The reasons why I join the PLM Forum because I wanted to tell the world how I fight my Parkinson's disease and hopefully send a message to the readers that there are people suffering from Parkinson disease ("PD") who need public awareness of the existence of PD and the effects physically, emotionally and mentally. With this PLM Forum, I hope to help PD patients to understand the disease and let them know that they are not alone.PD sufferers have movement disorders which could be misdiagnosed or misunderstood as effects of ageing. This misdiagnosis or misunderstanding can be unfortunate for PD patients as PD is a progressive disease whereby early treatment would slowdown the progression of the disease.There are also patients who are reluctant to accept they have PD when they are diagnosed by doctors as they consider themselves suffering from the effect of ageingAs far as I am aware, 2% of the world's population above the age of 60 years are PD sufferers . There are also a small percentage of younger persons who also develop the disease.There are 3 out of 1000 people age 50 and above suffering from this disorder. This number is likely to increase as the population ages.Besides, PD does not have any social, ethnic, economic or geographic boundaries either.I hope that my blog would share my experience on how I cope with PD and to counter /slowdown the degenerative effects of the disease.There are effective medication for the symptoms and patients who seek earlier treatment can continue to lead independent and fruitful lives.Exercise is also essential to the PD sufferer because of the need to maintain good muscle tone, strength and posture.
PLM forum has no boundary between country to country and the limit of what is acceptable or thought to be possible. It is a world organization consisting medical teams, businessmen who are generously give in kind and enjoy giving knowledges,times helping PD sufferers to aware the illness and mean and end to help them.
PLM make the world differences
Sunday, May 9, 2010
What is PLM?
I am very impressed by the influence of PatientsLikeMe make the world difference.
There is no boundary beyond the limit of what is acceptable or thought to be impossible. It is tremendous.
Thanking you
There is no boundary beyond the limit of what is acceptable or thought to be impossible. It is tremendous.
Thanking you
Comments about PLM from www.viartis.net
The objective of PLM: providing a better, more effective way to capture valuable results and share them with patients, healthcare professionals, and industry organizations that are trying to treat the disease.
The goal is to enable people to share information that can improve the lives of patients diagnosed with life-changing diseases.
The purpose for patientslikeme.com are created for collecting and sharing real world, outcome-based patient data and are establishing data-sharing partnerships with doctors, pharmaceutical and medical device companies, research organizations, and non-profits.
It is an universal organization and work together beyond colours,culture, customs,languages for the benefit of well being.
Therefore PLM is worth to be trusted by us 'Give and Recieve' for knowlege,health,medication and treatment.
PLM is our family and bad for non members/organization to interfare by twisted our purpose.
Abraham Lincoln once said that you can please some of the people all of the time and all of the people some of the time, but you can't please all of the people all of the time
.
The goal is to enable people to share information that can improve the lives of patients diagnosed with life-changing diseases.
The purpose for patientslikeme.com are created for collecting and sharing real world, outcome-based patient data and are establishing data-sharing partnerships with doctors, pharmaceutical and medical device companies, research organizations, and non-profits.
It is an universal organization and work together beyond colours,culture, customs,languages for the benefit of well being.
Therefore PLM is worth to be trusted by us 'Give and Recieve' for knowlege,health,medication and treatment.
PLM is our family and bad for non members/organization to interfare by twisted our purpose.
Abraham Lincoln once said that you can please some of the people all of the time and all of the people some of the time, but you can't please all of the people all of the time
.
Friday, April 30, 2010
Thursday, April 29, 2010
Requip
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Discussion Corner
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Advanced search Board index ‹ Medical Questions ‹ Ask about NutritionChange font sizeFAQRegisterLoginQ: Requip
Kathrynne Holden, MS, RD, answers questions regarding dietary matters and Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the dietician cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.
Moderators: adiaz, Kathrynne Holden, MS
Post a reply Previous topic :: Next topic 9 posts • Page 1 of 1 Q: Requip
by Guest » Fri Sep 07, 2007 5:53 pm
I was diagnosed as parkinson disease patient in 2005.
I was prescribed by doctor with Sinemet 25/100 one each three times and Jumex 5 gm one each two times per day for the past of two years.
