Anonymous
Posted: Wed Jul 29, 2009 10:40 pm Post subject: parkinson and b-6-b12
--------------------------------------------------------------------------------
what is a good dosage of b-6 and b12 your help would gratly be of use to help i have had parkinson for 20 yrs plus. thanks
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Kathrynne Holden, MS
Joined: 22 Jan 2007
Posts: 94
Location: www.nutritionucanlivewith.com
Posted: Sun Aug 02, 2009 1:19 pm Post subject:
--------------------------------------------------------------------------------
.
Dear Friend,
That’s a very good question. Folks with PD need to be certain to get enough B vitamins, because studies have shown that long-time users of levodopa can develop elevated homocysteine – a substance in the blood that is normally cleared by a combination of the vitamins B6, B12, and folate.
If you are using levodopa, you should be able to take 10 mg of B6 daily, possibly as much as 25 mg; very high amounts can interfere with levodopa absorption, however, so you will need to be cautious. The daily requirement for adults is 1.3 mg per day, and the upper safe limit is 100 mg/day.
Regarding vitamin B12, the minimum for adults is 2.4 mcg per day, with a safe upper limit not determined. B12 does not interfere with levodopa absorption.
I will separately post an article I wrote on B vitamins and Parkinson’s disease that may be helpful. Let me know if you have other questions.
.
_________________
Best regards,
Kathrynne Holden, MS
--
For a Parkinson Tip of the Day visit:
http://www.nutritionucanlivewith.com/
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Wednesday, September 23, 2009
Sunday, September 20, 2009
NPF Forum: My Book
teokimhoe
Joined: 03 Mar 2007
Posts: 157
Location: Malaysia
Posted: Sat Sep 19, 2009 6:10 pm Post subject: My Book
--------------------------------------------------------------------------------
http://www.heroteo.com/heroteo_book.pdf
_________________
to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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Rogerstar1
Joined: 14 Mar 2007
Posts: 463
Posted: Sat Sep 19, 2009 7:19 pm Post subject:
--------------------------------------------------------------------------------
Teo- I know a very little about Parkinsons Disease but can recognize superb translating by a professional a mile away. You've brought on a talented one. Congratulations and best wishes with your book.
Rogerstar
http://www.patientslikeme.com/forum/show/54379
Joined: 03 Mar 2007
Posts: 157
Location: Malaysia
Posted: Sat Sep 19, 2009 6:10 pm Post subject: My Book
--------------------------------------------------------------------------------
http://www.heroteo.com/heroteo_book.pdf
_________________
to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to top
Rogerstar1
Joined: 14 Mar 2007
Posts: 463
Posted: Sat Sep 19, 2009 7:19 pm Post subject:
--------------------------------------------------------------------------------
Teo- I know a very little about Parkinsons Disease but can recognize superb translating by a professional a mile away. You've brought on a talented one. Congratulations and best wishes with your book.
Rogerstar
http://www.patientslikeme.com/forum/show/54379
Saturday, September 19, 2009
NPF Discussion : secret recipe behind the mask
teokimhoe
Joined: 03 Mar 2007
Posts: 155
Location: Malaysia
Posted: Fri Sep 18, 2009 8:17 am Post subject: secret recipe behind the mask
--------------------------------------------------------------------------------
Secret recipe behind the mask
I often smiled as I watched the video recording of my kick-boxing exercise which I have uploaded to YouTube a few weeks ago. My trainers and videographer told me the same thing – “You do not look like a Parkinson’s patient at all”. Even my doctor shook his head in disbelief and said, “This is shocking. I can’t imagine a 70-year-old Parkinson’s patient doing such a strenuous exercise such as kickboxing. I am sure that you are the only Parkinson’s patient in Malaysia who is doing the kickboxing exercise.”
As early as 1998, I already had both the motor and non-motor symptoms. Since my diagnosis in 2002, I went through a period of depression, anxiety, denial and anger. Subsequently, I bounced back after discovering a secret recipe for fighting Parkinson’s, which consisted of: knowledge (is power), exercise, medications, nutrition / supplements and prayer. In my quest for knowledge, I browsed various Parkinson’s websites, raining them with questions, questions and questions. I even started the first Parkinson’s blog in Malaysia (www.heroteo.com). I tried to learn everything about Parkinson’s in order to overcome all complications - the Chinese heroes won their battles by understanding their enemies first.
.
