Basic Diet
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Anonymous
Posted: Mon Apr 16, 2007 12:35 am Post subject: Basic Diet
Dear Ms Holden: Is there a basic diet for Parkinson Patients? Are there specific foods that should and should not be eaten? Thank you. Sincerly Ed Tierney [/i][/b]
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Kathrynne Holden, MS, RDJoined: 22 Jan 2007Posts: 94Location: www.nutritionucanlivewith.com
Posted: Mon Apr 16, 2007 8:26 am Post subject:
Dear Ed, The best possible diet for a person with PD is individualized for that person's specific needs. This can be affected by many factors. For example, a newly-diagnosed 38-year-old male using Requip would likely have very different needs than a 78-year-old female in late-stage PD using Sinemet. If you care to provide more data, I might be able to give a fuller response: - age - gender - when diagnosed with PD - the names of all medications used (both PD, and other medications, including over-the-counter medications, vitamins, herbal or other supplements) - any other diagnosed conditions (such as elevated blood pressure, food allergies, diabetes, high cholesterol, etc.) - any particular complaints or concerns such as nausea, edema, weight changes, constipation, sadness, etc._________________Best regards, Kathrynne Holden, MS, RD -- For a Parkinson Tip of the Day visit: http://www.nutritionucanlivewith.com/
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Anonymous
Posted: Fri Apr 20, 2007 11:34 pm Post subject:
Dear Kathrynne: Following is the data requested. Age: 74 Gender: Male Diagnosed with PD: Oct'05 Meds: Mirapex 0.5mg 3x a day, Atenolol 25mg 1per day,Pravastatin 40mg 1 per day, Aspirin 81mg 1 per day,Folic acid 400mcg 1 per day, Vitamin D 400I.U. 1 per day, Glucosamine-Condroiten 2 per day. Diagnosed Conditions: PD, Angina, Ischemia, Arthritis,Elevated blood pressure, controlled by med, Elevated cholesteral, controlled by med. Complaints & Concerns:nausea,edema,weight gain, difficulty sleeping,weak,no pep. Sincerely Ed Tierney
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Kathrynne Holden, MS, RDJoined: 22 Jan 2007Posts: 94Location: www.nutritionucanlivewith.com
Posted: Sun Apr 22, 2007 5:43 pm Post subject:
Dear Ed, Thanks, this is very helpful. I suspect that most, if not all, of your concerns are side effects of your medications. Here is a list of possibilities. Medication, possible side effects Mirapex: edema, weight gain, nausea, fatigue Atenolol: nausea, drowsiness, fatigue – may require a low-sodium diet Pravastatin: nausea, weakness, insomnia; may deplete natural supply of Coenzyme Q10 My comments: 1) It might be a good idea to discuss with your neurologist whether Sinemet might be a better choice than Mirapex. Often, the agonists are a very good choice for younger people, but by the 70's the side effects may become more likely. Many people of all ages experience edema, followed by elevated blood pressure, with use of Mirapex. Nausea, fatigue, and weakness (“no pep”) are also very common. 2) If your cardiologist has not discussed it already, I would ask about supplements of CoQ10, as the statin drugs can deplete our natural supply. This depletion, in some people, may contribute to fatigue and weakness. 3) With the elevated blood pressure, I strongly recommend you consider the DASH diet. It was designed to act as a natural diuretic, helping to flush fluids from the tissues. Coincidentally, it is rich in the nutrients of greatest value to those with PD – calcium, magnesium, potassium, and fibers – thus serving both purposes. I would ask your doctor for a referral to a dietitian who can help you determine your calorie needs and portion sizes within the DASH diet. If you will search the Dietitian archives, you will find my posting on DASH, with websites that offer more information, including menus and recipes. Use of the DASH diet, adding CoQ10, and if your neurologist agrees, switching to Sinemet, might help lower your blood pressure and reduce your need for blood pressure medications, thus reducing some of the side effects that are causing your concerns. If you have more questions, don’t hesitate to write again, I will help if I can._________________Best regards, Kathrynne Holden, MS, RD
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Monday, April 23, 2007
Online gambling a problem for people with PD?
