Teokimhoe, I certainly hope I did NOT mislead you. We will be compiling a book of many stories about living with PD from many different people. As such, we will not be making one book from your story, with your permission we will INCLUDE your story in the book by many people. Do you understand what I am trying to say??? If you have questions, please feel free to email me. auntique (Janice)
Thank you for your email.I would be obliged that you could compile my stories from my blog : movementdisorder@blogspot.com into a book "your life long sentence"
Sunday, February 24, 2008
REQUIP (Ropinirole) by Dr. Chew Nee Kong
For an incurable illness such as PD, it is certainly hoped that there should be at least a way to slow down the progression of illness, i.e. the rate of brain cell loss. Unfortunately, so far, no medication has been unequivocably proven to be able to slow down the progression of PD. The good news is that dopamine agonists (Pramipexole, Ropinirole) have been shown to have potential neuroprotective effect - the ability to slow down the rate of brain cell loss. Experimental studies have shown that dopamine agonists can protect nerve cells from the damage caused by poison. The ability of dopamine agonists to protect the brain cells (if it is true) can help Parkinson's patients to have additional several years of relatively good quality of life, and without motor complications (the involuntary movement). Despite this, I still think that there is a potential neuroprotective property of dopamine agonists. I still prefer to use dopamine agonists as the first-line medications for my PD patients. I am happy that Pramipexole and Ropinirole have recently arrived in Malaysia, and I am already prescribing them to my patients. Dr Chew Nee Kong, Kuala Lumpur, Malaysia._________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Saturday, February 23, 2008
Benzhexol
I'd like to share the following Information about Benzhexol 2mg: Instead of helpful, it causes thick and sticky saliva, dryness mouth, rough tongue, craked on both lips.It is a good medication but it is individualised. For me it is not helpful and I suffer from taking this medication
My treatment
Treatment
Dosage
Purpose
Last Updated
Requip (ropinirole)
12 mg daily
Other
Dec 03, 2007
Selegiline
10 mg daily
Dry mouth (xerostomia)
Feb 13, 2008
Sinemet CR (carbidopa/levodopa)
2 mg daily
treat Parkinson's
Jan 31, 2008
motilium
3 daily
Constipation
Jan 23, 2008
Previous Treatments (no longer used)
Treatment
Dosage
Purpose
Last Updated
Amantadine
3 mg daily
Dry mouth (xerostomia)
Feb 13, 2008
Benzhexol 2mg
1 mg daily
Excess saliva
Feb 23, 2008
Benzhexol HCL 2MG HALF DOSE THREE TIMES
Dry mouth (xerostomia)
Jan 31, 2008
sinemet 25/100 3 doses daily
1
Fatigue
Feb 22, 2008
Dosage
Purpose
Last Updated
Requip (ropinirole)
12 mg daily
Other
Dec 03, 2007
Selegiline
10 mg daily
Dry mouth (xerostomia)
Feb 13, 2008
Sinemet CR (carbidopa/levodopa)
2 mg daily
treat Parkinson's
Jan 31, 2008
motilium
3 daily
Constipation
Jan 23, 2008
Previous Treatments (no longer used)
Treatment
Dosage
Purpose
Last Updated
Amantadine
3 mg daily
Dry mouth (xerostomia)
Feb 13, 2008
Benzhexol 2mg
1 mg daily
Excess saliva
Feb 23, 2008
Benzhexol HCL 2MG HALF DOSE THREE TIMES
Dry mouth (xerostomia)
Jan 31, 2008
sinemet 25/100 3 doses daily
1
Fatigue
Feb 22, 2008
Overdose or optimize Levodopa?
Overdoses or optimize Levodopa for PD patient depend on individual.Doctor would prescribed according to what's the PD patient need.
