I understand there are so far few articles touch on subject on Breathing with PD patients.There are many types of breathing in which the rhythm, rate or characterise abnormal.. Breathing is the alternation of active inhalation of air into the lungs through the mouth or nose with the passive exhalation of the air. As PD patients have stiffness muscles and slowdown movement some PD have reduction in nasal airflow with Breathing. They have cyclical variation in the rate, which becomes slower until breathing stops for several seconds before speeding up to a peak and then slowing again.It occurs whether sensitivity of the respiratory centres in the brain is impaired .Therefore most PD die on pneum0nia disease
TEOKIMHOE
Sunday, August 10, 2008
Five things new patients should know?
There are five things new patients should know by Dr. Wagner:-
1. Parkinson’s disease is certainly treatable and most new patients respond very nicely to medication.
2.A person with Parkinson’s disesae has the same life expectancy as a normal person.
3.New patients usually go through a “honeymoon period” where treatment will control symptoms so well that you won’t even notice the effects of the disease. As the disease progresses, symptoms may be more noticeable.
4.Once you are diagnosed, start making accommodations for yourself, particularly at home. People with PD have a tendency to fall frequently so avoid situations where falls may occur.
5.Don’t be shy about asking your neurologist questions; don’t rely on the Internet for accuracy
TEOKIMHOE
Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Mon Aug 11, 2008 8:06 am Post subject:
Thanks for the wonderful comments._________________Michael S. Okun, M.D.
1. Parkinson’s disease is certainly treatable and most new patients respond very nicely to medication.
2.A person with Parkinson’s disesae has the same life expectancy as a normal person.
3.New patients usually go through a “honeymoon period” where treatment will control symptoms so well that you won’t even notice the effects of the disease. As the disease progresses, symptoms may be more noticeable.
4.Once you are diagnosed, start making accommodations for yourself, particularly at home. People with PD have a tendency to fall frequently so avoid situations where falls may occur.
5.Don’t be shy about asking your neurologist questions; don’t rely on the Internet for accuracy
TEOKIMHOE
Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Mon Aug 11, 2008 8:06 am Post subject:
Thanks for the wonderful comments._________________Michael S. Okun, M.D.
Anxiety
Posted: Fri Aug 08, 2008 8:03 am Post subject: Anxiety?
More people with parkinson's disease suffer from anxiety than depression.
I am with Requip 4 mg / 4 mg / 2 mg, Sinemet one / half / half and Selegiline 5 mg bd. My blood pressure is no longer low. In fact it has gone up to 150 / 80 in the late evening. In the evening, I also feel tired and tense. I know that my Parkinson's is well controlled, but I am often worried about the possibility of recurrence of TIA. I can fall asleep easily with Lorazepam 1.5 mg at night, but often wakes up early (4 am). After that, I can't fall asleep anymore. Kindly advise.
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Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Sat Aug 09, 2008 4:51 pm Post subject:
Hi, Difficulty maintaing sleep at night is very common in PD. The reasons for this are varied. Most often it is because of low levels of medication such that the patient feels uncomfortable therby waking up often. Sometimes, it is because of too much naping during the day, depression, anxiety, etc. Low blood pressure when sleeping is not usually a concern because you are lying flat which brings blood supply to the brain. So, the first thing I would suggest is to talk to your doctor to discuss the possibility of simply making your requip 4 mg three times per day. If this does not help, you can see if adding a sinemet CR at night might help. If not, then you need to look at other causes of sleep fragmentation. Perhaps even consider a sleep study (termed polysomnography). Or change your sleeping pill to another brand. Yours,_________________Hubert H. Fernandez
Back to top
More people with parkinson's disease suffer from anxiety than depression.
I am with Requip 4 mg / 4 mg / 2 mg, Sinemet one / half / half and Selegiline 5 mg bd. My blood pressure is no longer low. In fact it has gone up to 150 / 80 in the late evening. In the evening, I also feel tired and tense. I know that my Parkinson's is well controlled, but I am often worried about the possibility of recurrence of TIA. I can fall asleep easily with Lorazepam 1.5 mg at night, but often wakes up early (4 am). After that, I can't fall asleep anymore. Kindly advise.
