Posted on May 10th, 2010 by heroteo
must be blessed with my wife. Her care and concern for me has always been there and is even more so since I have the PD.
I do exercises in the gym centre daily in between 2 to three hours and surf internet PLM in the late afternoon. I have to strengthen my body and with knowledge to fight the disease.
With her it’s always the opposite..”you’re doing too much”. She’s normaly correct and it catches up with me at the end of the day. My neuro tells her to let me do what I can and so I do, but sometimes too much. As worrier mentioned, ‘PD is a thief’ and I’m going to do as much as I can to ’use it’ before it’s gone
Monday, May 10, 2010
Sunday, May 9, 2010
How open are you about sharing the fact you have PD
They are not interested unless they are PD sufferers.
Therefore I am selective to share with them.
I hate to be told that I am not a doctor and how I know so much?
Therefore I am selective to share with them.
I hate to be told that I am not a doctor and how I know so much?
Some tips on living with PD (long version)
10 Questions to Ask Your Doctor About Parkinson’s
1. Can you determine the reason I developed Parkinson's disease?
2. What are my treatment options?
3. What are the pros and cons of each treatment?
4. What short-term and long-term side effects can I anticipate from the treatment? Is there anything I can do to minimize them?
5. Can you recommend any support groups for my family and me?
6. Are there any nondrug options that might help? What lifestyle modifications can I make to help me feel better?
7. Are there any foods, supplements, or over-the-counter medications I should avoid?
8. Where can I find more information about the illness?
9. Can you recommend any relaxation and stress-relief techniques?
10. Are there any clinical trials I can participate in?
WebMD Medical Reference
1. Can you determine the reason I developed Parkinson's disease?
2. What are my treatment options?
3. What are the pros and cons of each treatment?
4. What short-term and long-term side effects can I anticipate from the treatment? Is there anything I can do to minimize them?
5. Can you recommend any support groups for my family and me?
6. Are there any nondrug options that might help? What lifestyle modifications can I make to help me feel better?
7. Are there any foods, supplements, or over-the-counter medications I should avoid?
8. Where can I find more information about the illness?
9. Can you recommend any relaxation and stress-relief techniques?
10. Are there any clinical trials I can participate in?
WebMD Medical Reference
It is difficulty to interpret what and how the symptoms of early onset-slower progression?
It is difficulty to interpret what and how the symptoms of early onset-slower progression?
As PD is a bouquet disease and is individual that have motor and non motor symptoms.
They do not come at the same time or together it is individual and the timing is different too.
As for me my PD is genetic/inherited as I have two brothers are PD. They are at the rate of three and four of PD and are at fast progression. They are at the age of 56 and 76 years old.
I have the symptoms of PD when I was at younger age.
I was diagnosed at the age of 65 years old as PD
Due to my determination and perservation and knowledge of the disease and medication I learn to fight the disease to slowdown from its progression. I am lucky by Lord grace I manage to slowdown my motor symptoms by strenous exercises however I still have non motor symptoms I pray the Lord for wisdom to be able to overcome early. Kindly visit website (Heroteo- the chronicles of a parkinson's fighter )
As PD is a bouquet disease and is individual that have motor and non motor symptoms.
They do not come at the same time or together it is individual and the timing is different too.
As for me my PD is genetic/inherited as I have two brothers are PD. They are at the rate of three and four of PD and are at fast progression. They are at the age of 56 and 76 years old.
I have the symptoms of PD when I was at younger age.
I was diagnosed at the age of 65 years old as PD
Due to my determination and perservation and knowledge of the disease and medication I learn to fight the disease to slowdown from its progression. I am lucky by Lord grace I manage to slowdown my motor symptoms by strenous exercises however I still have non motor symptoms I pray the Lord for wisdom to be able to overcome early. Kindly visit website (Heroteo- the chronicles of a parkinson's fighter )
negative thought to deminish my ability to fight the disease
have experience sideeffect on PD medication interaction with my other medication caused me dizzness, blood pressure,facial masked, sleepless, vivid dream, constipation and slurred speech.
As the result I stopped my vitamin supplements Vit 6, Prostate Xatral, Controlot. I am now normal.
It is affecting my negative thought to deminish my ability to fight the disease.
1 person marked this post as helpful.
As the result I stopped my vitamin supplements Vit 6, Prostate Xatral, Controlot. I am now normal.
It is affecting my negative thought to deminish my ability to fight the disease.
1 person marked this post as helpful.
Wondering too, about how life is for our companions
Life with our partner changes with times.
We have gone good or bad, sweet or sour in our relationship. Shoulder rain and shine together.
I have five years with Parkinson's disease. I am very fortunate by Lord grace that I have retired from business I could spend times doing my research on PD on how to fight the diseases. Praise Lord I manage to slowdown its progression and am glad I am looking normal. Surf PLM forum Secret recipe behind the mask.
My partner is pleased to see my progress and we share our knowledge together on PD. We work together as we have understanding on PD how it affecting our lifestyle- Life changing but not life threatening.
Life is wonderful and full of care. It makes the world go round. There is no time to stand and fear. Be positive or life threaten.
Let us work together to fight the disease. Thank PLM provide us a forum to air our news on how to slowdown tthe PD and the latest medical research on the disease.
Praise Lord
We have gone good or bad, sweet or sour in our relationship. Shoulder rain and shine together.
I have five years with Parkinson's disease. I am very fortunate by Lord grace that I have retired from business I could spend times doing my research on PD on how to fight the diseases. Praise Lord I manage to slowdown its progression and am glad I am looking normal. Surf PLM forum Secret recipe behind the mask.
My partner is pleased to see my progress and we share our knowledge together on PD. We work together as we have understanding on PD how it affecting our lifestyle- Life changing but not life threatening.
Life is wonderful and full of care. It makes the world go round. There is no time to stand and fear. Be positive or life threaten.
Let us work together to fight the disease. Thank PLM provide us a forum to air our news on how to slowdown tthe PD and the latest medical research on the disease.
Praise Lord
Tips for staying up to date on PatientsLikeMe!
It is not enough. PLM should help to be displayed : entry and reporting of medical prescription,its sideeffects, and interactions with parkinson's and other illness.
As some patients have other illness and have interactions/sideeffects with Parkinson's. Some doctors do not have knowledges as they specialise only their own field. Therefore knowledge is power. PLM is a forum for us to share the experiences,understanding the symptoms,treatments,issues,problems: entry and reporting sideeffects, interactions with medications on illness. Evaluate the effectiveness of different drugs and how well the medication is working as well as other illness.
PLM is a record of history of patients how the illness come to them. It is the performance appraisal how well the illness working.
As some patients have other illness and have interactions/sideeffects with Parkinson's. Some doctors do not have knowledges as they specialise only their own field. Therefore knowledge is power. PLM is a forum for us to share the experiences,understanding the symptoms,treatments,issues,problems: entry and reporting sideeffects, interactions with medications on illness. Evaluate the effectiveness of different drugs and how well the medication is working as well as other illness.
PLM is a record of history of patients how the illness come to them. It is the performance appraisal how well the illness working.
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