Animal experiments showed that exercises may be neuroprotective. Rats which were forced to exercise had a lesser degree of brain damage after they were exposed to poison. In mice which were made to undergo treadmill exercises, there was increased production of dopamine.
Parkinson’s patients are comparable to the car. The medications are needed to help patients to start walking, while fuel or battery is needed to help start the car engine. Exercises are needed to improve the patients’ physical mobility and endurance, while driving helps to recharge the battery. Thus, exercises help our “engines” warm up before leaving home and keep the “cars” going everyday. Even healthy people such as Bruce Lee, the Chinese kungfu master, know that exercises are beneficial.
As such, since 2005, I decided to “get physical”. I am spending 3-4 hours everyday at the California Fitness gym, doing a wide range of “heavy” exercises such as kick-boxing, weight-training and spinning (indoor cycling). Twice a week, I do yoga exercises at home with the guidance of a trainer.
Since this year, my physical condition has drastically improved. I sleep and eat well (I eat to live a healthy and good life). I enjoy driving around the Kuala Lumpur city with my wife everyday and going overseas for holiday. I managed to reduce the daily dose of Parkinson’s medications recently. Sometimes, I wonder whether I am just a “normal person” behind the mask.
Am I a Parkinson’s patient? – Try taking my “killer” punch and you’d wonder whether I really have Parkinson’s.
I know that it is technically difficult to prove that exercise has neuroprotective effect in Parkinson’s patients. Despite this, I believe that exercise has slowed down my disease progression. I hope that my video recording will bring hope and happiness to all Parkinson’s patients in this world, by reminding them that they can still live a physically active life.
Mr. Hero Teo, Kuala Lumpur, Malaysia
10th July 2009.
_________________
to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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Stargazer
Joined: 26 Dec 2007
Posts: 276
Location: Eastern Washington
Posted: Fri Sep 18, 2009 2:31 pm Post subject:
--------------------------------------------------------------------------------
Mr. Hero Teo I have followed your posts since around 2,007 or shortly there after. I can fully agree from reading your posts that you have come along way from day one. You have every right to be proud of your accomplishments.
I pray that the newly dx and younger people will heed your advice, being an older person my limitations to a great deal of excercise is limited but none the less even I can notice the difference in how I feel a good day w/exercise versus one with out. 100% on the knowledge part the more I read the more I get inspired and grow more content.
Keep it up Teo you have done well and am sure your wife and that little one are proud of you also.
Deeann
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Joined: 03 Mar 2007
Posts: 155
Location: Malaysia
Posted: Fri Sep 18, 2009 8:17 am Post subject: secret recipe behind the mask
--------------------------------------------------------------------------------
Secret recipe behind the mask
I often smiled as I watched the video recording of my kick-boxing exercise which I have uploaded to YouTube a few weeks ago. My trainers and videographer told me the same thing – “You do not look like a Parkinson’s patient at all”. Even my doctor shook his head in disbelief and said, “This is shocking. I can’t imagine a 70-year-old Parkinson’s patient doing such a strenuous exercise such as kickboxing. I am sure that you are the only Parkinson’s patient in Malaysia who is doing the kickboxing exercise.”
As early as 1998, I already had both the motor and non-motor symptoms. Since my diagnosis in 2002, I went through a period of depression, anxiety, denial and anger. Subsequently, I bounced back after discovering a secret recipe for fighting Parkinson’s, which consisted of: knowledge (is power), exercise, medications, nutrition / supplements and prayer. In my quest for knowledge, I browsed various Parkinson’s websites, raining them with questions, questions and questions. I even started the first Parkinson’s blog in Malaysia (www.heroteo.com). I tried to learn everything about Parkinson’s in order to overcome all complications - the Chinese heroes won their battles by understanding their enemies first.
.
Animal experiments showed that exercises may be neuroprotective. Rats which were forced to exercise had a lesser degree of brain damage after they were exposed to poison. In mice which were made to undergo treadmill exercises, there was increased production of dopamine.
Parkinson’s patients are comparable to the car. The medications are needed to help patients to start walking, while fuel or battery is needed to help start the car engine. Exercises are needed to improve the patients’ physical mobility and endurance, while driving helps to recharge the battery. Thus, exercises help our “engines” warm up before leaving home and keep the “cars” going everyday. Even healthy people such as Bruce Lee, the Chinese kungfu master, know that exercises are beneficial.
