It is not a rich man disease.
It can affect anyone in the world.
Do you agree is it an aging disease?
It is a movement disorders diseases.
It is estimated out of 2-3% at the age above 50 years old are parkinson disease suffers.
Unfortunately we are shortage of PD specialists. As the result some are wrongly disgnosed as aging and no medications are given to slowdown the disease.
Exercises and medications are possiblities to slowdown the disease but they are not for treatment.
PD has 5 stages slowdown your movements.
Every stage takes 3 -5 years to develop. Most PD dies at pneumonia, liver or kidney disease.
64 comments:
Dear Teo,
> I agree with you.
> PD is a rich man disease and I feel that the support in Singapore is not
> sufficient too.
> If you got to the government hospital, getting an appointment can be up to
> 4
> weeks or even longer.
> Doctors are unreachable and when you page for the doctors, it is at their
> own discreet to return call.
> Unless you have $ to attend a private clinic, then the doctor are more
> willing to talk to you but for long term, it is very heavy burden for
> average income family.
> My mother has PD at a young age of 40, now she is 48.
> And her health is deterioting.
> Her medicines are expensive and she now have muscle ache, hallucination
> and
> her feelings are often unstable.
> Under the extreme working pressure in Singapore, it is difficult to
> dedicate
> enough time for her.
> It makes me sad that I am unable to relieve her of pain and agony.
> PD would require to see a nutritionist and a psychiatrist and a
> physiotherapist and a good PD doctor.
> And in Singapore, all these are expensive charge
>
> ************************************
Most PD Patients have five bahaviours after been diagnosed that they are
PD patients i.e. self denial 2. Anger (Inflicted pain) 3. Bargain 4. Grief
5. Acceptance.
Doctors find difficulty to deal with them. They refuse to take medicine
and delay times for treatment. As the result they have more sickness
besides PD. The slow and stiffness of muscles movement affecting our
whole body systems i.e. vision, speech, digestion, urine, breathing.
They use to self denial and anger at people who are not PD and why they
are not fair treated? They start bargaining without consultation with
doctors and feel sad why they are not fair treated? They have to accept at
last when they see no hope to be slowdown the disease.
Teo Kim Hoe
Your latest input person, Teo Kim Hoe, is absolutely on the money =
>>> regarding
>>> things, simple things, that can greatly help the Parkinson's sufferer.
>>>
>>> His points about Tai Chi, Yoga Meditation and especially the deep =
>>> breathing
>>> ones are more than brilliant. They are absolutely truths.
>>>
>>> How wonderful for you, in your typically subtle manner, to quietly =
>>> "post"
>>> his inputs and let the readers carry it all forward. =20
>>>
>>> The ones who are "pro-active" in their care, will latch on to these bits
>>> =
>>> and
>>> pieces, and fill in the rest.
>>>
>>> Those who are looking to be spoon fed solutions, will sit and evaluate.
>>> =
>>>
>>>
>>> This all, by the way, fits into my Theory about oxygen depravation as a
>>> =
>>> root
>>> cause of PD. And I have already been able to ferret out a number of
>>> alternative protocols/regimens which - to varying degrees and varying
>>> speeds, combat our conditions.
>>>
>>> As always, God Bless,
>>>
>>>
>>> Terry
>>>
>>> --- End Message ---
>>> *****************************************************
************************************
>>>
>>Kathrynne,
>>>
>>> Your latest input person, Teo Kim Hoe, is absolutely on the money =
>>> regarding
>>> things, simple things, that can greatly help the Parkinson's sufferer.
>>>
>>> His points about Tai Chi, Yoga Meditation and especially the deep =
>>> breathing
>>> ones are more than brilliant. They are absolutely truths.
>>>
>>> How wonderful for you, in your typically subtle manner, to quietly =
>>> "post"
>>> his inputs and let the readers carry it all forward. =20
>>>
>>> The ones who are "pro-active" in their care, will latch on to these bits
>>> =
>>> and
>>> pieces, and fill in the rest.
>>>
>>> Those who are looking to be spoon fed solutions, will sit and evaluate.
>>>
>>> ************************************
>>>
>>
>
>
Subject: PD a slow muscles disorders movement
>
>
>> PD is a slow muscles disorders movement.
>>
>> It starts with bradykinesiai.i.e a symptom of parkinsonism comprising a
>> difficulty in initiating movements and in maintaining body posture. It
>> affects our nervous systems monitoring all part of our body movements
>> i.e body posture balance, brain, vision,urine, digestion, breathing,
>> speech, and swallow.
>>
>> Self denial of PD sufferers and late delay for treatment
>> will developing more other diseases as there is no way to slowdown the
>> PD from its progression.
>>
>> PD sufferes use to bargaining with other diseases by switching with other
>> specialists rather than the movement disorders specialists that are not
>> helpful to slowdown the PD. They don't understand PD is a progressive and
>> chronic diseases that affecting all part of your muscles movements.
>>
>> They start to accept they are PD sufferers as they find no way to treat
>> the diseases to normal. It is a sad story.
>>
>> Teo Kim Hoe
>>
>>
>>
>> ----- Original Message -----
>> From: "ask dietitian
depends what type of YOga she is doing. It is OK for 45 minities if she
> is learning Yoga Meditation.
>
> She has learned from the experienced yoga teacher to monitor her stiffness
> and rigidity muscles. She is not suitable for her to do in the class and
> is preferable to be one to one in the class. She will not feel tired as
> some yoga postures are not suitable for her. It is OK to learn Yoga two
> days in a week. Why don't try Pilate and Rolfing massage? She will find
> benefitable.
>
> Teo Kim Hoe\\
>
>
> ----- Original Message
Some PD patients do not acknowlege that they are PD after they are
diagnosed by Movement Disorder specialists. They do not take the PD
medications as there are some sideffects. They do not want to learn how to
manage the diseases to slowdown from its progression. As PD symptoms
aggravates every 3 to 5 years it is too late for them to be normal.
As movement disorder specialists teach the PD on how to control the PD by
medications they do not learn how to manage the diseases. Therefore some
PD patients find difficulty to manage the diseases. No program so far are
available for PD patients to learn how to manage the diseaes as it ia very
complicated and vary from one person by other. Research find difficulty to
prepare the programs as PD have different stages. The symptoms of PD
avery from one to others.