Back to top
Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Sat Aug 09, 2008 4:51 pm Post subject:
Hi, Difficulty maintaing sleep at night is very common in PD. The reasons for this are varied. Most often it is because of low levels of medication such that the patient feels uncomfortable therby waking up often. Sometimes, it is because of too much naping during the day, depression, anxiety, etc. Low blood pressure when sleeping is not usually a concern because you are lying flat which brings blood supply to the brain. So, the first thing I would suggest is to talk to your doctor to discuss the possibility of simply making your requip 4 mg three times per day. If this does not help, you can see if adding a sinemet CR at night might help. If not, then you need to look at other causes of sleep fragmentation. Perhaps even consider a sleep study (termed polysomnography). Or change your sleeping pill to another brand. Yours,_________________Hubert H. Fernandez
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Friday, August 8, 2008
Tuesday, August 5, 2008
End of Dose Wearing off (EODWO)?
End-of-Dose Wearing Off (EODWO)
As PD is " not going disease' i.e. a slow progression and is different from other disease i.e a self -limited sickness or injury that temporarily impact their lives as inconvenience or comfort.
Patients with Parkinson's disease (PD) who are taking levodopa therapy – the most widely-used may experience the effects of their medication "wearing off" sooner than their health care providers realize.
Wearing off refer the worsening of a parkinson’s disease symptom as its use inability to control parkinson's symptoms over time. It lasts for shorter periods, causing symptoms to re-emerge before the next dose. This phenomenon is known as "wearing off." '
There are almost 50 percent of PD patients receiving levodopa therapy begin to notice that their medication lasts for shorter periods, causing symptoms to re-emerge before the next dose within two to three years.
"Wearing off" is associated with the re-emergence of motor symptoms (e.g. tremor and problems with balance), non-motor symptoms (e.g. anxiety, fatigue, mood changes, and restlessness), and autonomic nervous system dysfunction (e.g. sweating and hypersalivation).
"To date, the frequency of end-of-dose 'wearing off' in a general neurology practice is unknown, and no specific tools exist to aid clinical diagnoses of its signs and symptoms," said Dr. Hauser.
As parkinson’s disease is a movement disorder attention has focussed on problems with movement. However there are symptom are not related with movement they are classified as non-motor symptoms. Some non motor symptoms may interpret as part normal course of disease. However they are bothersome than motor symptoms. Non-motor symptoms can include changes in thoughts and feelings, sensations and sense of well-being and changes in autonomic nervous system functions
Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Sat Aug 09, 2008 4:43 pm Post subject:
thanks!_________________Hubert H. Fernandez
As PD is " not going disease' i.e. a slow progression and is different from other disease i.e a self -limited sickness or injury that temporarily impact their lives as inconvenience or comfort.
Patients with Parkinson's disease (PD) who are taking levodopa therapy – the most widely-used may experience the effects of their medication "wearing off" sooner than their health care providers realize.
Wearing off refer the worsening of a parkinson’s disease symptom as its use inability to control parkinson's symptoms over time. It lasts for shorter periods, causing symptoms to re-emerge before the next dose. This phenomenon is known as "wearing off." '
There are almost 50 percent of PD patients receiving levodopa therapy begin to notice that their medication lasts for shorter periods, causing symptoms to re-emerge before the next dose within two to three years.
"Wearing off" is associated with the re-emergence of motor symptoms (e.g. tremor and problems with balance), non-motor symptoms (e.g. anxiety, fatigue, mood changes, and restlessness), and autonomic nervous system dysfunction (e.g. sweating and hypersalivation).
"To date, the frequency of end-of-dose 'wearing off' in a general neurology practice is unknown, and no specific tools exist to aid clinical diagnoses of its signs and symptoms," said Dr. Hauser.
As parkinson’s disease is a movement disorder attention has focussed on problems with movement. However there are symptom are not related with movement they are classified as non-motor symptoms. Some non motor symptoms may interpret as part normal course of disease. However they are bothersome than motor symptoms. Non-motor symptoms can include changes in thoughts and feelings, sensations and sense of well-being and changes in autonomic nervous system functions
Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Sat Aug 09, 2008 4:43 pm Post subject:
thanks!_________________Hubert H. Fernandez
Monday, August 4, 2008
Is Parkinson's the end of the life?
Anonymous
Posted: Sun Aug 03, 2008 1:40 am Post subject: Is Parkinson's the end of the life?
