Are there any medicine that can slow progression of PD?

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teokimhoeJoined: 03 Mar 2007Posts: 125Location: Malaysia
Posted: Sun Mar 22, 2009 4:00 am Post subject: Are there any medicine that can slow progression of PD?

Many patients and physicians believe exercise, physical therapy and a proper diet may slow the progression of parkinson's. There is not a clear answer to that question yet._________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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inspectorJoined: 29 Jan 2009Posts: 23Location: Stockton, CA.
Posted: Mon Mar 23, 2009 11:16 am Post subject:

There has been some discussion regarding COQ10 that may have the ability to slow the progression of PD. There are several clinical trials in progress to hopefully shed light on this particular supplement. The dosage is fairly high, around 1000-1500mg/day.
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Teddy Graham3Joined: 23 Oct 2008Posts: 1
Posted: Mon Mar 23, 2009 9:41 pm Post subject: Living w/Parkinson's Symptoms

I'm new to this forum and I hope to have some positive feedback after I hit send. I live in the nation's capital and I would like to find out if there any meeting places in and around the DC, MD & VA area. I still drive somewhat and I take Water Aerobics I am very active in my church and I take this disease one day at a time. I try to maintain positive thoughts and I try not to dwell on the progressiveness of the disease. If it had not been this it could have been something worse. I'd like to hear from some of you regarding Toe curling, I had a torn ligament last year and though the ligament is healed the alignment of the Big Toe is not straight and my Big Toe overlaps the toe beside it. I read a comment the other night from someone who mentioned it but I can not find that particular person's name and e-mail address. I am not prejudice but I would like to know if there are any African Americans in this area who are suffering w/this disease also. It would be nice to know your thoughts and help on dealing w/Spasms. I welcome and look forward to hearing comments from all persons, races, creed or color. We are after all in this together and we have to accept and play the Hand the Lord has allowed us to be dealt. I also believe there is a cure in the near future!
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johnball20Joined: 09 Mar 2007Posts: 198Location: Whittier, California
Posted: Thu Mar 26, 2009 9:28 pm Post subject: Toe curling

Teddy, I suffered from what I called cramps or spasms in my left foot for 12 years before it was finally diagnosed as PD. My toes would curl under my foot so hard that I ripped off a couple of toenails on one episode. Now I know it is officially called dystonia and it is a common feature of a sub-group of young on-set PD patients. I was diagnosed with PD at 39 and the dystonia still is my primary indicator that I've let my medication levels get too low. It is controllable when I'm properly medicated. The primary relief comes from carbidopa/levodopa. Dopamine agonists help a little, and the COMT and MAO-B inhibitors slow down the loss of dopamine but without my l-dopa, I couldn't function. I've been taking it for 25 years now, and it still works just fine so don't be afraid of it. When I say it still works, I mean that it really is a miracle drug...I just ran my 20th mararthon and finished in under 5 hours. By the way, we do know that this diasease is non-discriminatory. I have friends with PD in every category imaginable...in fact, I just met my first Hopi Indian with PD a month ago. I wish we could encourage more diversity among our advocacy group (PAN) and our support groups. It does seem hard to engage many people from our diverse communities here in LA. I don't know why that is, because we all suffer from PD whether black, white, asian or native American. John_________________We are working to raise awareness and find a cure.
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rittersJoined: 24 Dec 2008Posts: 77Location: Minnesota
Posted: Mon Mar 23, 2009 10:10 pm Post subject:

Welcome Teddy, I don't know of the problems with toe curling, however others here might. Also, posting to Ask the Doctors can be very informative. As far as I'm concerned, my computer does not see the color of skin, so know that you are welcome. I have one grandaughter that is half Native American and another that is half African American and they are as precious as they can be. I am a Sweedish, Norwegion, English mix. I wish you the best. It's sounds like you have a great attitude and please feel free to post whenever you can. Steve
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rittersJoined: 24 Dec 2008Posts: 77Location: Minnesota
Posted: Mon Mar 23, 2009 10:13 pm Post subject:

Teddy, Forgot to mention German.
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johnball20Joined: 09 Mar 2007Posts: 198Location: Whittier, California
Posted: Thu Mar 26, 2009 9:28 pm Post subject: Toe curling

Teddy, I suffered from what I called cramps or spasms in my left foot for 12 years before it was finally diagnosed as PD. My toes would curl under my foot so hard that I ripped off a couple of toenails on one episode. Now I know it is officially called dystonia and it is a common feature of a sub-group of young on-set PD patients. I was diagnosed with PD at 39 and the dystonia still is my primary indicator that I've let my medication levels get too low. It is controllable when I'm properly medicated. The primary relief comes from carbidopa/levodopa. Dopamine agonists help a little, and the COMT and MAO-B inhibitors slow down the loss of dopamine but without my l-dopa, I couldn't function. I've been taking it for 25 years now, and it still works just fine so don't be afraid of it. When I say it still works, I mean that it really is a miracle drug...I just ran my 20th mararthon and finished in under 5 hours. By the way, we do know that this diasease is non-discriminatory. I have friends with PD in every category imaginable...in fact, I just met my first Hopi Indian with PD a month ago. I wish we could encourage more diversity among our advocacy group (PAN) and our support groups. It does seem hard to engage many people from our diverse communities here in LA. I don't know why that is, because we all suffer from PD whether black, white, asian or native American. John_________________We are working to raise awareness and find a cure.
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