I hope the reseach can overcome the above to drawnup a programs for
different stages of PD on how to manage the disease.
TEO KIM HOE
understand there are so far few articles touch on subject on Breathing
with PD patients.
There are many types of breathing in which the rhythm, rate or character
is abnormal.
Kindly elaborate the types of breathing with some of the PD patients.
Breathing is the alternation of active inhalation of air into the lungs
through the mouth or nose with the passive exhalation of the air. As PD
patients have stiffness muscles and slowdown movement some PD have
reduction in nasal airflow with Breathing. They have cyclical variation
in the rate, which becomes slower until breathing stops for several
seconds before speeding up to a peak and then slowing again.It occurs when
the sensitivity of the respiratory centres in the brain ia impaired .
Therefore most PD die on pneumococal disease
Teo Kim Hoe
Dear Teo,
You're right, there is very little information or research on the problems caused by breathing difficulties in PD. I believe that in some cases dystonia (abnormal contraction of the muscles) of chest muscles can lead to abnormal breathing. But I have seen little to no research on breathing problems or their causes.
However, there have been a number of studies of the many benefits of exercise for those with PD, and exercise affects breathing. Tai chi, walking, stretching, and other forms of exercise have all been shown to make great improvements in health; and I am certain that in part this is due to improved breathing.
Thank you for bringing this to our attention, it's a very important point.
Best regards,
Kathrynne Holden, MS, RD
--
Dear Teo,
>>> It is a sad story, indeed. Some denial initially is understandable, also
>>> seeking a second, or even third opinion from other doctors. At some
>>> point, though, the most helpful and positive action is to begin
>>> self-education with regard to PD; to understand its nature, and how best
>>> to manage it and stay healthy and productive. I know of many people who
>>> continue to pursue their hobbies -- playing golf, running marathons,
>>> quilting, painting -- because they keep a positive attitude and are
>>> very proactive with regard to their health. I hope you will always
>>> remain a good example for us all, and for your family as well.
>>>
>>> Best regards,
>>> Kathrynne Holden, MS, RD
>>> -
>>> /
>>>
Dear Teo,
Your faithful exercise regime over twenty years has stood you in good stead – and is still doing so. Keeping the muscles strong, the bones dense, and the balance and posture supple and erect allows for good gait, better and deeper breathing, and more stamina. Very few folks of your age, even those who don’t have PD, are able to do so well, because most of us haven’t practiced such a good and healthful regime all our lives.
Advancing age does slow us all, however, sooner or later. In your case, much later than for most people. And, PD itself gradually progresses, and this adds to the slowing and tiredness.
You are doing most remarkably well in managing your PD symptoms; however, it nevertheless may be time to discuss medications with your neurologist. This is outside my scope of practice, you must talk with your doctor regarding type, amount, and/or timing of medications. It is very possible that a slight change in the amount of Sinemet might be just what you need. Write back and let us know.
_________________
Best regards,
Kathrynne Holden, MS, RD
--
Posted: Sat Mar 24, 2007 6:23 pm Post subject:
--------------------------------------------------------------------------------
Exercise is currently under investigation for putative neuroprotective effects in PD. We have always felt exercise is like a dug and stretching is very important. Exercise leads to changes in the chemicals in the PD brain that may be important symptomatically.
Why have you had a decline? It is unclear, but I would suggest having your medications optimized. It may be a combination of problems including medications and PD progression. Exercise may have helped you from the very start of your disease and I would keep it up.
We do not honestly know the specific answers to your questions.
PD is a progressive neurodegenerative disease. Presumably upregulation of some chemicals early in the course when more cells are preserved would likely have more benefit. I do not honestly think exercise can stave off PD, but there is a notion it can positively influence the course. I would therefore adjust medications and continue daily exercising if you can.
don't understand in your email why exercises had a decline i.e changes in the chemicals in the PD brain that may be important symptomatically? Would you kindly elaborate?
Is that my exercise for a long times shorten the Sinemet i.e. effectiveness/ wearing off as exercise helps me from the very start of my disease? Any remedial to slowdown the PD besides exercises and medicines as exercise is still investigation of the effectiveness for putative neuroprotective effects in PD?
Teo Kim Hoe
Posted: Tue Mar 27, 2007 2:28 am Post subject: medication and exercises 4
--------------------------------------------------------------------------------
After I have consulted with my doctor I increased one dose extra of Sinemet 25/100 before my bed time i.e. 4 doses of Sinemet per day: one in the morning, one in the afternoon, one in the evening and one before bed times i.e 4 hours in between.
I feel much better and look more fresh i.e no hackles,no mask face, looking tired and exhausted after the exercises. I walk firmly and confidence.
I agree it is the time for me to increase the intake of Sinemet. I still do not understand why the exercise leads to changes in the chemicals in the PD brain is so fast i.e 1 1/2 years only?
Exercise and medication may have helped me for the very start of my disease but why it is wearing off 1 1/2 years and the Sinemet be increased? Why it had a decline? Is it I spend 2-3 hours on exercises daily and dried up the chemical in the PD brain? Would you tell me what are the possibilities lead to above changes? Would you tell me what are the combination of problems i.e PD progression and medication
was diagnosed as PD in the year of Sept 2005 and taking Sinemet 25/100 one tablet at morning, afternoon and evening and one Jumet 5 mg at morning and afternoon only.
I did very well in my gmx classes at gmx centre 2 -3 hours per day from Mon to Friday as I did not feel tired and exhausted. I took part body pump, combat, cardio, spinning, Yoga and pilate when there were available in the gyx.
After 2 years in the gyx exercises i.e 2005 to 2006 I started tired and exhausted at the beginning of the year 2007 after my first hour of gyx exercise.
Is it my PD movement disorders help me to continue the exercises for 2 to 3 hours that I do not feel tired and exhausted?
Is it I am able to overcome/improvement of my movement disorders during the gmx that I feel tired and exhausted i.e muscles are more flexibilty, mobility and strength after 2 years of medication?
Is it my medication wearing off and requires more doses or alternative?
