To be braved and not to be feared and to be encouraged and not to be embarrassed the sharing your PD on the awareness of illness to the selected people who are interested and willing are a contribution to the society. PLM forum is a right channel and media communication by writing,email and talk to each other.
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It is the nature of human being to be private than to be publicity to be asked or answered unneccesary that is irrelevant.
Personally I think it is a good idea to aware the sickness to help others than to do charity work. You are not alone. Lord bless