Kathrynne H Posted: Fri Apr 20, 2007 10:07 am Post subject: News: Online gambling a problem for people with PD
Dear Friends, the following may be of interest. Best, Kathrynne ======================================================== Internet gambling a risk f
Online gambling presents a special peril for people with Parkinson's (AAP) Online gambling presents a special peril for people with Parkinson's, a disease that boosts compulsive risk-taking, doctors warn in this week's British Medical Journal (BMJ).
Internet casinos, poker and other online games can result in secret debts that can destroy a family, they say. Parkinson's, a disease of the nerve system, is commonly known for problems with motor function, causing trembling, shaking and jerkiness.
But, the BMJ editorial points out, Parkinson's patients also have problems with pathological gambling and other addictive behaviours.
The phenomenon is worsened by dopamine agonists — the drugs that many take to ease their symptoms. advertisement
A study published last year in the journal Neurology found that the prevalence of addicted gambling among Parkinson's patients was 3.4 percent, which more than doubled to 7.2 percent among those who take dopamine agonists.
People who develop Parkinson's at a younger age are at even higher risk.
By comparison, in the general British population, compulsive gambling afflicts around one percent of people.
"We have noted that our patients are often secretive about their gambling and may end up thousands of pounds (dollars, euros) in debt before the problem is realised," say authors Sui Wong and Malcolm Steiger, who are neurologists at the Walter Centre in Liverpool, northwestern England. "Many internet gambling companies actively lure gamblers with pop-ups to place free bets.
This marketing technique is pervasive and can make it hard for vulnerable people to wean themselves off gambling."
They say doctors can help to identify the problem at an early stage by asking patients and carers about any change in behaviour or development of new compulsion.
For patients that become hooked on online gambling, doctors may consider such strategies as reducing or stopping dopamine agonists, while families can install firewalls to block Internet pop-ups and gambling sites or control the patient's finances if need be, they add.
Dear Friends, the following may be of interest. Best, Kathrynne ======================================================== Internet gambling a risk f
Online gambling presents a special peril for people with Parkinson's (AAP) Online gambling presents a special peril for people with Parkinson's, a disease that boosts compulsive risk-taking, doctors warn in this week's British Medical Journal (BMJ).
Internet casinos, poker and other online games can result in secret debts that can destroy a family, they say. Parkinson's, a disease of the nerve system, is commonly known for problems with motor function, causing trembling, shaking and jerkiness.
But, the BMJ editorial points out, Parkinson's patients also have problems with pathological gambling and other addictive behaviours.
The phenomenon is worsened by dopamine agonists — the drugs that many take to ease their symptoms. advertisement
A study published last year in the journal Neurology found that the prevalence of addicted gambling among Parkinson's patients was 3.4 percent, which more than doubled to 7.2 percent among those who take dopamine agonists.
People who develop Parkinson's at a younger age are at even higher risk.
By comparison, in the general British population, compulsive gambling afflicts around one percent of people.
"We have noted that our patients are often secretive about their gambling and may end up thousands of pounds (dollars, euros) in debt before the problem is realised," say authors Sui Wong and Malcolm Steiger, who are neurologists at the Walter Centre in Liverpool, northwestern England. "Many internet gambling companies actively lure gamblers with pop-ups to place free bets.
This marketing technique is pervasive and can make it hard for vulnerable people to wean themselves off gambling."
They say doctors can help to identify the problem at an early stage by asking patients and carers about any change in behaviour or development of new compulsion.
For patients that become hooked on online gambling, doctors may consider such strategies as reducing or stopping dopamine agonists, while families can install firewalls to block Internet pop-ups and gambling sites or control the patient's finances if need be, they add.
Are there different type's of PD?
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Are there different type's of PD ?