Is it my exercise cell help me to be able to spend 2 - 3 hours in the gmx without feeling tired and exhausted during my first two years PD's life?
Teo Kim Hoe
PD is a progressive neurodegenerative disease.
It is also a chronic disease, possibility an aging disease.
There are possibilties to slowdown the progression i.e exercises and medications. Medications have to be monitored and optimized for its effectivenss to slowdown the progression from time to time by doctor.
Stretching is important and helpful for your body i.e flexibility, mobility and strength.
Teo Kim Hoe
Thank you for your explanation of the PD as there is no treatment of the disease but there is a way to slowdown progression i.e medication and exercises. The doctor has to monitor, adjust and optimize the effectiveness of medications.
Teo Kim Hoe
In reply to your email as follows:
As I spend 2 - 3 hours on exercises in the gyx for the first of two year i.e 2005-2006 without tired and exhausted and I only am able to spent an hourly in the year 2007 as exercise leads to changes in the chemicals in the PD brain symptomatically.
As the result I have to optimized the combination of my medication to slow down the PD progression. Aging does slowdown sooner or later. Increases my intake of Sinemet is helpful.
I did structural integration, a process of re-education of the body through movement and touch. It systematically releases patterns of stress and impaired function . The primary focus of structural integration is facilitaing the relationship between gravity and the human body.
Most bodies are in a state of imbalance. As we grow older. we often "shrink' in height and slowly lose flexibilty. Our bones stay the same length and our muscles can still function, the connective tissue is what changes the most.
Connective tissue is the support system of our body. All of the major systems in the body- circulatory, digestive, nervous, musculo-skeletal, and organs- are ensheathed in the connective tissue. A healthy and balanced connective tissue system's characteristics are flexiblty elasticity, length and resilience.
Therefore structural integration is suitable for the early PD patient. It changes your body and your life , a period of six months to a year. It is a ten series session
TEO KIM HOE
Posted: Fri Mar 23, 2007 4:59 am Post subject: Q: medication and exercises
--------------------------------------------------------------------------------
I am now taking sinemet 25/100 one tablet three times a day and Jumex 5gm one tablet morning and lunch only for the past of two and half years when I was diagnosed as PD patient i.e. year 2005 Sept.
In the year of 2005 to 2006 I did not feel tired or ever took a break when I was taking part different gmx classes at gmx centre for two to three hours from Mon to Friday i.e body pump, comeback, yoga, pilate , ABT and spinning whatever the gmx classes were available.
I am now different in the year of 2007 my physical condition do not allow me to continue gmx exercises after one hour as I am tired and exhausted. i.e. wearing.
I have a health check and they are normal. Blood and heart are at normal level.
I understand my PD medications have a wearing off .Is it the time for me to consult the specialist for my problem? Is it the time for me to increase the doses or for an alternative medicine ?
Teo Kim Hoe
Back to top
Anonymous
Posted:
Dr. Okun,
Is Hormone therapy andlab. evaluations on antioxidant & Micronutrients
helpful for PD patient? It includes Vit.C,A ,Q10 vit. & minerals
Your early reply will be appreciated.
Kim hoe teo
*****************
The only one with preliminary positive evidence of the above that I endorse for my patients is Co-Q10. The others are not solidly proven.
Michael S. Okun, M.D.
Thanking you for your support and glad that my contribution will be
>> helpful
>> to PD sufferers.
>>
>> I wish to relate my family who have three PD sufferers.
>> Both of my brothers are self denial and anger when they are diagnosed as
>> PD
>> and go on without taking the medication and consultation with doctors.
>> They
>> start bargaining with doctors by switching to other field of specialists
>> as
>> PD slowdown his muscles movements and seek for treatment instead of
>> movement
>> disorders specailists. Thus it aggravate their stages of PD.
>> They at last accept that they are PD sufferers. It is a sad story.
>>
>> Teo Kim Hoe
>>
>> ****************************************
>>
>> Dear Teo,
>> It is a sad story, indeed. Some denial initially is understandable, also
>> seeking a second, or even third opinion from other doctors. At some
>> point, though, the most helpful and positive action is to begin
>> self-education with regard to PD; to understand its nature, and how best
>> to manage it and stay healthy and productive. I know of many people who
>> continue to pursue their hobbies -- playing golf, running marathons,
>> quilting, painting -- because they keep a positive attitude and are very
>> proactive with regard to their health. I hope you will always remain a
>> good example for us all, and for your family as well.
>>
>> Best regards,
>> Kathrynne Holden, MS, RD
>> --
>> For
Posted: Sun Mar 04, 2007 4:14 am Post subject: health wellness program
--------------------------------------------------------------------------------
I was taking part health wellness program at the Clatch Hatch Gyx centre for the past of 20 years. I used to spend 1 hour daily except Sunday at the Gyx. I ran treadmill, cycling, weight lifting at the gyx and yet to be told by my friend I had PD symptoms i.e. stoop postures, soft voice and tremor.
I had self denial and anger at them why it came to me as I was proactive in sports? Was it true? I had the PD symptoms for the past of 10 years.
I used to complain my vision to the eyes specialist and was told it was normal. I did screening on my constipation and was told I have haemorrhoids. I even did screening on my brain and nervous as I had sleeping disorders but it was normal.
In the year of 1985 I joined Calinfornia Gyx I took part body pump class'
and was told I have to do body check up and it was not suitable for me.
I did body comeback in the class and found to slow for me to follow.
I realized that I have weak on part of my muscles.
I went to do check up and consulted the Movement Disorders neurogolist
and was told I have PD. It was a shock for me as I was self denial person and anger when I was told I had PD and bargaining by switching with other field specialists for treatment.
As PD is a progressive and chronic disease and the late treatment will develop other diseases. I took part National Parkinson Foundation Discussion PD Forum I learn how to control and manage the diseases
Praise Lord.
TEO KIM HOE
Back to top
Dear Teo,
> I believe you are correct -- by age 60, the incidene of PD has greatly
> increased. Researcers disagree about the exact percent, but about 2 out of
> 100 persons seems to be agreed upon. And yes, persons with PD often do not
> die of PD itself, but instead of other diseases -- heart disease, liver or
> kidney problems, or complications of PD such as aspiration pneumonia.