As my physical agility is not too much mproving and I changed to Dr, Chew Nee Kong, Consultantt Neurologist Pantai Cheras Medical Centre for treatment on the month of July 07 he optimises my medication to 4 gm Requip (ropinirole) each three times and one Sinemet 25/100 two times a day. I am surprised my agility is 90% improving as told by my two trainers. I am glad I am able to do stretching exercises and gmx classes ie. body combat, pump, yoga, spinning and box and kick exercises for three hours from Monday to Friday. I do massage on every saturday to lossen my body tiredness. I rest on bed for an hour after my exercises. I find my Physical mobility and agility is normal and PD is very mild from now as told by Dr. Chew.
I wish to take this forum to express my thanks to Dr. Chew Nee Kong my his excellent work and his contribution for the Pakinson's patients.
TEOKIMHOEGuest
Top
--------------------------------------------------------------------------------
by Kathrynne Holden, MS » Sat Sep 08, 2007 5:47 pm
Dear Teo,
Congratulations, both to you and to your excellent physician, Dr. Chew. He has chosen the best treatment regime for you, and you are working hard to maintain strength and agility to combat PD. You are a fine example for us all.Best regards,
Kathrynne Holden, MS
--
For a Parkinson Tip of the Day visit:
http://www.nutritionucanlivewith.com/Kathrynne Holden, MS
Posts: 204
Joined: Mon Jan 22, 2007 12:35 pm
Location: www.nutritionucanlivewith.com
WebsiteTop
--------------------------------------------------------------------------------
Requip
by Guest » Thu Sep 20, 2007 10:53 am
Dear Dr.Kathrynne Holden,
I have sideeffect on taking the 12 gm Requip per day besides Sinemet 25/100 as follows:
!. Bloating caused by overdose of Requip.
2. Sleepless at night as my whole body is warm.
I feel better now by taking away 4 gm Requip for evening replace with one dose of Sinemet as it is a woder drug for Parkinson's treatement. I sleep well at night and minimize bloating caused by overdose of Requip.
Kindly advise
Best regards
TEOKIMHOEGuest
Top
--------------------------------------------------------------------------------
Dopamine Agonist: Requip (Ropinirole)
by Guest » Fri Sep 21, 2007 4:34 am
Dear Dr. Kathrynne Holden,
I understand that medication of Fluimucil A 600 (Mucolytic) and Motilium 10mg have different purpose for treatment of Parkinson's
I refer the website Google :-
Mucus may narrow or block the airways, making it difficult to breath. Mucolytic drugs are designed to help loosen and clear the mucus from the airways by breaking up the sputum. The most common type of mucolytic is a medication called N-acetylcysteine. This medication is available in tablet or inhaled form. The inhaled form is given by a nebulizer. N-acetylcysteine is more commonly used by patients in European countries than in patients in the USA
Motiulium is for treatment of sideeffects of Dopamine Agonists i.e Requip as it causes the Parkinson's problem i.e Bloating, Nausea and etc.
Since Parkinson's have the problem of breathing the best medication is Fluimucil A 600 . Therefore, I am taking both together, one dose of Fluimucil and 3 doses of Motiulium daily.
Is it overdose?
Kindly advise
TEOKIMHOEGuest
Top
--------------------------------------------------------------------------------
Dopamine Agonist: Requip (Ropinirole)
by Guest » Fri Sep 21, 2007 5:04 am
Dear Dr. Kathrynne Holden,
As it is common for Parkinson's have problem with breathing that caused patient with drooling from the month therefore I am taking one dose Fluimucil A 600 (Mucolytic) to stops from drooling from the mouth daily. It is a wonder drug.
Besides that Parkinson's have the problms with Bloating, Nausea caused by sideeffect by taking medication of Requip therefore I also taking the three doses Motilium 10 mg daily.
Is it overdoses? Is it effective drug?