As such, since 2005, I decided to “get physical”. I am spending 3-4 hours everyday at the California Fitness gym, doing a wide range of “heavy” exercises such as kick-boxing, weight-training and spinning (indoor cycling). Twice a week, I do yoga exercises at home with the guidance of a trainer.
Since this year, my physical condition has drastically improved. I sleep and eat well (I eat to live a healthy and good life). I enjoy driving around the Kuala Lumpur city with my wife everyday and going overseas for holiday. I managed to reduce the daily dose of Parkinson’s medications recently. Sometimes, I wonder whether I am just a “normal person” behind the mask.
Am I a Parkinson’s patient? – Try taking my “killer” punch and you’d wonder whether I really have Parkinson’s.
I know that it is technically difficult to prove that exercise has neuroprotective effect in Parkinson’s patients. Despite this, I believe that exercise has slowed down my disease progression. I hope that my video recording will bring hope and happiness to all Parkinson’s patients in this world, by reminding them that they can still live a physically active life.
Mr. Hero Teo, Kuala Lumpur, Malaysia
10th July 2009.
_________________
to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to top
Stargazer
Joined: 26 Dec 2007
Posts: 276
Location: Eastern Washington
Posted: Fri Sep 18, 2009 2:31 pm Post subject:
--------------------------------------------------------------------------------
Mr. Hero Teo I have followed your posts since around 2,007 or shortly there after. I can fully agree from reading your posts that you have come along way from day one. You have every right to be proud of your accomplishments.
I pray that the newly dx and younger people will heed your advice, being an older person my limitations to a great deal of excercise is limited but none the less even I can notice the difference in how I feel a good day w/exercise versus one with out. 100% on the knowledge part the more I read the more I get inspired and grow more content.
Keep it up Teo you have done well and am sure your wife and that little one are proud of you also.
Deeann
Back to top
Friday, September 18, 2009
NPF Nut.,Disc:complimentary and alternative medicine
Anonymous
Posted: Fri Sep 18, 2009 4:15 am Post subject: complimentary and alternative medicine
--------------------------------------------------------------------------------
Due to sideeffect of the medication there are growing interest for parkinson's patients in alternative and complementary medicine or therapies who will live with disease for a longer peroid of time.
The CAM offers helpful information related to non motor and motor symptoms i.e proper diet, exercise, constipation, fatigue, insomina, massage, pain managment, Tai chi, rehabilation,speech therapy,acupuncture,spa treatment & etc.
As the result they try the above therapy to minimize their usage of medication they take to increase comfort or minimize effect of the physical or mental on them.
There are some doctors who do not agree for the above therapies as they are yet medical proven? Besides there are potential risks for the complementary/ alterative therapies
Sometimes the best treatment plans involve a wide range of interventions with their usage of the medications.
Over prescription on certain supplements interaction with medication have effect on each other i.e vitamin B6,iron and mineral .
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Kathrynne Holden, MS
Joined: 22 Jan 2007
Posts: 94
Location: www.nutritionucanlivewith.com
Posted: Fri Sep 18, 2009 7:09 am Post subject:
--------------------------------------------------------------------------------
.
Dear Friend,
I believe that many complementary and alternative therapies are most beneficial for people with PD. Although I’m not aware of any that slow progression of PD, there are other benefits. Tai Chi is an excellent exercise for improving balance; acupuncture and reflexology can help to relax muscles, improve digestion, and relieve some types of pain. Some herbs, such as chamomile tea, can help promote sleep.
I also know physicians who recommend such treatments, although not all are aware of the possible benefits.
However, one must also be aware of the many fraudulent schemes that are available – pills, juices, and other treatments designed to make money for the sellers rather than to provide relief for illnesses. These are expensive and useless, and in a few cases, even dangerous. It’s best to seek licensed practitioners for treatment and counseling.
.
_________________
Best regards,
Kathrynne Holden, MS
--
For a Parkinson Tip of the Day visit:
http://www.nutritionucanlivewith.com/
Posted: Fri Sep 18, 2009 4:15 am Post subject: complimentary and alternative medicine
--------------------------------------------------------------------------------
Due to sideeffect of the medication there are growing interest for parkinson's patients in alternative and complementary medicine or therapies who will live with disease for a longer peroid of time.
The CAM offers helpful information related to non motor and motor symptoms i.e proper diet, exercise, constipation, fatigue, insomina, massage, pain managment, Tai chi, rehabilation,speech therapy,acupuncture,spa treatment & etc.