>
> You must have done a great deal of research and study, and that is a very
> good idea. Self-education regarding PD is a great step forward in fighting
> the disease and maintaining good health.
>
> Best regards,
> Kathrynne Holden, MS, RD
> -->
>
> --- End Message ---
> *****************************************************
Thanking you for your email.
PD is a progressive and chronic disease. Unfortunately we have so far do not
have any way to checkon from it comming to our body. Human grow older and
the chances to have PD are high as the movement go slow as well as bad body
posture . It is difficulty to check on people at the age above 60 years old
to have PD.
Therefore they mostly die on aspiration pneumonia.
Besides we do not have enough Movement disorder specialists. It takes 2 to 3
weeks to make appointment with them especially in the remote countries . We
have so far 4 PD specialists in Singapore and one in Malaysia.
Best regards
Thank you for your email and pleased that you agree with me that PD is a
> progessive disease that it to be checked at earlier stage by movement
> disorder specialists.Besides it is difficulty to be detected at an earlier
> stage.
>
> It is too late also to be detected at the later stage of PD.as it is
> difficulty to be normal. It is ideal to have few neuroglists to check the
> PD
> at an earlier stages as the symptom varies from one people to the other.
> Besides the specialist has it own specialised field. It is difficulty for
> the doctor to detect the PD when people grow older as the movement go slow
> and have bad body posture. If I am wrong 2% out of 100 have PD symption
> at
> the age above 60 years? PD patient do not die on PD but dies on liver,
> kidney or pnrumococcal disease.
>
Thank you for your email and pleased that you agree with me that PD is a
progessive disease that it to be checked at earlier stage by movement
disorder specialists.Besides it is difficulty to be detected at an earlier
stage.
It is too late also to be detected at the later stage of PD.as it is
difficulty to be normal. It is ideal to have few neuroglists to check the PD
at an earlier stages as the symptom varies from one people to the other.
Besides the specialist has it own specialised field. It is difficulty for
the doctor to detect the PD when people grow older as the movement go slow
and have bad body posture. If I am wrong 2% out of 100 have PD symption at
the age above 60 years? PD patient do not die on PD but dies on liver,
kidney or pnrumococcal disease.
Kindly comment
TEO KIM HOE
*************************
Dear Teo,
I believe you are correct -- by age 60, the incidene of PD has greatly increased. Researcers disagree about the exact percent, but about 2 out of 100 persons seems to be agreed upon. And yes, persons with PD often do not die of PD itself, but instead of other diseases -- heart disease, liver or kidney problems, or complications of PD such as aspiration pneumonia.
You must have done a great deal of research and study, and that is a very good idea. Self-education regarding PD is a great step forward in fighting the disease and maintaining good health.
Best regards,
Kathrynne Holden, MS, RD
--
I have consulted three neurogolists to detect my PD. One is in Singapore
Mount E and one in Kuala Lumpur both found me as ageing as I grow
older.The third one in Bangkok detected me as PD and prescribed me
medication. The doctors have difficulty to detect me as I am in stage 2
PD. PD is a movement disorders disease as it varies on different patients.
I have to learn to overcome the sideeffect of the medication by reading
the PD articles and do stretching for my muscles stiffness and ridigity by
trainers and taking part fitness programs at gym centre. It helps me for
my constipation. PD patients have movement diorders that they lost
movement coordination that affecting your muscles i.e. eyes sight,
speech,digestion,face (stiff face and body postures and etc. It varies
from one person to other. Therefore it is difficulty for doctors to detect
especially for the PD begineer.
I went to Bumrungrad Hospital Bangkok to do Hormone therapy and
micronutrients as they help me to stay healthy. I believe they are useful
for the PD paitents. I do rolfing i.e. structural thereapy once a week as
it stretching my body postures.
After one years hardwork I am now recovery from my PD. My doctor found me
as an exceptional patient and is pleased for me.
I am glad to share my experience on how I overcome the PD disease/
*******************************************
Dear Friend,
You make excellent points - it can be very difficult to diagnose PD, especially in the earliest stages, and some people do need to consult more than one physician. Also, exercise, as you point out, is of the utmost importance in maintaining good physical condition and helping with constipation.
It sounds as though you have exceptionally fine doctors and therapists, and I'm sure many of us would be very interested in more information on your experiences, if you care to share this with us.
Best regards,
Kathrynne Holden, MS, RD
--
PD is a movement disorders disease. It is a richman disease.
Doctors find difficulty to detect when it comes at an early stage. As
human grows older our movement and coordination goes slow.Besides PD has
different symptoms on our bodies and varies one after by other
As PD is a progressive disease and does not check at early stage it turns
worsen as our movement goes stiffness and ridigity. It affects our
voice,digestion, eyes sight, face expression and slowdown our muscles
movements and coordination.
It is hard to recovery when it comes to certain stages of PD. They will
die on bed and die on liver, kidney affection or pneumoccal disease/
My family have three PD patients. Two of them do not believe that they are
PD. They do not trust doctors and physcial trainers that can help them to
slowdown the disease They regard it as aging as they grow older and some
doctors believe too.They take vitamins to supplement their bodies. It is a
waste of monies.
They do not believe PD medication that can slowdown the movement
disorders They see different field of specialists besides the PD
neurogolists. As the result it is too late to check the diseases. They are
in stage 3 to stage 4. They deserve themself for not believing and
trusting the doctors. Nobody can help unless they help themselves.
Kim HOe Teo
******************************
Dear Kim
Thank you for making some excellent points. In some people, PD can be very difficult to diagnose, and indeed, many people have been mis-diagnosed in the past. It is very important to find a good neurologist and physical therapist (and dietitian!) to help maintain good health.
Best regards,
Kathrynne Holden, MS, RD
PD is a movement disorders disease. It is a richman disease.
Doctors find difficulty to detect when it comes at an early stage. As
human grows older our movement and coordination goes slow.Besides PD has
different symptoms on our bodies and varies one after by other
As PD is a progressive disease and does not check at early stage it turns
worsen as our movement goes stiffness and ridigity. It affects our
voice,digestion, eyes sight, face expression and slowdown our muscles
movements and coordination.