Kindly advise
TEOKIMHOEGuest
Top
--------------------------------------------------------------------------------
by Kathrynne Holden, MS » Fri Sep 21, 2007 9:23 am
Dear Teo,
Regarding replacing Requip with Sinemet, I cannot advise you -- I am a registered dietitian and prescribing or adjusting medications is outside my scope of practice. Here, I advise you speak with your excellent physician, Dr. Kong.Best regards,
Kathrynne Holden, MS
--
For a Parkinson Tip of the Day visit:
http://www.nutritionucanlivewith.com/Kathrynne Holden, MS
Posts: 204
Joined: Mon Jan 22, 2007 12:35 pm
Location: www.nutritionucanlivewith.com
WebsiteTop
--------------------------------------------------------------------------------
by Kathrynne Holden, MS » Fri Sep 21, 2007 9:25 am
Dear Teo,
Again, I must point out that as a dietitian, it is outside my scope of practice to recommend changes or adjustments in medication. Your physician is the proper health professional with whom to discuss this matter.Best regards,
Kathrynne Holden, MS
--
For a Parkinson Tip of the Day visit:
http://www.nutritionucanlivewith.com/Kathrynne Holden, MS
Posts: 204
Joined: Mon Jan 22, 2007 12:35 pm
Location: www.nutritionucanlivewith.com
WebsiteTop
--------------------------------------------------------------------------------
by Kathrynne Holden, MS » Fri Sep 21, 2007 9:28 am
Dear Teo,
Motilium is a good medication for those with PD, as it can help with slowed stomach emptying, and does not aggravate PD symptoms. I cannot advise you as to the correct dose for your particular needs, however -- this is the domain of your physician.Best regards,
Kathrynne Holden, MS
--
For a Parkinson Tip of the Day visit:
http://www.nutritionucanlivewith.com/Kathrynne Holden, MS
Posts: 204
Joined: Mon Jan 22, 2007 12:35 pm
Location: www.nutritionucanlivewith.com
WebsiteTop
--------------------------------------------------------------------------------
Requip
by Guest » Fri Sep 21, 2007 6:46 pm
Dear Dr.Kathrynne Holden,
In reply to your advise Dr.Chew Nee Kong agrees that it is fine to cutdown the Requip to 8mg in addition three doses of Sinemet 25/100 daily.
Thanks
TEOKIMHOE Guest
Top
.
Shopping Cart
.
Skip to content
.HomeParkinson’s DiseaseImproving CareCommunityHow to HelpAbout UsDonate Now
--------------------------------------------------------------------------------
Discussion Corner
National Parkinson Foundation Discussion Forums
Skip to content
Advanced search Board index ‹ Medical Questions ‹ Ask about NutritionChange font sizeFAQRegisterLoginQ: Requip
Kathrynne Holden, MS, RD, answers questions regarding dietary matters and Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the dietician cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.
Moderators: adiaz, Kathrynne Holden, MS
Post a reply Previous topic :: Next topic 9 posts • Page 1 of 1 Q: Requip
by Guest » Fri Sep 07, 2007 5:53 pm
I was diagnosed as parkinson disease patient in 2005.
I was prescribed by doctor with Sinemet 25/100 one each three times and Jumex 5 gm one each two times per day for the past of two years.
As my physical agility is not too much mproving and I changed to Dr, Chew Nee Kong, Consultantt Neurologist Pantai Cheras Medical Centre for treatment on the month of July 07 he optimises my medication to 4 gm Requip (ropinirole) each three times and one Sinemet 25/100 two times a day. I am surprised my agility is 90% improving as told by my two trainers. I am glad I am able to do stretching exercises and gmx classes ie. body combat, pump, yoga, spinning and box and kick exercises for three hours from Monday to Friday. I do massage on every saturday to lossen my body tiredness. I rest on bed for an hour after my exercises. I find my Physical mobility and agility is normal and PD is very mild from now as told by Dr. Chew.
I wish to take this forum to express my thanks to Dr. Chew Nee Kong my his excellent work and his contribution for the Pakinson's patients.