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Anonymous
Posted: Sat Apr 21, 2007 7:22 am Post subject: Are there different type's of PD ?
Are there different type's of PD ? Are some worse then others ? Thank you !
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Sat Apr 21, 2007 1:26 pm Post subject:
Yes, we believe PD has many subtypes and some may even be genetic. We have identified many genes such as Parkin, LRRK2, DJ1, and PINK1. We also have noticed that PD with resting tremor may have a different prognosis (better) than PD without it. Finally there are several parkinsonian syndromes which seem to respond less well to PD medication (PSP, MSA, CBD, etc.)_________________Michael S. Okun, M.D.
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Anonymous
Posted: Sat Apr 21, 2007 2:14 pm Post subject: resting tremor
Waht does resting tremor mean ? Thank you .
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Sat Apr 21, 2007 4:04 pm Post subject:
A resting tremor is a tremor well, basically at rest (when not performing action). It is the most common tremor associated with PD. There are other types of tremors when one holds a posture or performs an action._________________Michael S. Okun, M.D.
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Are there different type's of PD ?
Discussion Corner Forum Index -> Ask The Doctor
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Anonymous
Posted: Sat Apr 21, 2007 7:22 am Post subject: Are there different type's of PD ?
Are there different type's of PD ? Are some worse then others ? Thank you !
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Sat Apr 21, 2007 1:26 pm Post subject:
Yes, we believe PD has many subtypes and some may even be genetic. We have identified many genes such as Parkin, LRRK2, DJ1, and PINK1. We also have noticed that PD with resting tremor may have a different prognosis (better) than PD without it. Finally there are several parkinsonian syndromes which seem to respond less well to PD medication (PSP, MSA, CBD, etc.)_________________Michael S. Okun, M.D.
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Anonymous
Posted: Sat Apr 21, 2007 2:14 pm Post subject: resting tremor
Waht does resting tremor mean ? Thank you .
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Sat Apr 21, 2007 4:04 pm Post subject:
A resting tremor is a tremor well, basically at rest (when not performing action). It is the most common tremor associated with PD. There are other types of tremors when one holds a posture or performs an action._________________Michael S. Okun, M.D.
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Sunday, April 22, 2007
Delimma of PD patients in Singapore?
Posted: Fri Apr 06, 2007 5:32 am Post subject: Dilemma of PD patients in Singapore?
In Singapore Parkinson Disease are the common problems as our growth of age population .
There are out of 2 to 3% population at above 50 years old suffer disorder disease.
As the age population grow the percentage of this group will be increasing.
It is not including at the age below 50 years old PD patients.
Therefore better public awareness will help the patients to seek for treatment as there are effective medication to slowdown from its progression.
It highlights the cause of the disease, signs and symptoms and therapy, aid to caregiver, and support groups to give advice on how to achieve the best quality of life i.e. to stay health.
Teo Kim Hoe
In Singapore Parkinson Disease are the common problems as our growth of age population .
There are out of 2 to 3% population at above 50 years old suffer disorder disease.
As the age population grow the percentage of this group will be increasing.
It is not including at the age below 50 years old PD patients.
Therefore better public awareness will help the patients to seek for treatment as there are effective medication to slowdown from its progression.
It highlights the cause of the disease, signs and symptoms and therapy, aid to caregiver, and support groups to give advice on how to achieve the best quality of life i.e. to stay health.
Teo Kim Hoe
Are all the tremors as PD symptom?
Wed Apr 11, 2007 5:12 am Post subject: Are all the tremors as PD symptom?
Dear Doctor,
Are all the tremors are indicative of PD?
How to screening that they are PD?
How to classify those sickness have symptoms similar to those of PD?
what is Wilson's disease, is it treatable disorder?
What is Atypical Parkinson and Parkinso-plus?
Is it the treatment of PD delicate and complicate that the doctor find difficulty to diagnose and late treatment that aggravates the PD progression as the result they die on other diseases made worsen by PD itself?