It is hard to recovery when it comes to certain stages of PD. They will
die on bed and die on liver, kidney affection or pneumoccal disease/
My family have three PD patients. Two of them do not believe that they are
PD. They do not trust doctors and physcial trainers that can help them to
slowdown the disease They regard it as aging as they grow older and some
doctors believe too.They take vitamins to supplement their bodies. It is a
waste of monies.
They do not believe PD medication that can slowdown the movement
disorders They see different field of specialists besides the PD
neurogolists. As the result it is too late to check the diseases. They are
in stage 3 to stage 4. They deserve themself for not believing and
trusting the doctors. Nobody can help unless they help themselves.
Kim HOe Teo
******************************
Dear Kim
Thank you for making some excellent points. In some people, PD can be very difficult to diagnose, and indeed, many people have been mis-diagnosed in the past. It is very important to find a good neurologist and physical therapist (and dietitian!) to help maintain good health.
Best regardsm/
--- End Message ---
*****************************************************
As our country has limited of Movement Disorder Specialists that can detect
the PD patients. The patients have no choice and have to wait the times of
the appointments.
As PD is a progressive disease and if it further delays for treatment it
will turn to different stages. It will aggravate the sickness Therefore we
have a high rate of PD and numbers of PD patients past away are high.
Best regards
Teo Kim Hoe
In reply to your email
My Hormone therapy includes
LH, FSH,Estradiol, Testosterone, DHEA-S,PSA
Antioxidant profiles
Vitamin C (Ascorbate) , VIt A (Retinol) Vit E (Alpha-Tocopherol), Gamma-Tocopherol),Beta-Carotene, Alpha-Carotene, Coenzyme Q10 (Ubiquinoe), Lycopene
Vitamins and minerals
Folate (Vit B() Vit 12, Chromium Copper, Ferritin, Magnesium, Selenium, Zinc
Is it helpful for PD patient?
Best regards
Teo Kim Hoe
*******************************************
Dear Teo,
I think the B vitamins are a very good idea for folks with PD; a number of studies have found PD patients with low levels of several B vitamins. If you are taking levodopa, however, I would not take more than 25 mg of B6, because it can prevent levodopa absorption. Some people are sensitive to as little as 10-15 mg of B6.
In general, your supplements seem very good, with just a couple of possible exceptions.
I would not take too much vitamin A; it has been shown to cause bone thinning if taken in excess. The US recommended amount for adult males is 900 micrograms per day; for adult women 700 micrograms per day. The safe upper limit is considered to be 3000 micrograms per day, for all adults.
It is very unfortunate that your mother was diagnosed at a later stage of PD
by doctors. She was not well diagnosed as PD at an earlier stage of PD i.e
at the beginner. Therefore she has to slowdown the PD from its progression
on medication and do stretching exercises by physical trainer. If you have
any difficulty to get one kindly email to me. I would recommed Dr, Andrian
Tan , a private movement disoders specialist at Pacific Health Centre,
Paragoon Singapore to see your mother. Dr. Lious Tan of Tan Tuck Seng
Hospital is also one of the choice.
Best regards
Teo Kim Hoe
---
> Thanking you for your email.
>
> PD is a progressive and chronic disease. Unfortunately we have so far do
> not
> have any way to checkon from it comming to our body. Human grow older and
> the chances to have PD are high as the movement go slow as well as bad
> body
> posture . It is difficulty to check on people at the age above 60 years
> old to have PD.
> Therefore they mostly die on aspiration pneumonia.
>
> Besides we do not have enough Movement disorder specialists. It takes 2 to
> 3 weeks to make appointment with them especially in the remote countries .
> We have so far 4 PD specialists in Singapore and one in Malaysia.
> Best regards
>
> Teo Kim Hoe
>
> *******************************
>
> Dear Teo,
> I did not realize there were so few Parkinson specialists in your country;
> that must make it even more difficult to get an accurate diagnosis of PD.
> Good for you for taking such an active part in your own health care -- you
> have studied and researched PD and learned the best ways to fight it and
> stay healthy, and minimize the symptoms. That will certainly stand you in
> good stead!
>
> Best regards,
> Kathrynne Holden, MS, RD
> --
> In reply to your email I fully agree with you as some Neurologlists who
> are not specialised with PD wrongly or not accurate diagnosed PD patients
> as an ageing diseases.
> i.e. when you grow older your movement goes slow. No PD medication are
> given but only vitamins prescription.
> As PD is a progressive disease if it delays for treatment it will turn
> worsen and difficulty to be normal again.
>
> Besides that we have limited Movement Disorder Specialists and it takes
> times to visit them. We have high rate of people die on PD disease.
>
> It makes doctors more difficulty to diagnose a person who is the PD
> beginner. As the symptoms of PD are not only for PD patients but they are
> also for other sick person. Therefore some specialists wrongly or
> inaccurate diagnosed.
I have the symtoms of PD for the last of 10 years. I use to complain the
PD symtoms to related doctors and was told I am growing ageing and it is
normal your movement goes slow.
Vitamins were prescribed as the result I have constipation. I have even gone
IMR screening and it shown negative. As PD is a progressive and chronic
disease and once delays for treatment it becomes worsen. I am in stage 2
of PD.
Teo Kim Hoe
--- End Message ---
Is it helpful for the PD patient to do blood test i.e Micronutrients and
Hormone thereapy?
Mircronutrients i.e. Lab. Evaluations on Antioxidant, Vitamins and
Minerals.
************************************
Dear Friend,
I think it's very important to establish a baseline for iron, homocysteine, B12, B6, folate, and riboflavin. Regarding hormones, that would be up to an endocrinologist; however, there have been some studies regarding both estrogen and testosterone as they relate to women and men with PD, and here, you might address your question to "Ask the Doctor." Dr. Okun has done research in the area of testosterone. Go to:
http://www.parkinson.org/
click on:
PD is a movement disorders disease. It is a richman disease.
Doctors find difficulty to detect when it comes at an early stage. As
human grows older our movement and coordination goes slow.Besides PD has
different symptoms on our bodies and varies one after by other
As PD is a progressive disease and does not check at early stage it turns
worsen as our movement goes stiffness and ridigity. It affects our
voice,digestion, eyes sight, face expression and slowdown our muscles
movements and coordination.