TEOKIMHOEGuest
Top
--------------------------------------------------------------------------------
by Kathrynne Holden, MS » Sat Sep 08, 2007 5:47 pm
Dear Teo,
Congratulations, both to you and to your excellent physician, Dr. Chew. He has chosen the best treatment regime for you, and you are working hard to maintain strength and agility to combat PD. You are a fine example for us all.Best regards,
Kathrynne Holden, MS
--
For a Parkinson Tip of the Day visit:
http://www.nutritionucanlivewith.com/Kathrynne Holden, MS
Posts: 204
Joined: Mon Jan 22, 2007 12:35 pm
Location: www.nutritionucanlivewith.com
WebsiteTop
--------------------------------------------------------------------------------
Requip
by Guest » Thu Sep 20, 2007 10:53 am
Dear Dr.Kathrynne Holden,
I have sideeffect on taking the 12 gm Requip per day besides Sinemet 25/100 as follows:
!. Bloating caused by overdose of Requip.
2. Sleepless at night as my whole body is warm.
I feel better now by taking away 4 gm Requip for evening replace with one dose of Sinemet as it is a woder drug for Parkinson's treatement. I sleep well at night and minimize bloating caused by overdose of Requip.
Kindly advise
Best regards
TEOKIMHOEGuest
Top
--------------------------------------------------------------------------------
Dopamine Agonist: Requip (Ropinirole)
by Guest » Fri Sep 21, 2007 4:34 am
Dear Dr. Kathrynne Holden,
I understand that medication of Fluimucil A 600 (Mucolytic) and Motilium 10mg have different purpose for treatment of Parkinson's
I refer the website Google :-
Mucus may narrow or block the airways, making it difficult to breath. Mucolytic drugs are designed to help loosen and clear the mucus from the airways by breaking up the sputum. The most common type of mucolytic is a medication called N-acetylcysteine. This medication is available in tablet or inhaled form. The inhaled form is given by a nebulizer. N-acetylcysteine is more commonly used by patients in European countries than in patients in the USA
Motiulium is for treatment of sideeffects of Dopamine Agonists i.e Requip as it causes the Parkinson's problem i.e Bloating, Nausea and etc.
Since Parkinson's have the problem of breathing the best medication is Fluimucil A 600 . Therefore, I am taking both together, one dose of Fluimucil and 3 doses of Motiulium daily.
Is it overdose?
Kindly advise
TEOKIMHOEGuest
Top
--------------------------------------------------------------------------------
Dopamine Agonist: Requip (Ropinirole)
by Guest » Fri Sep 21, 2007 5:04 am
Dear Dr. Kathrynne Holden,
As it is common for Parkinson's have problem with breathing that caused patient with drooling from the month therefore I am taking one dose Fluimucil A 600 (Mucolytic) to stops from drooling from the mouth daily. It is a wonder drug.
Besides that Parkinson's have the problms with Bloating, Nausea caused by sideeffect by taking medication of Requip therefore I also taking the three doses Motilium 10 mg daily.
Is it overdoses? Is it effective drug?
Kindly advise
TEOKIMHOEGuest
Top
--------------------------------------------------------------------------------
by Kathrynne Holden, MS » Fri Sep 21, 2007 9:23 am
Dear Teo,
Regarding replacing Requip with Sinemet, I cannot advise you -- I am a registered dietitian and prescribing or adjusting medications is outside my scope of practice. Here, I advise you speak with your excellent physician, Dr. Kong.Best regards,
Kathrynne Holden, MS
--
For a Parkinson Tip of the Day visit:
http://www.nutritionucanlivewith.com/Kathrynne Holden, MS
Posts: 204
Joined: Mon Jan 22, 2007 12:35 pm
Location: www.nutritionucanlivewith.com
WebsiteTop
--------------------------------------------------------------------------------
by Kathrynne Holden, MS » Fri Sep 21, 2007 9:25 am
Dear Teo,
Again, I must point out that as a dietitian, it is outside my scope of practice to recommend changes or adjustments in medication. Your physician is the proper health professional with whom to discuss this matter.Best regards,
Kathrynne Holden, MS
--
For a Parkinson Tip of the Day visit:
http://www.nutritionucanlivewith.com/Kathrynne Holden, MS
Posts: 204
Joined: Mon Jan 22, 2007 12:35 pm
Location: www.nutritionucanlivewith.com
WebsiteTop
--------------------------------------------------------------------------------
by Kathrynne Holden, MS » Fri Sep 21, 2007 9:28 am
Dear Teo,
Motilium is a good medication for those with PD, as it can help with slowed stomach emptying, and does not aggravate PD symptoms. I cannot advise you as to the correct dose for your particular needs, however -- this is the domain of your physician.Best regards,
Kathrynne Holden, MS
--
For a Parkinson Tip of the Day visit:
http://www.nutritionucanlivewith.com/Kathrynne Holden, MS
Posts: 204
Joined: Mon Jan 22, 2007 12:35 pm
Location: www.nutritionucanlivewith.com
WebsiteTop
--------------------------------------------------------------------------------
Requip
by Guest » Fri Sep 21, 2007 6:46 pm
Dear Dr.Kathrynne Holden,
In reply to your advise Dr.Chew Nee Kong agrees that it is fine to cutdown the Requip to 8mg in addition three doses of Sinemet 25/100 daily.