What are Essential Tremor a common disorders of elderly people ?
Are they classifed as PD?
What's about at the young age?
Are they inherited ?
What is the percentage of this group? Kindly eleborate.
Thanks Teo Kim Hoe
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Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Thu Apr 12, 2007 8:53 pm Post subject:
You ask questions are loaded, Teo.
I'm afraid if I answer all your questions that the rest of the readers will fall asleep!
In brief, not all that shakes is from Parkinson's.
There are other shaking conditions that are not from parkinsonism--such as Essential tremor and Wilson's disease.
Parkinsonism is a general condition where someone either shakes, is stiff, or is slow.
At least 2 of these need to be satisfied. Not all three symptoms are necessary.
The most common cause of parkinsonism is PD. But parkinsonism can also be from strokes, tumors, infections, medications etc.
In addition, PD has "brothers" that look like it, but are actually different disorders.
They are more commonly referred to as atypcial parkinsonism or parkinson-plus disorders.
Sometimes, it is easy to diagnose the type of parkinsonism or the cause of tremor. Sometimes, it is more challenging and one needs the help of a Movement Disorders specialist. Yours,_________________Hubert H. Fernandez
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'
Dear Doctor,
Are all the tremors are indicative of PD?
How to screening that they are PD?
How to classify those sickness have symptoms similar to those of PD?
what is Wilson's disease, is it treatable disorder?
What is Atypical Parkinson and Parkinso-plus?
Is it the treatment of PD delicate and complicate that the doctor find difficulty to diagnose and late treatment that aggravates the PD progression as the result they die on other diseases made worsen by PD itself?
What are Essential Tremor a common disorders of elderly people ?
Are they classifed as PD?
What's about at the young age?
Are they inherited ?
What is the percentage of this group? Kindly eleborate.
Thanks Teo Kim Hoe
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'
Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Thu Apr 12, 2007 8:53 pm Post subject:
You ask questions are loaded, Teo.
I'm afraid if I answer all your questions that the rest of the readers will fall asleep!
In brief, not all that shakes is from Parkinson's.
There are other shaking conditions that are not from parkinsonism--such as Essential tremor and Wilson's disease.
Parkinsonism is a general condition where someone either shakes, is stiff, or is slow.
At least 2 of these need to be satisfied. Not all three symptoms are necessary.
The most common cause of parkinsonism is PD. But parkinsonism can also be from strokes, tumors, infections, medications etc.
In addition, PD has "brothers" that look like it, but are actually different disorders.
They are more commonly referred to as atypcial parkinsonism or parkinson-plus disorders.
Sometimes, it is easy to diagnose the type of parkinsonism or the cause of tremor. Sometimes, it is more challenging and one needs the help of a Movement Disorders specialist. Yours,_________________Hubert H. Fernandez
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'
Forum:How do you do if you are an early PD?
How do you do if you are an early PD patient? Open Forum
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teokimhoeJoined: 03 Mar 2007Posts: 9Location: Malaysia
Posted: Thu Apr 12, 2007 3:11 am Post subject: How do you do if you are an early PD patient?
Posted: Sun Apr 08, 2007 10:21 am Post subject: Q: What is the behaviours of an early PD Patient? --------------------------------------------------------------------------------
The behaviours of an early PD patient are as follows:
When do I tell others, and what do I say?
Whether to tell " is a question posed by many people in the early stage of PD disease.
1. Is it jeopardize my job? Don't let other people feel sorry for me and for my children?
2. Keep it yourself as secret and privacy and once it reveals you feel sorry as you cannot take it back.
3. I feel relieve as I tell out and I could get some support.
4. It is hard to keep it secret as PD is a' going on disease ' and the tension of hiding it.
5. It helps more people to aware the diseases and encourage more support group i.e fund raising for the fund and learn to manage the disease and feel you are not alone.
