsewhere. Nobody says that working out must be limited to the gym or expensive!! My advice to you is grab a hold of your life and turn it around, rather than displaying such negative attitude. Embark on a healthier lifestyle and you will see the results._________________
CatsPajamasJoined: 06 Aug 2008Posts: 1
Posted: Wed Aug 06, 2008 5:43 pm Post subject: geez...
Perhaps this forum should be monitored. I can see why so few post here. The tone is confrontive, to say the very, very least.
Back to top
From my experience, I have learnt that all Parkinson's patient is different from each other, in many aspects such as symptomatology, rate of disease progression and response to treatment. Managing my Parkinson's patients has been made easier by respecting the differences between each Parkinson's patients - there are no "two Parkinson's patients who are identical". One day, a man came to my clinic and asked me why his 62-year-old wife, who suffered from Parkinson's, could hardly walk despite having the illness for only four years. "I read an article in the newspaper which described how an elderly Parkinson's patient, who had been having the illness for twelve years, was doing some rather strenous exercises in a gym. How come my wife can't do even 5% of this exercise?" he commented. As I have treated his wife for about six years, I could easily understand why she behaved so differently from the other "super-fit" Parkinson's patient. His wife suffered from severe anxiety and depression, while her Parkinson's was actually quite mild. In other words, what "crippled" her was her mood disorder, and not the Parkinson's. Almost all the time, she would just lie on the bed or sit on a chair. Whenever her husband tried to help her to stand up, she would complain of dizziness and feeling like falling down. In addition, she had numerous other symptoms such as blurring of vision, numbness of hands, palpitation, etc (which were the symptoms of anxiety). Her social life was almost zero - she stayed at home all the time and even refused to follow her children to the restaurant. Thus, an important factor that contributes to the varying response to treatment is co-existing psychiatric disorders. Most Parkinson's patients have anxiety or depression or both, in varying degrees, which I think are partly due to difficulty in accepting their illness (i.e. Parkinson's). Some Parkinson's patients are devastated by Parkinson's while others are crippled by the psychiatric disorders (anxiety / depression). Unfortunately, psychiatric disorders in PD are very often neglected by both the patients and doctors. Mr Teo is fortunate that he does not have any psychiatric disorder. In fact, he has a very unusually "outgoing" personality, which most Parkinson's patients do not have. Mr. Teo is an optimistic person who has accepted his Parkinson's, and he always tries his best to cope with his illness. It is this "optimistic" personality that has made him so different from other Parkinson's patients. Dr Chew Nee Kong, Kuala Lumpur.
wheelersceJoined: 02 Mar 2007Posts: 503Location: MI
Posted: Mon Aug 11, 2008 6:11 am Post subject:
Hi, CatsPajamas, Its true that this exchange seems confrontive. But like any group of people, we on this forum have a range of personalities and styles. Please add to the discussion, the way you would like to see it. I'd like to know you better--haven't seen you post before. Sue W.
cfinlaysonJoined: 29 Jun 2007Posts: 125
Posted: Mon Aug 11, 2008 10:16 am Post subject:
Hi CatsPajamas, It is nice to see your name on this forum. Like Sue said, this forum has a range of personalities, but we have all agreed to disagree at times. When it comes down to it, we do lean on each other to help us through the hard times. Some of us lean on the Lord and some of us have other ways of dealing with this disease, but we are all in it together. I know that I keep us all in my prayers every night. So please, post and let us know more about you. Candy
Back to top
wheelersceJoined: 02 Mar 2007Posts: 513Location: MI
Posted: Sat Aug 16, 2008 6:57 am Post subject:
Gautam, I was very disturbed by this response to Peter. Whether Teokimhoe or Dr. Chew wrote it, pouring out guilt on us PWPs is hardly the best encouragement. Good to see you. Sue W.