As the result they try the above therapy to minimize their usage of medication they take to increase comfort or minimize effect of the physical or mental on them.
There are some doctors who do not agree for the above therapies as they are yet medical proven? Besides there are potential risks for the complementary/ alterative therapies
Sometimes the best treatment plans involve a wide range of interventions with their usage of the medications.
Over prescription on certain supplements interaction with medication have effect on each other i.e vitamin B6,iron and mineral .
Back to top
Kathrynne Holden, MS
Joined: 22 Jan 2007
Posts: 94
Location: www.nutritionucanlivewith.com
Posted: Fri Sep 18, 2009 7:09 am Post subject:
--------------------------------------------------------------------------------
.
Dear Friend,
I believe that many complementary and alternative therapies are most beneficial for people with PD. Although I’m not aware of any that slow progression of PD, there are other benefits. Tai Chi is an excellent exercise for improving balance; acupuncture and reflexology can help to relax muscles, improve digestion, and relieve some types of pain. Some herbs, such as chamomile tea, can help promote sleep.
I also know physicians who recommend such treatments, although not all are aware of the possible benefits.
However, one must also be aware of the many fraudulent schemes that are available – pills, juices, and other treatments designed to make money for the sellers rather than to provide relief for illnesses. These are expensive and useless, and in a few cases, even dangerous. It’s best to seek licensed practitioners for treatment and counseling.
.
_________________
Best regards,
Kathrynne Holden, MS
--
For a Parkinson Tip of the Day visit:
http://www.nutritionucanlivewith.com/
Wednesday, September 16, 2009
Major nutritional issues in the management of PD
Kathrynne Holden, MS
Joined: 22 Jan 2007
Posts: 94
Location: www.nutritionucanlivewith.com
Posted: Wed Aug 26, 2009 7:37 am Post subject: News: Major nutritional issues in the management of PD Kathrynne Holden, MS
Joined: 22 Jan 2007
Posts: 94
Location: www.nutritionucanlivewith.com
Posted: Wed Aug 26, 2009 7:37 am Post subject: News: Major nutritional issues in the management of PD
--------------------------------------------------------------------------------
.
Dear Friends,
As long-time members know, I firmly believe that everyone with PD should see a registered dietitian on a regular basis, as nutritional concerns can occur, and can change, throughout the stages of PD. Best, Kathrynne
========================================================
Mov Disord. 2009 Aug 18.
Major nutritional issues in the management of Parkinson's disease.
Barichella M, Cereda E, Pezzoli G.
Parkinson Institute, Istituti Clinici di Perfezionamento, Milano, Italy.
As with other neurodegenerative diseases, neurologic and nutritional elements may interact affecting each other in Parkinson's disease (PD). However, the long-term effects of such interactions on prognosis and outcome have not been given much attention and are poorly addressed by current research.
Factors contributing to the clinical conditions of patients with PD are not only the basic features of PD, progression of disease, and the therapeutic approach but also fiber and nutrient intakes (in terms of both energy and protein content), fluid and micronutrient balance, and pharmaconutrient interactions (protein and levodopa).
During the course of PD nutritional requirements frequently change. Accordingly, both body weight gain and loss may occur and, despite controversy, it seems that both changes in energy expenditure and food intake contribute.
Nonmotor symptoms play a significant role and dysphagia may be responsible for the impairment of nutritional status and fluid balance. Constipation, gastroparesis, and gastro-oesophageal reflux significantly affect quality of life. Finally, any micronutrient deficiencies should be taken into account.
Nutritional assessments should be performed routinely. Optimization of pharmacologic treatment for both motor and nonmotor symptoms is essential, but nutritional interventions and counseling could and should also be planned with regard to nutritional balance designed to prevent weight loss or gain; optimization of levodopa pharmacokinetics and avoidance of interaction with proteins; improvement in gastrointestinal dysfunction (e.g., dysphagia and constipation); prevention and treatment of nutritional deficiencies (micronutrients or vitamins).
A balanced Mediterranean-like dietary regimen should be recommended before the introduction of levodopa; afterward, patients with advanced disease may benefit considerably from protein redistribution and low-protein regimens. (c) 2009 Movement Disorder Society.
PMID: 19691125 [PubMed - as supplied by publisher]
.
_________________
Best regards,
Kathrynne Holden, MS
--
For a Parkinson Tip of the Day visit:
--------------------------------------------------------------------------------
.