Tuesday, February 19, 2008
Revealation by a PD patient (I)
Posted: Fri Feb 15, 2008 7:35 pm Post subject: Revealation by a PD patient
As an Early parkinson's patient is fully aware he does not accept that he has symptoms of PD even have been diagnosed by doctors.. He treats it as an aging process as the result the patient end up with Parkinson's progression. Besides Parkinson's has symptoms with other related diseases and some doctors wrongly diagnosed as an age aging process. I am one of the sufferer's. It takes me four years to be treated as Parkinson's patient. I am fortunate that my PD is slow progression.as I do daily exercises far ahead for changes of my body.movement. The late Parkinson's treatment aggravates the sickness further and could not to be normal and enjoy good quality life. Therefore a good start to tackling health issues is to understand the diseases themselves. As an early PD patient I experience emotional disorders - anxiety,depression, apathy, uncertainties and stress. Do you experience the above
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Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Mon Feb 18, 2008 2:38 pm Post subject:
I fully agree with you, my friend, education is power! That is why we have this free website/discussion forum sponsored by the National Parkinson Foundation and we have the free educational booklets for you. Just ask for them and NPF will mail them to your home. Or join a PD support group and these booklets will be out there for you to to take. There is so much to learn about PD than your doctor can tell you during your office visit with him/her. Yes, depression is experienced by 40-50% of PD patients, anxiety and apathy by 20-30%. Medications can help with depression and anxiety but not much for apathy. Best of luck to you! Yours,_________________Hubert H. Fernandez
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As an Early parkinson's patient is fully aware he does not accept that he has symptoms of PD even have been diagnosed by doctors.. He treats it as an aging process as the result the patient end up with Parkinson's progression. Besides Parkinson's has symptoms with other related diseases and some doctors wrongly diagnosed as an age aging process. I am one of the sufferer's. It takes me four years to be treated as Parkinson's patient. I am fortunate that my PD is slow progression.as I do daily exercises far ahead for changes of my body.movement. The late Parkinson's treatment aggravates the sickness further and could not to be normal and enjoy good quality life. Therefore a good start to tackling health issues is to understand the diseases themselves. As an early PD patient I experience emotional disorders - anxiety,depression, apathy, uncertainties and stress. Do you experience the above
Back to top
Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Mon Feb 18, 2008 2:38 pm Post subject:
I fully agree with you, my friend, education is power! That is why we have this free website/discussion forum sponsored by the National Parkinson Foundation and we have the free educational booklets for you. Just ask for them and NPF will mail them to your home. Or join a PD support group and these booklets will be out there for you to to take. There is so much to learn about PD than your doctor can tell you during your office visit with him/her. Yes, depression is experienced by 40-50% of PD patients, anxiety and apathy by 20-30%. Medications can help with depression and anxiety but not much for apathy. Best of luck to you! Yours,_________________Hubert H. Fernandez
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Revealation by a PD patient (2)
Fri Feb 15, 2008 7:40 pm Post subject: Revealation by a PD patient
its a shock to be told you have PD. It seems like a misdiagnosis. At the same time as its revealed ,you become scarred that its even more scary like Ataxia or hopeful its all a mistake.It takes around 2 years for any diagnosis to sink in apparently, and you would have to be very philosophical not to feel all those emotions.You sound like you are doing a good awareness rasing job, but don't forget to give yourself space as well .Teokimhoe are you telling us that you are still having those symptoms of anxiety,depression, apathy, uncertainties and stress, and is it posing a problem? I have had PD for 3 yrs and I think you are in good physical condition and sounds as if you do understand the disease. Perhaps we are not understanding you right, don't give up just keep on asking us. I do not have those symptoms only seldom but I know you do not like Levadopa but it does help me\TeoKimhoe, I understand the persistent nature of depression,anxieties amd such. I have had 3 bouts of major depression, and all the research shows a very close link with depression and Parkinsons. You are doing good things by staying engaged with people and performing daily exercise, which also helps depression. There is a release of brain chemicals, endorphins,that lift the mood. If I can't do my Tae Kwan Do practice, within 3 days I have started to lose flexiibility,strength and motivation. And I am very hard to live with. Parkinsons takes a variable course for each person,it is good that you recognize the depression and issues-perhaps a neutral person like a therapist may be of help, and if you are depressed to the point of immobility,apathy,suicidal thinking you must be treated with medication by someone who is knowledgeable in the special care of the person with Parkinsons and depression. I take Stalevo and when it wears off, and I am tired, I become extremely emotional. This is a great forum in which to get help,continue to post,there are always members around with great ideas. Regards,
Back to top
'
Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Mon Feb 18, 2008 2:40 pm Post subject:
Thank you for your encouraging message! It is much appreciated. Yours,_________________Hubert H. Fernandez
its a shock to be told you have PD. It seems like a misdiagnosis. At the same time as its revealed ,you become scarred that its even more scary like Ataxia or hopeful its all a mistake.It takes around 2 years for any diagnosis to sink in apparently, and you would have to be very philosophical not to feel all those emotions.You sound like you are doing a good awareness rasing job, but don't forget to give yourself space as well .Teokimhoe are you telling us that you are still having those symptoms of anxiety,depression, apathy, uncertainties and stress, and is it posing a problem? I have had PD for 3 yrs and I think you are in good physical condition and sounds as if you do understand the disease. Perhaps we are not understanding you right, don't give up just keep on asking us. I do not have those symptoms only seldom but I know you do not like Levadopa but it does help me\TeoKimhoe, I understand the persistent nature of depression,anxieties amd such. I have had 3 bouts of major depression, and all the research shows a very close link with depression and Parkinsons. You are doing good things by staying engaged with people and performing daily exercise, which also helps depression. There is a release of brain chemicals, endorphins,that lift the mood. If I can't do my Tae Kwan Do practice, within 3 days I have started to lose flexiibility,strength and motivation. And I am very hard to live with. Parkinsons takes a variable course for each person,it is good that you recognize the depression and issues-perhaps a neutral person like a therapist may be of help, and if you are depressed to the point of immobility,apathy,suicidal thinking you must be treated with medication by someone who is knowledgeable in the special care of the person with Parkinsons and depression. I take Stalevo and when it wears off, and I am tired, I become extremely emotional. This is a great forum in which to get help,continue to post,there are always members around with great ideas. Regards,
Back to top
'
Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Mon Feb 18, 2008 2:40 pm Post subject:
Thank you for your encouraging message! It is much appreciated. Yours,_________________Hubert H. Fernandez
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