TEO KIM HOE
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ahimsajackJoined: 08 Apr 2007Posts: 43
Posted: Thu Apr 12, 2007 7:54 am Post subject:
Hello, I noticed you come from Malyasia, To answer your questions I would need to know the customs and culture of your society. Only you can judge whether to open up or not.
Here in America it is good to tell people of our PD, but not to overwhelm them or cry our troubles.
There is always a balance between what is appropriate to tell and what to keep to yourself, and this is depending on the culture.
Peace Jack_________________We are what we think. With our thoughts we create our world.
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Discussion Corner Forum Index -> Open Forum
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teokimhoeJoined: 03 Mar 2007Posts: 9Location: Malaysia
Posted: Thu Apr 12, 2007 3:11 am Post subject: How do you do if you are an early PD patient?
Posted: Sun Apr 08, 2007 10:21 am Post subject: Q: What is the behaviours of an early PD Patient? --------------------------------------------------------------------------------
The behaviours of an early PD patient are as follows:
When do I tell others, and what do I say?
Whether to tell " is a question posed by many people in the early stage of PD disease.
1. Is it jeopardize my job? Don't let other people feel sorry for me and for my children?
2. Keep it yourself as secret and privacy and once it reveals you feel sorry as you cannot take it back.
3. I feel relieve as I tell out and I could get some support.
4. It is hard to keep it secret as PD is a' going on disease ' and the tension of hiding it.
5. It helps more people to aware the diseases and encourage more support group i.e fund raising for the fund and learn to manage the disease and feel you are not alone.
TEO KIM HOE
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ahimsajackJoined: 08 Apr 2007Posts: 43
Posted: Thu Apr 12, 2007 7:54 am Post subject:
Hello, I noticed you come from Malyasia, To answer your questions I would need to know the customs and culture of your society. Only you can judge whether to open up or not.
Here in America it is good to tell people of our PD, but not to overwhelm them or cry our troubles.
There is always a balance between what is appropriate to tell and what to keep to yourself, and this is depending on the culture.
Peace Jack_________________We are what we think. With our thoughts we create our world.
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'
When is the mean off and on of PD medicine?
Sat Apr 21, 2007 9:15 am Post subject: When is the mean off and on of PD medicine?
As PD is on " not going disease' i.e. a slow progression and is different from other disease i.e a self -limited sickness or injury that temporarily impact their lives as inconvenience or comfort.
In this connection I have queries:
When are the days of PD medicine wearing off ?
Is it from the day when we start taking medicine or from the day the disease is detected?
What are the syndromes i.e wearing on or off on the PD medicine on the patients?
Is it the PD medicine has a wearing off i.e. 3 - 5 years on the patients?
Kindly elaborate? TEO KIM HOE
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Sat Apr 21, 2007 1:05 pm Post subject:
The wearing off phenomenon refers to what happens when you take medicines for PD and they do not last until the next dose. This phenomenon gets progressively worse over time and may necessitate the use of more frequent doses or increasing doses, or in adding other classes of medications. As PD progresses the buffer for dopamine becomes less able to deal with replacement._________________Michael S. Okun, M.D.
As PD is on " not going disease' i.e. a slow progression and is different from other disease i.e a self -limited sickness or injury that temporarily impact their lives as inconvenience or comfort.
In this connection I have queries:
When are the days of PD medicine wearing off ?
Is it from the day when we start taking medicine or from the day the disease is detected?
What are the syndromes i.e wearing on or off on the PD medicine on the patients?
Is it the PD medicine has a wearing off i.e. 3 - 5 years on the patients?
Kindly elaborate? TEO KIM HOE
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'
Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Sat Apr 21, 2007 1:05 pm Post subject:
The wearing off phenomenon refers to what happens when you take medicines for PD and they do not last until the next dose. This phenomenon gets progressively worse over time and may necessitate the use of more frequent doses or increasing doses, or in adding other classes of medications. As PD progresses the buffer for dopamine becomes less able to deal with replacement._________________Michael S. Okun, M.D.
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