Dear Friends,
As long-time members know, I firmly believe that everyone with PD should see a registered dietitian on a regular basis, as nutritional concerns can occur, and can change, throughout the stages of PD. Best, Kathrynne
========================================================
Mov Disord. 2009 Aug 18.
Major nutritional issues in the management of Parkinson's disease.
Barichella M, Cereda E, Pezzoli G.
Parkinson Institute, Istituti Clinici di Perfezionamento, Milano, Italy.
As with other neurodegenerative diseases, neurologic and nutritional elements may interact affecting each other in Parkinson's disease (PD). However, the long-term effects of such interactions on prognosis and outcome have not been given much attention and are poorly addressed by current research.
Factors contributing to the clinical conditions of patients with PD are not only the basic features of PD, progression of disease, and the therapeutic approach but also fiber and nutrient intakes (in terms of both energy and protein content), fluid and micronutrient balance, and pharmaconutrient interactions (protein and levodopa).
During the course of PD nutritional requirements frequently change. Accordingly, both body weight gain and loss may occur and, despite controversy, it seems that both changes in energy expenditure and food intake contribute.
Nonmotor symptoms play a significant role and dysphagia may be responsible for the impairment of nutritional status and fluid balance. Constipation, gastroparesis, and gastro-oesophageal reflux significantly affect quality of life. Finally, any micronutrient deficiencies should be taken into account.
Nutritional assessments should be performed routinely. Optimization of pharmacologic treatment for both motor and nonmotor symptoms is essential, but nutritional interventions and counseling could and should also be planned with regard to nutritional balance designed to prevent weight loss or gain; optimization of levodopa pharmacokinetics and avoidance of interaction with proteins; improvement in gastrointestinal dysfunction (e.g., dysphagia and constipation); prevention and treatment of nutritional deficiencies (micronutrients or vitamins).
A balanced Mediterranean-like dietary regimen should be recommended before the introduction of levodopa; afterward, patients with advanced disease may benefit considerably from protein redistribution and low-protein regimens. (c) 2009 Movement Disorder Society.
PMID: 19691125 [PubMed - as supplied by publisher]
.
_________________
Best regards,
Kathrynne Holden, MS
--
For a Parkinson Tip of the Day visit:
Joined: 22 Jan 2007
Posts: 94
Location: www.nutritionucanlivewith.com
Posted: Wed Aug 26, 2009 7:37 am Post subject: News: Major nutritional issues in the management of PD Kathrynne Holden, MS
Joined: 22 Jan 2007
Posts: 94
Location: www.nutritionucanlivewith.com
Posted: Wed Aug 26, 2009 7:37 am Post subject: News: Major nutritional issues in the management of PD
--------------------------------------------------------------------------------
.
Dear Friends,
As long-time members know, I firmly believe that everyone with PD should see a registered dietitian on a regular basis, as nutritional concerns can occur, and can change, throughout the stages of PD. Best, Kathrynne
========================================================
Mov Disord. 2009 Aug 18.
Major nutritional issues in the management of Parkinson's disease.
Barichella M, Cereda E, Pezzoli G.
Parkinson Institute, Istituti Clinici di Perfezionamento, Milano, Italy.
As with other neurodegenerative diseases, neurologic and nutritional elements may interact affecting each other in Parkinson's disease (PD). However, the long-term effects of such interactions on prognosis and outcome have not been given much attention and are poorly addressed by current research.
Factors contributing to the clinical conditions of patients with PD are not only the basic features of PD, progression of disease, and the therapeutic approach but also fiber and nutrient intakes (in terms of both energy and protein content), fluid and micronutrient balance, and pharmaconutrient interactions (protein and levodopa).
During the course of PD nutritional requirements frequently change. Accordingly, both body weight gain and loss may occur and, despite controversy, it seems that both changes in energy expenditure and food intake contribute.
Nonmotor symptoms play a significant role and dysphagia may be responsible for the impairment of nutritional status and fluid balance. Constipation, gastroparesis, and gastro-oesophageal reflux significantly affect quality of life. Finally, any micronutrient deficiencies should be taken into account.
Nutritional assessments should be performed routinely. Optimization of pharmacologic treatment for both motor and nonmotor symptoms is essential, but nutritional interventions and counseling could and should also be planned with regard to nutritional balance designed to prevent weight loss or gain; optimization of levodopa pharmacokinetics and avoidance of interaction with proteins; improvement in gastrointestinal dysfunction (e.g., dysphagia and constipation); prevention and treatment of nutritional deficiencies (micronutrients or vitamins).