As PD not a disease by itself but rather a syndrome therefore parkinson is not the end of life. It is not the illness and not a"going away" disease. It progresses with time. Therefore we need the knowledge of the disease, a power on how to counter the disease to slowdown from its progression. Medication and exercises are important to activate your mobility and align your movements. Discipline yourself on your physical activities help you to have a quality of life. Diets and supplements are helpful for body maintance too. TEOKIMHOE
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Mon Aug 04, 2008 6:17 am Post subject:
Thanks for the comment._________________Michael S. Okun, M.D.
Parkinson's is not the End
by Staff Condition Overview
It’s there if we want it, but we must reach for it. Fulfillment is not far and is entirely accessible. A diagnosis of Parkinson’s disease is not a sentence of something terrible, if we accept it as we accept without question the consequences of ageing! We must move ahead into that part of our future within our control by:
Identifying our unused talents and skills.
Applying them.
How do we identify our latent abilities? Easy! Make a list, a long list, of goals in which you have an interest (what would you really like to do or be?), and one or two will stand out as being the most appealing because you plan to work on them first. It can get exciting! Every one of us has hidden abilities we have not yet used, as I discovered. Until I was a year or so into Parkinson’s, I had not realized I was able to write well. Now I have authored quite a few books. I discovered yet another hidden talent in writing children’s books. My new full-time avocation is keeping me busy and constantly presents new goals.
Just as Satisfied With Life Now As I Was Before Parkinson's Hit!
I wish to add the very important fact that I quit driving years ago— before I did something bad. This keeps me at home most of the time. My lovely bride of 37 years works full time, but that’s OK. I have plenty to look forward to, every day, as I count my blessings. Life is good.
Posted: Sun Aug 03, 2008 1:40 am Post subject: Is Parkinson's the end of the life?
As PD not a disease by itself but rather a syndrome therefore parkinson is not the end of life. It is not the illness and not a"going away" disease. It progresses with time. Therefore we need the knowledge of the disease, a power on how to counter the disease to slowdown from its progression. Medication and exercises are important to activate your mobility and align your movements. Discipline yourself on your physical activities help you to have a quality of life. Diets and supplements are helpful for body maintance too. TEOKIMHOE
Back to top
Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Mon Aug 04, 2008 6:17 am Post subject:
Thanks for the comment._________________Michael S. Okun, M.D.
Parkinson's is not the End
by Staff Condition Overview
It’s there if we want it, but we must reach for it. Fulfillment is not far and is entirely accessible. A diagnosis of Parkinson’s disease is not a sentence of something terrible, if we accept it as we accept without question the consequences of ageing! We must move ahead into that part of our future within our control by:
Identifying our unused talents and skills.
Applying them.
How do we identify our latent abilities? Easy! Make a list, a long list, of goals in which you have an interest (what would you really like to do or be?), and one or two will stand out as being the most appealing because you plan to work on them first. It can get exciting! Every one of us has hidden abilities we have not yet used, as I discovered. Until I was a year or so into Parkinson’s, I had not realized I was able to write well. Now I have authored quite a few books. I discovered yet another hidden talent in writing children’s books. My new full-time avocation is keeping me busy and constantly presents new goals.
Just as Satisfied With Life Now As I Was Before Parkinson's Hit!
I wish to add the very important fact that I quit driving years ago— before I did something bad. This keeps me at home most of the time. My lovely bride of 37 years works full time, but that’s OK. I have plenty to look forward to, every day, as I count my blessings. Life is good.
An surge of interest of Parkinson's
Anonymous
Posted: Sun Aug 03, 2008 9:06 am Post subject: New interest in an old disease
Dear Doctor,
Parkinson is an old disease since eighteen century.
Suddenly there is an surge of interest and publicity as there are recently more young Parkinson's patients.
Exercises suddenly a hot topic to be discussed to slowdown the PD disease. TEOKIMHOE
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Mon Aug 04, 2008 6:15 am Post subject:
Thanks for the comment. PD has been around a long time... Shakespeare....why dost though quiver man?_________________Michael S. Okun, M.D.
Posted: Sun Aug 03, 2008 9:06 am Post subject: New interest in an old disease
Dear Doctor,
Parkinson is an old disease since eighteen century.
Suddenly there is an surge of interest and publicity as there are recently more young Parkinson's patients.
Exercises suddenly a hot topic to be discussed to slowdown the PD disease. TEOKIMHOE
Back to top
Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Mon Aug 04, 2008 6:15 am Post subject:
Thanks for the comment. PD has been around a long time... Shakespeare....why dost though quiver man?_________________Michael S. Okun, M.D.
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