Recently diagnose

Recently Diagonosed

I am 25 years old and the mother of an almost 3 year old and a 1 year old. I started getting hand tremors while pregnant with my oldest but assumed it was due to the medication I was on to stop pre-term labor because the tremors went away about 2 months after she was born. About 5 months ago the tremors started up again but seemed to be getting worse each week and the more tired I got. I was diagnosed about a month ago with YOPD and some of the other symptoms that I had just been dismissing as being an overtired mother were finally making sense (extreme fatigue, memory loss - couldn't remember what I had just asked someone 5 minutes prior, lack of balance, etc). I am currently on Azilect and it seems to be helping immensely but wearing off by the evening. I am a positive person and I have hope for my life and I try to just focus on my kids and husband and all the many other joys in the world so that the idea of having PD doesn't fully set in and send me into the world of "what if's". I would love to hear from others on their experiences not only with PD but how they have been able to continue to enjoy the world around them. I look forward to speaking with everyone as we all go through this journey together. Kim
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granniDJoined: 21 Oct 2007Posts: 84Location: Calgary Alberta Canada
Posted: Thu Mar 13, 2008 2:19 pm Post subject: Recently diagnosed

I really think you should see another Dr for a 2nd opinion a specialist in movement disorder ailments -a neurologist. It is vital that you get the proper treatment as soon as possible This is not going to go away. you need treatment ASAP grannid
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cfinlaysonJoined: 29 Jun 2007Posts: 62
Posted: Sat Mar 15, 2008 5:53 am Post subject:

Kim, I agree with GranniD about a second opinion. I am 36 and was diagnosed 3 years ago. I have been for a second opinion and I have 3 girls, not quite as young as yours, but still a hand full and they keep me busy. I would be more than happy to tell you my story, but it is rather boring. Don't ever be afraid to get a second opinion. My MDS agreed and supported my decision when I did. My best advice is to live each day one day at the time. Don't dwell on the past or the future. It is so easy to get stuck in "what if", but try so hard not to do that. I get my strength from my faith in God and prayer. I will be praying for you and your family, but please do inquire more about your condition. Again, you are in my thoughts and prayers. Candy
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jojobeanJoined: 03 Mar 2007Posts: 127Location: salt Lake city, Utah
Posted: Sun Mar 16, 2008 9:55 am Post subject: KIm and Candy yonger than springtime are you?

Boy, you're both just kids! Rotten deal! Well as much as the truth hurts, you and all the other 'youngsters' here got a great future possible- ahead of you. We oldsters have a lot of hope and faith as to a cure being found in time to help us too, but your future will surely include that and probably before too long, so buck up children, All is not lost after all. I am sorry that you or anyone else has to come to terms with this head knocker, believe me. But I know your's wlll be OK! God bless you and your families. I pray for us all. And Candy I don't believe anyone is at odds with anything you've said on this forum. I for one appreciate you spirit and spirituality. Keep singing your song. It surely is helping someone who needs you, even lurkers who don't speak up but appreciate your strength and faith. Thanks for being who you are. You're great! luv ya both, Jojobean (JoAnn)_________________jojobean (alias Jo, JoAnn, or The Good witch of the North,
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cfinlaysonJoined: 29 Jun 2007Posts: 62
Posted: Sun Mar 16, 2008 4:47 pm Post subject:

Thanks Jojo!!! You have a wonderful attitude and a great spirit. You have always put a smile on my face. God Bless You! Candy
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mdaxJoined: 04 Mar 2008Posts: 5
Posted: Mon Mar 17, 2008 10:56 pm Post subject:

HI - I'm so sorry about your dx. I am about to turn 40. I was dx on the week of my 38th bday. I have 2 sons ages 6 and 4. I had lots of symptoms that I attributed to pregnancy and to being tired after my second son was born. The pd meds have made a big difference. I find that a good nights sleep is the best medicine - which is hard to do with young children. I was really down for the first year, but it's a lot better now. I think I realized that I still have good years left :) . Anyway, I'd love to talk to you more. I can send you my email if you'd like. Michelle
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bratzskiJoined: 12 Mar 2008Posts: 3
Posted: Tue Mar 18, 2008 8:50 am Post subject:

Thank you for the support every one. I just started on the Sinemet and it is defininetly taking some getting used to however the two medications together seem to be working. I have been told by other doctors that the neurologist I'm going to is the best at the hospital and his specialty is movement disorders. I'm actually glad that the hospital he is associated with is a research hospital because I feel that there are more options available that way instead of seeing one of the doctors in the semi-rural area that I live. With God walking by my side and directing me where to go I have faith that everything will work out the way it is supposed to. Michelle, I would love to talk with you some more about what you are going through. You can e-mail me at kamolina6@verizon.net
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sfraiseJoined: 15 Oct 2007Posts: 2
Posted: Tue Mar 18, 2008 6:41 pm Post subject:

Hi, I just turned 31 a few days ago and was diagnosed with early onset parkinson's a couple of months ago by a movement specialist who specializes in parkinsons. The thing that makes me kind of wonder though is that she told me that since the symptoms were mild and it was early enough that she didn't want to try and treat it. I understand I guess, but sometimes my muscles ache and are so stiff that they feel like they're going to snap. I basically just end up laying around the house all day when I'm like that and pretty much don't get any work done which effects us financially. In fact since I've been dealing with these symptoms for about 9 months now I'm pretty much broke and I think I just lost my health insurance on the 5th. They told me the last time that the funds weren't available for the auto withrawl that they would cancel me and that would be that. Does anyone know of any otc drugs that help with the stiffness and muscle aches? I eat ibuprofin by the handfull and it doesn't really seem to do much good.
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jojobeanJoined: 03 Mar 2007Posts: 127Location: salt Lake city, Utah
Posted: Wed Mar 19, 2008 4:05 am Post subject: Oh dear, Ibprofin by the handsful?

Dear one, I am sorry you have Parkinsons and still have a family of little ones to deal with. That would be doubly hard on all of you. But I would definately be worried about all that Ibprofin. That's gotta kill your tummy sometime soon. How about asking a natural food store for something to help? Save your tummy for when you get taking pD and arthritus meds. You'll need it. Tumysitus isn't fun either! God bless you, and all the young set. JOJo_________________jojobean (alias Jo, JoAnn, or The Good witch of the North,
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wheelersceJoined: 02 Mar 2007Posts: 387Location: MI
Posted: Wed Mar 19, 2008 5:36 am Post subject:

Sfraise, Does your doctor realize how much distress you're in? I know the docs on the Ask the Doctor forum are always suggesting we go ahead and take meds if we're as impaired in our daily lives as it sounds like you are. Missing income and losing health insurance are pretty serious. As for otc meds, before I was taking prescriptions, my neuro asked me if I had tried Benadryl. I really hope you will talk with your doctor, though. Sue W.
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teokimhoeJoined: 03 Mar 2007Posts: 78Location: Malaysia
Posted: Wed Mar 19, 2008 9:37 pm Post subject:

I was diagnosed at last as parkinson's patient in the year 2005. It take me seven years to be diagnosed as Parkinson's illness. I have seen three neurologlists for the past sven years in three different countries. The first neurologlist was told I am in the process of age ageing and am normal. I was also treated as a normal by the second neurologlist in another country. I am very fortunate I am in the early stage of Parkinson's and slow in progression . Regular exercises and medications relieve me from body stiffness and mobility. I thank Dr. Chew Nee Kong. Kuala Lumpur, Malaysia for his execellent medications for treatment of my Parkinson's disease. He is actively involved for awareness of Parkinson's in Malaysia. I give him double bonus for his unselfish service for the care and welfare for Parkinson's patients._________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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About 5% of Parkinson's patients are young-onset PD ( symptoms starting before the age of 40). My youngest patient, a Chinese gentleman, was 23 when he was diagnosed to have PD. I have another Malay patient who started having PD when she was 26. Last year, I met another Indian gentleman who had his PD since age 32. Thus, PD deserves a lot of attention from our government because it does not spare any race or ethnic group, and even the young are also affected. This April - May, we are going on a massive publicity campaign for Malaysian Parkinson's community, in conjunction with the World Parkinson's Day (April 11). One of the important messages that we will highlight to the Malaysian government is the very fact that even the young, who are still in the productive period in their lioves, also suffer due to PD. Hopefully, five years from now, the Malaysian Parkinson's community will no longer be neglected as they are today. Dr Chew Nee Kong, Kuala Lumpur, Malaysia.