A balanced Mediterranean-like dietary regimen should be recommended before the introduction of levodopa; afterward, patients with advanced disease may benefit considerably from protein redistribution and low-protein regimens. (c) 2009 Movement Disorder Society.
PMID: 19691125 [PubMed - as supplied by publisher]
.
_________________
Best regards,
Kathrynne Holden, MS
--
For a Parkinson Tip of the Day visit:
--------------------------------------------------------------------------------
.
Dear Friends,
As long-time members know, I firmly believe that everyone with PD should see a registered dietitian on a regular basis, as nutritional concerns can occur, and can change, throughout the stages of PD. Best, Kathrynne
========================================================
Mov Disord. 2009 Aug 18.
Major nutritional issues in the management of Parkinson's disease.
Barichella M, Cereda E, Pezzoli G.
Parkinson Institute, Istituti Clinici di Perfezionamento, Milano, Italy.
As with other neurodegenerative diseases, neurologic and nutritional elements may interact affecting each other in Parkinson's disease (PD). However, the long-term effects of such interactions on prognosis and outcome have not been given much attention and are poorly addressed by current research.
Factors contributing to the clinical conditions of patients with PD are not only the basic features of PD, progression of disease, and the therapeutic approach but also fiber and nutrient intakes (in terms of both energy and protein content), fluid and micronutrient balance, and pharmaconutrient interactions (protein and levodopa).
During the course of PD nutritional requirements frequently change. Accordingly, both body weight gain and loss may occur and, despite controversy, it seems that both changes in energy expenditure and food intake contribute.
Nonmotor symptoms play a significant role and dysphagia may be responsible for the impairment of nutritional status and fluid balance. Constipation, gastroparesis, and gastro-oesophageal reflux significantly affect quality of life. Finally, any micronutrient deficiencies should be taken into account.
Nutritional assessments should be performed routinely. Optimization of pharmacologic treatment for both motor and nonmotor symptoms is essential, but nutritional interventions and counseling could and should also be planned with regard to nutritional balance designed to prevent weight loss or gain; optimization of levodopa pharmacokinetics and avoidance of interaction with proteins; improvement in gastrointestinal dysfunction (e.g., dysphagia and constipation); prevention and treatment of nutritional deficiencies (micronutrients or vitamins).
A balanced Mediterranean-like dietary regimen should be recommended before the introduction of levodopa; afterward, patients with advanced disease may benefit considerably from protein redistribution and low-protein regimens. (c) 2009 Movement Disorder Society.
PMID: 19691125 [PubMed - as supplied by publisher]
.
_________________
Best regards,
Kathrynne Holden, MS
--
For a Parkinson Tip of the Day visit:
Tuesday, September 15, 2009
Suicide and PD
Dr. Okun
Joined: 19 Jan 2007
Posts: 251
Location: University of Florida
Posted: Thu Sep 10, 2009 10:57 am Post subject: New Study: Suicide and PD
--------------------------------------------------------------------------------
Dear forum members,
There is a new study out looking at suicide in PD. It has long been suspected by many authors it is actually slightly lower than in the general population. There is also debate as to whether it is higher in those receiving DBS. It is important to keep these numbers in mind and remember---PD patients commonly report having thought about suicide. Further, depression is treatable!!
Here is the abstract:
J Neurol Sci. 2009 Sep 7. [Epub ahead of print]
Suicide and suicidal ideation in Parkinson's disease.
Kostić VS, Pekmezović T, Tomić A, Ječmenica-Lukić M, Stojković T, Spica V, Svetel M, Stefanova E, Petrović I, Džoljić E.
Institute of Neurology CCS, School of Medicine, Belgrade, Serbia.
Little is known about the prevalence and correlates of suicidal behavior in Parkinson's disease (PD). In the first part of the study, we followed a cohort of 102 consecutive PD patients for 8years and found that the suicide-specific mortality was 5.3 (95% CI 2.1-12.7) times higher than expected. In the second part, we tested 128 PD patients for death and suicidal ideation and administered an extensive neurological, neuropsychological and psychiatric battery. Current death and/or suicidal ideation was registered in 22.7%. On univariate logistic regression analysis, psychiatric symptoms (depression, but also anxiety and hopelessness), but not the PD-related variables, were associated with such ideation. On multivariate logistic regression analysis this association held for major depression (odds ratio=4.6; 95% CI 2.2-9.4; p<0.001), psychosis (odds ratio=19.2; 95% CI 1.4-27.3; p=0.026), and increasing score of the Beck Hopelessness Scale (odds ratio=1.2; 95% CI 1.0-1.4; p=0.008). In conclusion, the suicide risk in PD may not be as high as it is expected, but it is certainly not trivial. According to our data almost a quarter of PD patients had death and/or suicidal ideation, that may significantly influence their quality of life.