Back to top
PeterMidJoined: 20 Jun 2008Posts: 17
Posted: Sat Aug 16, 2008 7:46 pm Post subject:
No more Heroes No need to worry about Pokermid, Teo’s a hero right out of the ID. Could he be Batman, crusader of right Maybe Darth Vader whose just seen the light. Silver with surfboard? Or is he the Thing? Mr Fantastic with his rubber ding!!! What of the Lantern with green in his eyes, Or is he Clark Kent without his disguise? Could he be Hulkster who bounds through the air, Is he the Devil in red and can Dare. No-one can see the invisible man, Only Sue Richards who probably can. Is he the X-man we know as Cyclops, Is he Dick Fosbury with his famous flops. What about Spidey who likes spinning webs, Or is he James Bond who romances Debs. Could he be Torchy who “flames on” in 4, Could be a Viking that we know as Thor. OR IS HE Homer, the Simpson not Greek, Eating a donut like a little geek What is the matter with Teokimhoe, Or is he really American Joe. Chip on his shoulder? It sounds like to me, Who is this Hero? Oh who could it be? Pokerman
Back to top
PeterMidJoined: 20 Jun 2008Posts: 17
Posted: Sat Aug 16, 2008 8:06 pm Post subject:
he's probably just a "Family guy"
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teokimhoeJoined: 03 Mar 2007Posts: 108Location: Malaysia
Posted: Sun Aug 17, 2008 3:50 am Post subject:
The main purpose of my entries is to share my experience with sufferers of PD, and to get across the message that you alone can make a difference to your life by turning it around, as in my case, exercising correctly. Everybody has their own ways of expression, some confrontational and some more diplomatic. But the intention still remains the same, that is to share my experience with the hope that it may help others. If you think this is a laughing matter by throwing scorn around and making fun of others, so be it. As far as I am concerned, this matter is closed._________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to top
GautamJoined: 01 Mar 2007Posts: 84Location: Goa, India
Posted: Mon Aug 18, 2008 12:26 am Post subject:
Teo, Sorry if I sounded rude in my post. While we all appreciate your contribution, you do have to keep in mind that PD symptoms and progression differs from person to person. While on one hand we have John Ball who participates in marathon runs despite having PD for almost 3 decades, we also have Peter and several others, including me, who have difficulty in exercising and walking. I used to walk 5 kms daily, today after walking less than half a Kilometre my ankles start twisting and gives away and I am unable to even return back home! What Peter was trying to point out was that PD is also an expensive disease, and not everybody can afford personal fitness trainers. Imagine my plight, we do not have Social security in India and the cost of medication, DBS, etc. has to be borne by the individual patients.If my MDS advices me to go in for a DBS surgery, I just cannot afford to have one as it costs almost Rs.500,000 in India! So lets appreciate and understand each other on this forum. kind regards Gautam quote="teokimhoe"]The main purpose of my entries is to share my experience with sufferers of PD, and to get across the message that you alone can make a difference to your life by turning it around, as in my case, exercising correctly. Everybody has their own ways of expression, some confrontational and some more diplomatic. But the intention still remains the same, that is to share my experience with the hope that it may help others. If you think this is a laughing matter by throwing scorn around and making fun of others, so be it. As far as I am concerned, this matter is closed.[/quote]
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PatientsLikeMe Forum
http://www.patientslikeme.com/forum/show/20095?view=last#229639
High Cholesterol can increase risk of Parkinson's
High Cholesterol Can Increase Risk of Parkinson's Disease
by Camilla HodgePrevention
Adults younger than 55 years old may run an elevated risk of developing Parkinson’s disease if they have been diagnosed with high cholesterol. This trend was found in both men and women who were part of the recent Finnish study published in the May 20 issue of Neurology. Researchers gathered information on nearly 25,000 men and women. Participants had no history of Parkinson’s disease or stroke at the beginning of the study. After an average follow-up of just more than 18 years, 321 men and 304 women developed Parkinson’s disease. These men and women were found to have higher cholesterol than the rest of the participants. Patients with the highest cholesterol were 86 percent more likely to develop Parkinson’s disease than the participants with the lowest cholesterol. Interestingly, this risk applied only to participants between the ages of 24 and 54. Cholesterol levels were tested and adjusted for factors such as age, body mass index, systolic blood pressure, education, leisure-time physical activity, smoking, alcohol consumption, coffee and tea consumption, and history of diabetes. High cholesterol can have serious