It is hard to recovery when it comes to certain stages of PD. They will
die on bed and die on liver, kidney affection or pneumoccal disease/
My family have three PD patients. Two of them do not believe that they are
PD. They do not trust doctors and physcial trainers that can help them to
slowdown the disease They regard it as aging as they grow older and some
doctors believe too.They take vitamins to supplement their bodies. It is a
waste of monies.
They do not believe PD medication that can slowdown the movement
disorders They see different field of specialists besides the PD
neurogolists. As the result it is too late to check the diseases. They are
in stage 3 to stage 4. They deserve themself for not believing and
trusting the doctors. Nobody can help unless they help themselves.
Kim HOe Teo
******************************
Dear Kim
Thank you for making some excellent points. In some people, PD can be very difficult to diagnose, and indeed, many people have been mis-diagnosed in the past. It is very important to find a good neurologist and physical therapist (and dietitian!) to help maintain good health.
Best regards,
Kathrynne Holden, MS, RD
--
For a Parkinson Tip of the Day visit:
http://www.nutritionucanlivewith
Dear Mr. Kim Hoo Teo,
Please find the following message replied to you by Dr. Hansa.
***********************
Dear Mr. Hoe,
I believe that what you did and what you wrote are excellent, keep on
with the good work.
Sincerely yours,
Hansa Chavalithamrong.M.D.
I received treatment of Hormone and Mircronutirents from Vitallife =
Wellness Centre at Bumrungrad Hospital International NO. 210 Sukhumvit 1 =
(Soi Ruennrudee) Wattan,Bangkok 10110 Thailand
Website: www.e-vitallife.com
Email: info@e-vitallife.com
You can surf the website.
Please kindly comment on Hormone and Mircronutrients therapy. Is it =
helpful for PD patients?
Best regards
Teo Kim Hoe
**************************************
Dear Teo,
It is difficult for me to give a good opinion, because I have never visited Bumrungrad facilities; but it appears to me to be a very sound and comprehensive program. I like the fact that individuals are seen by an entire health care team -- physician, pharmacist, laboratory specialists, nutritionist, exercise physiologist. I think this is particularly important for those with PD.
Regarding your hormone and nutrient therapy, if you have had the thorough testing described on the website, and been prescribed these by a Bumrungrad physician, then it seems to me that you are in very good hands. You might ask the doctor about the amounts of vitamin A, and find out whether iron is included, just to be on the safe side.
Best regards,
Kathrynne Holden, MS, RD
Why PD patient has problem with speech? He has soft voice i.e. not strong
enough to be listened
Over 89% of people with PD have difficulties with speech and voice. The symptoms that occur first are changes in voice including soft voice, monotone, and sometimes hoarseness or breathiness. These changes can make it difficult for a person with PD to be heard and understood. There is a speech therapy program that has been very successful in improving communication in people with Parkinson disease called LSVT/LOUD! I have provided some additional information below about the speech treatment, how to find certifed clincians, and what you should expect if you were to receive LSVT/LOUD. The most important thing is to do something about improving voice/speech NOW. Communication is a vital element in self-confidence and is something that you CAN do something about.
Dear Dietitian,
I fully agree that large investment are invested on diseases that you have
mentioned by underdeveloped countries
In view of the above we are shortage of PD neuroglists
as I mentioned there are 4 PD neuroglists in Singapore and one in Malaysia.
As the result PD patients were diagnosed by doctors as ageing diseases and
wrongly diagnosed caused the PD patients aggravate the disease to die on PD.
They have no chance to be normal. A high number of PD patients are
increasing. I feel sorry for it. '
Teo Kim Hoe
****************************************
Dear Teo,
I too am very sorry that information, resources, and neurologists specializing in PD are all so scarce. I very much hope that this news will spur more research, and cause more physicians to become aware of PD and the need for accurate diagnosis. Your posts have made me aware of the great need that exists in your area of the world, and doubtless other countries as well.
Best regards,
Kathrynne Holden, MS, RD
--
Thank you for your email,
> As a PD patient I try my best to share my experience on how I manage my PD
> movement; as it is my pleasure and obligation to help the PD patients.
>
> In this connection I wish to recommend that Rolfing integration
> instructual
> message is good for the :PD beginners. It will upright your body posture
> and
> broaden your shoulder and jaw. You will look taller. It relieves your
> unexpression face with beautiful smile. It is a 10 session courses. Surf
> your website www.rolfing to find out.
>
Posted: Wed Mar 07, 2007 4:31 am Post subject: PD a progressive muscles movement disorders disease
--------------------------------------------------------------------------------
Muscle a tissue whose cells have the ability to contract, producing movement or force. Muscles possess mechanisms for converting energy derived from chemical reactions into mechanical energy. The major functions of muscles are to produce movements of the body, to maintian the positions of the body against the force of gravity,to produce movements of structures inside the body, and to alter presures or tensions of structures in the body.
There are three types of muscle i.e. "striated muslce attached to the skeleton, "smooth muscle, which is found in such tissues as the stomach, gut and blood vessels, and cardia muscle which forms the walll of the heart..
PD patients lose the abilty to monitor of the body muscles movement ie. striated muscles, smooth muscle and cardia muscle. Therefore they have
body tremor, rigidity and a poverty of spontaneous movement. The common symptom is tremor which affects one hand, spreading first to the other limbs. The patients have am expressionless face, unmodulated voice , an increasing tendency to stoop, and a shuffing walk.
The late treatment of PD patients will developing more diseases, ie. constipation, poor vision, swallow, anxiety with brain and nerve breakdown, heart failure, liver, kidney diseases.
TEI KIM HOE
am now taking sinemet 25/100 one tablet three times a day and Jumex 5gm one tablet morning and lunch only for the past of two and half years when I was diagnosed as PD patient i.e. year 2005 Sept.
In the year of 2005 to 2006 I did not feel tired or ever took a break when I was taking part different gmx classes at gmx centre for two to three hours from Mon to Friday i.e body pump, comeback, yoga, pilate , ABT and spinning whatever the gmx classes were available.
