PNF Forum:Leg Freezing

teokimhoe Joined: 03 Mar 2007 Posts: 150 Location: Malaysia	Posted: Sat Jul 25, 2009 8:02 am Post subject: Leg Freezing When you have leg freezing whilst walking instead going forward going backward to prevent a fall. Holding both leg and slap side of both knees to release the freezing Stay horizon the place where you are to release the freezing. The reason why you have leg freezing because you are under medication and it is wearing off. It is strange why the parkinson patient does not have leg freezing problem whilst on cycling? Is it we walking we concentrate our movement to balanc? Is it cycling we paddle up and down with one leg after the other? _________________ to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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Rogerstar1 Joined: 14 Mar 2007 Posts: 421	Posted: Sat Jul 25, 2009 10:36 am Post subject: It has been my experience that at least in the early years one's voluntary movements (typing, throwing a ball etc.) are affected most during 'off' periods. Autonomic movements like breathing, ducking to avoid or blocking a ball thrown at your face by instinct, moving a leg forward or back to maintain equilibrium and 'break' or prevent a fall are involuntary and hindered only after lengthy disease progression. Thus. willing myself to step off a curb or into a closed hallway or room is sometimes a problem if 'off'. Catching a fall by moving a leg to balance is still mostly an automatic reaction that I simply ...do. But, alas...that ability is slipping away, too. Best to you Tee-Man. Rogerstar
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bernard shaw Joined: 19 Aug 2008 Posts: 323 Location: Austria Late UK	Posted: Sun Jul 26, 2009 12:42 pm Post subject: Bern Leg movements. I too have these stupid periods where one leg will suddenly stop right in the middle of a step. I have used a walking stick for the last twenty five years and I am sure that it is the stick that stops me falling flat on my face. My last fall nearly a year ago I not only broke the little finger of my right hand but had to undergo an hours operation to fix the break and put the finger lesion back into place and five stitches to close the wound. Painful to say the least. I wish you much luck with your medication, my Neurologist increased my sinemet retard 200/50 by one extra tablet since then the leg movements are better. Keep smiling best regards from Bern _________________ If your face wants to smile, Let it. If it doesn't, Make it.
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Patientslikeme:Compementary & Alernative therapy

http://www.patientslikeme.com/forum/show/50239

patientlikeme: denture do not last forever

http://www.patientslikeme.com/forum/show/50240

NPF Forum:dental do not last forever

http://forum.parkinson.org/forum/viewtopic.php?t=7854

NPF Discussion:dental and saliva

Anonymous
Posted: Fri Jul 31, 2009 8:39 am Post subject: denture and saliva

There are complaint by parkinson's patient how to deal with saliva and dentures. The saliva causes the dentures slippery and loose even there are denture paste if a gap develops between the denture and the gummy ridge Therefore the denture may need repeated relines. Shrinkage of the bone and gums can be minimized or prevented with a proven technique
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Fri Jul 31, 2009 11:13 am Post subject:

This can be a troublesome issue. If you dry the saliva too much with an anticholinergic drug or botox you can also get cavities. I would suggest you work with the doctor to find the right solution for you, but to brush your remaining teeth frequently if you dry the saliva._________________Michael S. Okun

I just read about the Dr. saying that the looseness is caused by bone shirinking.

Four years ago I paid a lot of money for new dentures that many trips back to the denturist never made comfortable. New dentures were finally made and in just a few months I had to go back to have something done to them as they were very loose. I was told that access saliva was the cause,and that parkinson saliva had something that prevented adhesives from working. A spray from the drug store was to be used and nothing was done to the dentures. I am back to square one. If your Dr. is right I should have them lined -----right?

Anonymous
Posted: Sun Aug 02, 2009 8:39 pm Post subject:

You will find comfortable without dentures as your saliva easy to swallow.
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Mon Aug 03, 2009 7:05 pm Post subject:

Thanks for the comment. Comfort I have found is patient specific!_________________Michael S. Okun, M.D.

People with dentures have excess saliva as dentures are foreignsubstances in the mouth and the mouth produces excess saliva as a reaction perhaps treating the dentures as food'

Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Fri Aug 07, 2009 3:35 pm Post subject:

Thanks for the comment. Also remember botox and anticholinergics can dry you up but may also lead to cavities!_________________Michael S. Okun, M.D.

NPF Discussion : Leg Freezing

Anonymous
Posted: Sat Jul 25, 2009 4:44 am Post subject: Leg Freezing

My brother has freezing on his leg when his medication is wearing off.

There are way to prevent him from falling down until the freezing going off.

1. stop from going foward going backward

2. stay horizon the place where you are to release the freezing

3.Holding both leg and slap side of both knee to release the freezin.

Is it strange why the parkinson patient does not have freezing problem whilst on cycling?

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Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Thu Jul 30, 2009 9:48 am Post subject:

Well, the brain is an interesting organ! It is fascinating. Sometimes, we need to "trick it" to get the results we want. PD patients to well when they are cued, or there is a pattern that they need to follow, or there is a line that they need to cross, or there is a rhythm or beat that they need to in tandem with. These are some audio or visual tricks used for freezing. Spinning and cycling works the same way. IF the freezing occurs during wearing off however, they might benefit from increasing PD meds. Yours,_________________Hubert H. Fernandez

complementary and alternative medication

Anonymous
Posted: Thu Jul 23, 2009 7:05 am Post subject: Complementary & Alternative Medicine

Due to sideeffect of the medication there are growing interest for parkinson's patients in alternative and complementary medicine or therapies who will live with disease for a longer peroid of time. The CAM offers helpful information related to non motor and motor symptoms i.e proper diet, exercise, constipation, fatigue, insomina, massage. They try to minimize their usage of medication they take to minimize the physical or mental sideeffects on them. Kindly brief their potential benefits and risks for the alterative therapies. Sometimes the best treatment plans involve a wide range of interventions with their usage of the medications.
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Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Thu Jul 30, 2009 8:54 am Post subject:

Sorry, I don't know much about CAM. Mainly based on my ignorance, I am always skeptical about alternative therapies. While they make wonders for individual patient reports, when studies are performed using a rigorous, blinded, placebo-controlled design, the results don't always hold up...the perfect example is intravenous glutathione. While we hear about miraculous recoveries of glutathione, when Dr. Hauser's group in Tampa performed a double-blind, placebo-controlled trial on this therapy, there was no sigiificant difference in the performance of patients who received glutathione versus placebo. So, until studies are performed and results are shown, I would always be skeptical, no matter how promising it sounds. Yours,_________________Hubert H. Fernandez