negative affects on health, including increased risk of heart disease and stroke. Medical professionals are careful to monitor and treat high cholesterol in their patients. While many cases of high cholesterol can be controlled with careful diet management and regular exercise, there are several medications available to help lower cholesterol levels.Statins are one such medication. In light of this new study, some experts are concerned that these results will incorrectly associate statin use (a common treatment for high cholesterol) with preventing Parkinson’s disease. In a response published in the June 4 issue of Neurology, one doctor explained that while statins are an effective treatment for high cholesterol, they may actually trigger a reaction in the brain that causes an increase in a certain cell that can “suppress the beneficial immune effector mechanism in PD.” In other words, it unclear whether using statins to treat high cholesterol will decrease the incidence of neurological disorders like Parkinson’s disease. The role of cholesterol in Parkinson’s disease has been a subject of debate in the medical community. Other studies have indicated that low cholesterol can be related to an increased risk of Parkinson’s disease. Such findings may be related to the affects of statins. The decision to treat high cholesterol with statins is one that should be discussed thoroughly with your doctor. However, statins may be contraindicated for patients with Parkinson’s disease. Sources:Neurology May 20, 2008 Neurology June 4, 2008
by Camilla HodgePrevention
Adults younger than 55 years old may run an elevated risk of developing Parkinson’s disease if they have been diagnosed with high cholesterol. This trend was found in both men and women who were part of the recent Finnish study published in the May 20 issue of Neurology. Researchers gathered information on nearly 25,000 men and women. Participants had no history of Parkinson’s disease or stroke at the beginning of the study. After an average follow-up of just more than 18 years, 321 men and 304 women developed Parkinson’s disease. These men and women were found to have higher cholesterol than the rest of the participants. Patients with the highest cholesterol were 86 percent more likely to develop Parkinson’s disease than the participants with the lowest cholesterol. Interestingly, this risk applied only to participants between the ages of 24 and 54. Cholesterol levels were tested and adjusted for factors such as age, body mass index, systolic blood pressure, education, leisure-time physical activity, smoking, alcohol consumption, coffee and tea consumption, and history of diabetes. High cholesterol can have serious negative affects on health, including increased risk of heart disease and stroke. Medical professionals are careful to monitor and treat high cholesterol in their patients. While many cases of high cholesterol can be controlled with careful diet management and regular exercise, there are several medications available to help lower cholesterol levels.Statins are one such medication. In light of this new study, some experts are concerned that these results will incorrectly associate statin use (a common treatment for high cholesterol) with preventing Parkinson’s disease. In a response published in the June 4 issue of Neurology, one doctor explained that while statins are an effective treatment for high cholesterol, they may actually trigger a reaction in the brain that causes an increase in a certain cell that can “suppress the beneficial immune effector mechanism in PD.” In other words, it unclear whether using statins to treat high cholesterol will decrease the incidence of neurological disorders like Parkinson’s disease. The role of cholesterol in Parkinson’s disease has been a subject of debate in the medical community. Other studies have indicated that low cholesterol can be related to an increased risk of Parkinson’s disease. Such findings may be related to the affects of statins. The decision to treat high cholesterol with statins is one that should be discussed thoroughly with your doctor. However, statins may be contraindicated for patients with Parkinson’s disease. Sources:Neurology May 20, 2008 Neurology June 4, 2008
Late stages of Parkinson's Disease
Late Stages of Parkinson's Disease
by Matt NilsenUnknown Category
Parkinson's disease progresses into its late stages after an average of seven years. Advanced Parkinson's disease is not pleasant to think about because of the limitations associated with it. However, a strategy for the later stages of Parkinson's disease can help you have less "off" time and less discomfort. We hope this article helps you shift some of the discomfort time to satisfactory "on" time. We also want your caretakers to be able to handle their responsibilities, as well as get enough rest and relaxation.
When Am I in the Advanced Stage of Parkinson's Disease?Late stage or advanced Parkinson's disease includes these noticeable signs:
Complete reliance on others for food, bathing, dressing, and other basic activities.