I am now different in the year of 2007 my physical condition do not allow me to continue gmx exercises after one hour as I am tired and exhausted. i.e. wearing.
I have a health check and they are normal. Blood and heart are at normal level.
I understand my PD medications have a wearing off .Is it the time for me to consult the specialist for my problem? Is it the time for me to increase the doses or for an alternative medicine ?
Teo Kim Hoe
Back to top
Kathrynne Holden, MS, RD
Joined: 22 Jan 2007
Posts: 0
Location: www.nutritionucanlivewith.com
Posted: Fri Mar 23, 2007 10:58 pm Post subject:
--------------------------------------------------------------------------------
Dear Teo,
You appear to have PD very well controlled to be able to exercise so faithfully all this time. And one hour of exercise a day is a lot, whether one has PD or not.
However, PD does progress, and it is very possible that although you have slowed the progression with your excellent routine, it could be time to re-evaluate your medications. You may have reached a point where you require a bit more Sinemet.
I recommend you post your question to “Ask the Doctor;” the NPF doctors are renowned PD specialists and can give excellent guidance in this respect. Click on “Discussion Corner Forum Index,” and then on “Ask the Doctor.”
_________________
Best regards,
Kathrynne Holden, MS, RD
--
For
and exerc
--------------------------------------------------------------------------------
Anonymous wrote:
In reply to your email I wish to explain the reasons why I have energy to continue faithfully exercises in the gyx as follows:
Is it my exercises cell in my body that allow me to do so as I am exercising in gyx for the past of 20 years before I am diagnosed as PD patient in 2005?
Is it I am able to overcome/improvement my disorderly movement i.e building up and strengthen muscles flexibilty and mobility that I feel tired and exhausted after two years of medications?
Is it my aging that do not allow me to spend more than one hour in the gmx as I am now 68 years old?
Is it I am not feeling tired and exhaused as my disorderly movement are not flexibility, mobility and stretchable during the gyx ?
Is it my medication wearing off or alternative?
TEO KIM HOE
Dear Teo,
Your faithful exercise regime over twenty years has stood you in good stead – and is still doing so. Keeping the muscles strong, the bones dense, and the balance and posture supple and erect allows for good gait, better and deeper breathing, and more stamina. Very few folks of your age, even those who don’t have PD, are able to do so well, because most of us haven’t practiced such a good and healthful regime all our lives.
Advancing age does slow us all, however, sooner or later. In your case, much later than for most people. And, PD itself gradually progresses, and this adds to the slowing and tiredness.
You are doing most remarkably well in managing your PD symptoms; however, it nevertheless may be time to discuss medications with your neurologist. This is outside my scope of practice, you must talk with your doctor regarding type, amount, and/or timing of medications. It is very possible that a slight change in the amount of Sinemet might be just what you need. Write back and let us know.
_________________
Best regards,
Kathrynne Holden, MS, RD
Posted: Wed Mar 28, 2007 11:34 am Post subject:
--------------------------------------------------------------------------------
Teo you are my hero!!68 years young and working out in the gym for"only" one hour--I'm feeling really embarrassed at 63 years old and hardly ever make t to the gym at all!!
I understand there are so far few articles touch on subject on Breathing
with PD patients.
There are many types of breathing in which the rhythm, rate or character
is abnormal.
Kindly elaborate the types of breathing with some of the PD patients.
Breathing is the alternation of active inhalation of air into the lungs
through the mouth or nose with the passive exhalation of the air. As PD
patients have stiffness muscles and slowdown movement some PD have
reduction in nasal airflow with Breathing. They have cyclical variation
in the rate, which becomes slower until breathing stops for several
seconds before speeding up to a peak and then slowing again.It occurs when
the sensitivity of the respiratory centres in the brain ia impaired .
Therefore most PD die on pneumococal disease
Teo Kim Hoe
*****************************************
Dear Teo,
You're right, there is very little information or research on the problems caused by breathing difficulties in PD. I believe that in some cases dystonia (abnormal contraction of the muscles) of chest muscles can lead to abnormal breathing. But I have seen little to no research on breathing problems or their causes.
However, there have been a number of studies of the many benefits of exercise for those with PD, and exercise affects breathing. Tai chi, walking, stretching, and other forms of exercise have all been shown to make great improvements in health; and I am certain that in part this is due to improved breathing.
Thank you for bringing this to our attention, it's a very important point.
Best regards,
Kathrynne Holden, MS, RD
Hormone therapy and micronutrients
Body: Dr. Okun,
Is Hormone therapy andlab. evaluations on antioxidant & Micronutrients
helpful for PD patient? It includes Vit.C,A ,Q10 vit. & minerals
Your early reply will be appreciated.
Kim hoe teo
*****************
The only one with preliminary positive evidence of the above that I endorse for my patients is Co-Q10. The others are not solidly proven.
Michael S. Okun
Thank you for your comment.
Your massages are the encouragement for those PD patients who are eager to
find ways and means to slowdown
the PD and leading to healthy lifestye.
Praise Lord'
Thank you for your email.
I am glad that there will have more research on PD's difficulties of
breathing i.e. abnormal contraction of the muscles) of chest muscles can
lead to abnormal breathing as most patients die on abnormal breathing.
Exercises by PD patients be guided by qualified trainers as to relieve them
for abnormal contraction of the muscles for breathing. PD movement disorder
specialists be trained in this field as it is helpful for them.
Teo Kim Hoe******************
I fully agree that Yoga is good for PD patients but it is only helpful for
the PD begineers.
It is also a risks for the PD patients if they are not properly guided by
yoga teachers as they are not trained with physical therapy course.
Yoga needs a lot of muscles stretching and breathing. Some PD have
difficulties therefore are not suitable for them. Yoga mediation is the
best for the PD patients as it relax your anxiety and muscles stiffness.
Teo Kim Hoe
From: thamseng@tm.net.my
To: Teo Kim Hoe
Sent: Tuesday, March 27, 2007 2:14 PM
Subject: Hei brother
Dear Brother Teo,
Thanks for remembering me after a long time since I served the Lord full time as a missionary.