Thanks
TEOKIMHOE Guest
Top
.
Friday, April 23, 2010
Throat and hot soup
Throat and hot soup
by Guest » Wed Feb 24, 2010 8:16 am
Kindly explain why parkinson's irritated with hot soup?
It takes times to take the hot soup and find uncomfortable in the throat.Guest
Top
--------------------------------------------------------------------------------
Difficulty Swallowing Specific Foods
by Dr. Mahler » Tue Mar 02, 2010 9:04 am
It sounds like you are describing a swallowing problem that occurs wwith a specific food type - in this case hot soup. Each individual with PD has unique swallowing difficulties so it is not possible for me to know exactly why hot soup irritates your throat but I can discuss possible causes.
The first obvious cause is that your soup is too hot and you need to give it time to cool down. Other reasons would relate to the consistency of the soup and the ingredients in the soup. Sometimes foods of mixed consistency can be more challenging to swallow safely. A thin broth with with chunky vegetables, for example, could be difficut for some people. Also, if the soup has spicy ingredients that could be irritating your throat.
Many people with PD have reflux. It is possible to have reflux and not be aware of the symptoms because they can be subtle. For example, frequent throat clearing can be a symptom of reflux as can decreased voice quality especially in the morning after lying down to sleep. It may be that you have reflux and the soup acts as an irritant.
To learn more about whether you have reflux, you should consult with your physician. An ear, nose and throat doctor can look at your vocal folds and determine whether there are signs of reflux. The treatment of reflux is typically a combination of medication and behavioral modifications.
I hope this information gives you some ideas about what might be going on with you individually. A speech-language pathologist is trained to evaluate swallowing. Your physician can give you a referral if you think this would be appropriate for you.
Thank you for writing.
Leslie Mahler, PhD, CCC-SLP
by Guest » Wed Feb 24, 2010 8:16 am
Kindly explain why parkinson's irritated with hot soup?
It takes times to take the hot soup and find uncomfortable in the throat.Guest
Top
--------------------------------------------------------------------------------
Difficulty Swallowing Specific Foods
by Dr. Mahler » Tue Mar 02, 2010 9:04 am
It sounds like you are describing a swallowing problem that occurs wwith a specific food type - in this case hot soup. Each individual with PD has unique swallowing difficulties so it is not possible for me to know exactly why hot soup irritates your throat but I can discuss possible causes.
The first obvious cause is that your soup is too hot and you need to give it time to cool down. Other reasons would relate to the consistency of the soup and the ingredients in the soup. Sometimes foods of mixed consistency can be more challenging to swallow safely. A thin broth with with chunky vegetables, for example, could be difficut for some people. Also, if the soup has spicy ingredients that could be irritating your throat.
Many people with PD have reflux. It is possible to have reflux and not be aware of the symptoms because they can be subtle. For example, frequent throat clearing can be a symptom of reflux as can decreased voice quality especially in the morning after lying down to sleep. It may be that you have reflux and the soup acts as an irritant.
To learn more about whether you have reflux, you should consult with your physician. An ear, nose and throat doctor can look at your vocal folds and determine whether there are signs of reflux. The treatment of reflux is typically a combination of medication and behavioral modifications.
I hope this information gives you some ideas about what might be going on with you individually. A speech-language pathologist is trained to evaluate swallowing. Your physician can give you a referral if you think this would be appropriate for you.
Thank you for writing.
Leslie Mahler, PhD, CCC-SLP
Tuesday, April 20, 2010
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