Difficulty speaking or communicating
Severely compromised hand-eye coordination
Severe memory loss
Only being able to swallow soft food
Falling daily
Freezing frequently
Walking only with assistance
Experiencing unexplained pain
Strategies for late-stage Parkinson's diseaseYou will rely on your neurologist more than ever during this stage of Parkinson's disease. The expertise of a movement disorders specialist will be valuable for matching your needs with the treatments most likely to reduce your symptoms. Medications wearing off, deep depression and frustration, freezing, tremors, disorientation, dementia, and dystonia are all problems that can crop up in this stage. To address these issues your physician will likely adjust your medications. This is a time when you must be willing to test different medications at different doses and in different combinations.
COMT inhibitors are often effective in late-stage Parkinson's disease, and the new dopamine agonist patch, Neupro, has also shown some encouraging results in recent clinical trials. Apokyn (injectable apomorphine) can be effective at arresting severe Parkinson's symptoms, especially if you find your medications suddenly wearing off in a public place like a grocery store or restaurant.
Managing LifeThis is a challenging time in life. You have to rely more on other people than you can on yourself. You may get discouraged that your family time, yard work, hobbies, work, travels, and other activities diminish. Your caretaker and your physician can help you come up with strategies that help you. We also encourage you to create a relationship with a social worker experienced with Parkinson's disease.
A social worker can help you bridge some of the emotional gaps and address many of the practical issues of living. Your social worker will be able to suggest apparatuses for your home to help you and your caretaker. They can coach your caretaker in the challenges of being responsible for a person with Parkinson's disease. You may be surprised to find that your social worker can address many of the financial challenges of living with Parkinson's disease, too.
From This Newsletter
by Matt NilsenUnknown Category
Parkinson's disease progresses into its late stages after an average of seven years. Advanced Parkinson's disease is not pleasant to think about because of the limitations associated with it. However, a strategy for the later stages of Parkinson's disease can help you have less "off" time and less discomfort. We hope this article helps you shift some of the discomfort time to satisfactory "on" time. We also want your caretakers to be able to handle their responsibilities, as well as get enough rest and relaxation.
When Am I in the Advanced Stage of Parkinson's Disease?Late stage or advanced Parkinson's disease includes these noticeable signs:
Complete reliance on others for food, bathing, dressing, and other basic activities.
Difficulty speaking or communicating
Severely compromised hand-eye coordination
Severe memory loss
Only being able to swallow soft food
Falling daily
Freezing frequently
Walking only with assistance
Experiencing unexplained pain
Strategies for late-stage Parkinson's diseaseYou will rely on your neurologist more than ever during this stage of Parkinson's disease. The expertise of a movement disorders specialist will be valuable for matching your needs with the treatments most likely to reduce your symptoms. Medications wearing off, deep depression and frustration, freezing, tremors, disorientation, dementia, and dystonia are all problems that can crop up in this stage. To address these issues your physician will likely adjust your medications. This is a time when you must be willing to test different medications at different doses and in different combinations.
COMT inhibitors are often effective in late-stage Parkinson's disease, and the new dopamine agonist patch, Neupro, has also shown some encouraging results in recent clinical trials. Apokyn (injectable apomorphine) can be effective at arresting severe Parkinson's symptoms, especially if you find your medications suddenly wearing off in a public place like a grocery store or restaurant.
Managing LifeThis is a challenging time in life. You have to rely more on other people than you can on yourself. You may get discouraged that your family time, yard work, hobbies, work, travels, and other activities diminish. Your caretaker and your physician can help you come up with strategies that help you. We also encourage you to create a relationship with a social worker experienced with Parkinson's disease.
A social worker can help you bridge some of the emotional gaps and address many of the practical issues of living. Your social worker will be able to suggest apparatuses for your home to help you and your caretaker. They can coach your caretaker in the challenges of being responsible for a person with Parkinson's disease. You may be surprised to find that your social worker can address many of the financial challenges of living with Parkinson's disease, too.
From This Newsletter
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