_________________
Michael S. Okun, M.D.
Back to top
Joined: 19 Jan 2007
Posts: 251
Location: University of Florida
Posted: Thu Sep 10, 2009 10:57 am Post subject: New Study: Suicide and PD
--------------------------------------------------------------------------------
Dear forum members,
There is a new study out looking at suicide in PD. It has long been suspected by many authors it is actually slightly lower than in the general population. There is also debate as to whether it is higher in those receiving DBS. It is important to keep these numbers in mind and remember---PD patients commonly report having thought about suicide. Further, depression is treatable!!
Here is the abstract:
J Neurol Sci. 2009 Sep 7. [Epub ahead of print]
Suicide and suicidal ideation in Parkinson's disease.
Kostić VS, Pekmezović T, Tomić A, Ječmenica-Lukić M, Stojković T, Spica V, Svetel M, Stefanova E, Petrović I, Džoljić E.
Institute of Neurology CCS, School of Medicine, Belgrade, Serbia.
Little is known about the prevalence and correlates of suicidal behavior in Parkinson's disease (PD). In the first part of the study, we followed a cohort of 102 consecutive PD patients for 8years and found that the suicide-specific mortality was 5.3 (95% CI 2.1-12.7) times higher than expected. In the second part, we tested 128 PD patients for death and suicidal ideation and administered an extensive neurological, neuropsychological and psychiatric battery. Current death and/or suicidal ideation was registered in 22.7%. On univariate logistic regression analysis, psychiatric symptoms (depression, but also anxiety and hopelessness), but not the PD-related variables, were associated with such ideation. On multivariate logistic regression analysis this association held for major depression (odds ratio=4.6; 95% CI 2.2-9.4; p<0.001), psychosis (odds ratio=19.2; 95% CI 1.4-27.3; p=0.026), and increasing score of the Beck Hopelessness Scale (odds ratio=1.2; 95% CI 1.0-1.4; p=0.008). In conclusion, the suicide risk in PD may not be as high as it is expected, but it is certainly not trivial. According to our data almost a quarter of PD patients had death and/or suicidal ideation, that may significantly influence their quality of life.
_________________
Michael S. Okun, M.D.
Back to top
Saturday, September 12, 2009
Lloydtan-trust & Malaysia Parkinson's information centre
teokimhoe
Joined: 03 Mar 2007
Posts: 154
Location: Malaysia
Posted: Wed Sep 09, 2009 3:46 am Post subject: lloydtan-trust & Malaysia Parkinson's Information centre
--------------------------------------------------------------------------------
http://www.lloydtan-trust.com/index.php?page=home
_________________
to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to top
Stargazer
Joined: 26 Dec 2007
Posts: 267
Location: Eastern Washington
Posted: Thu Sep 10, 2009 2:29 pm Post subject:
--------------------------------------------------------------------------------
Thank you Teo that was an interesting article Mr. Loyd Tan was most certainly a devoted man to his religion, Family and the Parkinson group in Malaysia.
Teo you are also a busy man helping your friends and doing what you can to educate your people about Parkinson, I am sure you are appreciated.
The best of Health to you and your Family,
Deeann
Joined: 03 Mar 2007
Posts: 154
Location: Malaysia
Posted: Wed Sep 09, 2009 3:46 am Post subject: lloydtan-trust & Malaysia Parkinson's Information centre
--------------------------------------------------------------------------------
http://www.lloydtan-trust.com/index.php?page=home
_________________
to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to top
Stargazer
Joined: 26 Dec 2007
Posts: 267
Location: Eastern Washington
Posted: Thu Sep 10, 2009 2:29 pm Post subject:
--------------------------------------------------------------------------------
Thank you Teo that was an interesting article Mr. Loyd Tan was most certainly a devoted man to his religion, Family and the Parkinson group in Malaysia.
Teo you are also a busy man helping your friends and doing what you can to educate your people about Parkinson, I am sure you are appreciated.
The best of Health to you and your Family,
Deeann
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