I received all the 50 plus emails and attachemnets. I didn't have time to read them all. as I'm making a ministry trip to China this Saturday with my wife. As I said on the phone, I shall be back to Malaysia on April 18.
From what you told me on the phone and what I read in some of the mails, I understand you must have suffered a lot because of PD. I could only encourage you to continue to know God's will and trust in Him in this matter. I too will remember you before the Lord.
After reading through some of the mails, I'm not too sure if it's your intention to publish them in printed form. While I think the booklet will surely help some people who are suffering or likely to suffer PD, I don't know many will be interested to pick it up let alone buying it for reading. I thank you should continue to seek God's will if this is what you can do for His Kingdom at this juncture of your life. If you still insist on doing it, I think I'll try recommend a sub-editor to handle that for you.
I don't foresee myself doing it as my time is very much involved in some other priorities. Apart from travelling to my ministries in Myanmar and China, I've in fact just started writing a small book on the "Back to Jerusalem" movement (回归耶路撒冷运动). It's about missionary endevor with the Uighurs Muslim in Xinjiang and Central Asia. After I've finished with that, I plan to move on with writing about the ministry my wife and I are doing in the Opium land of Shan state, Myanmar. We operate a free school for teh children of te ex-opium children in Kokang(果敢). Kokang is under t control of Chairman Peng Jiasheng (彭家声主席) a former opium warlord and a top leader of the Burmese Communist Party.
I shall send you my lastest ministry report for your attention. I shall contact you when I come back from China where I also have a ministry in the 女儿国 at Yunnan-Sichuan border.
My prayerful regards
thamseng
From: thamseng@tm.net.my
To: Teo Kim Hoe
Sent: Thursday, March 29, 2007 2:54 PM
Subject: Re: I am a hero
Dear Brother Teo,
As I'm leaving for China coming Sunday and I usually won't read my mails while overseas, I suggest that you stop emialing me. One reason is that your incessant mails are jamming up my box. Since you intend to have them compiled and printed, may I suggest that you save all the mails in a CD and post it to me at: 25, Jalan Indah 4, Ampang Indah 68000 Ampang, Selangor. Or wait till I come back so that I can come and collect it from you.
Prayerful regards
Tham Seng
Dear Kathrynne. Is it true that when you juice fruits and vegetables,you
have to drink the juice right away or it loses its nutrients? Thank You..
Terry
****************************************************
Dear Terry,
Well, yes and no. It won't immediately lose ALL nutrients, but exposure to air and light will certainly start the process of degradation in fragile vitamins -- like vitamin C, for example. Storage for a day won't cause a total loss, but the sooner you drink it, the better.
Best regards,
Kathrynne Holden, MS, RD
--
We find so few researh on the PD patients for the treatment of their
difficulties with vision by Movement Disorders Specialists, They leave
them to the eyes specialists whom are not specialised with the movement
disorders. They end up with no solution on how to treat them with proper
vision.
Our eyebrow are controlled by three pairs of extrinsic eye muscles i.e
eyelids, conjunctiva and lacrimal apparatus. PD patients have imbalance of
the muscles the move the eyes. Symptoms are usually aching or burning of
the eyes, accompanied by headache and even general fatigue. However it
varies from one by other and do not apply to every patient. Some PD have
poor vision on driving as it is too dangerous to walk alone too. Kindly
advise.
Teo Kim Hoe
Yoga is good for PD beginners.
The yoga teacher should be well trained on how to help the PD patients. It
is too dagerous for the PD patients to do certian postures that are not
suitable for them.
It is a muscle stretching and mediation exercises that help them to relax
and relieve from muscles stiffness. It helps you to breathing normally. It
is a part of respiration. As some of PD have breathing in which the
rhythm, rate or character is abnormal.
Besides Yoga pilate is also good for PD patients.
Teo Kim Hoe
**************
Doctors of Movement Disease are trained on how to teach patients to
control the Parkinson Diseases by medication but not trained on how to
teach patients to well managedthe PD diseases. Therefore we have so few
articles on how to teach PD patients to well managedthe PD diseases.
Doctors of Movement Disease have the problems on how to teach PD patients
to well managedthe PD as their symptoms vary from one by others. It is
very complicated and difficuly to diagnose unless they take times. They
have to cooridinate with other specialists to work hand to hand. It
involves times and monies. Besides that they are limited by their own
specialised field.
To well manage the PD vary from one by other as they have different
symptom. Therefore it is hard to fix a standard programe for them.
Surf the website to find the symptoms of PD.
I hope there will have more articles on how to teach the patients on how
to well managed the PD.
Teo Kim Hoe
********************************
A comment: NPF offers a series of educational booklets, free to the public. These may be ordered by phone or email, or downloaded at the website:
www.parkinson.org.
Best regards,
Kathrynne Holden, MS, RD
Some PD patients do not acknowlege that they are PD after they are
diagnosed by Movement Disorder specialists. They do not take the PD
medications as there are some sideffects. They do not want to learn how to
manage the diseases to slowdown from its progression. As PD symptoms
aggravates every 3 to 5 years it is too late for them to be normal.
As movement disorder specialists teach the PD on how to control the PD by
medications they do not learn how to manage the diseases. Therefore some
PD patients find difficulty to manage the diseases. No program so far are
available for PD patients to learn how to manage the diseaes as it ia very
complicated and vary from one person by other. Research find difficulty to
prepare the programs as PD have different stages. The symptoms of PD
avery from one to others.
I hope the reseach can overcome the above to drawnup a programs for
different stages of PD on how to manage the disease.
TEO KIM HOE
--- End Message ---
*****************************************************
I fully agree that Yoga is good for PD patients but it is only helpful for
the PD begineers.
It is also a risks for the PD patients if they are not properly guided by
yoga teachers as they are not trained with physical therapy course.
Yoga needs a lot of muscles stretching and breathing. Some PD have
difficulties therefore are not suitable for them. Yoga mediation is the
best for the PD patients as it relax your anxiety and muscles stiffness.
Teo Kim Hoe
--- End Message ---
*****************************************************
You are currently
Some PD patients do not acknowlege that they are PD after they are
diagnosed by Movement Disorder specialists. They do not take the PD
medications as there are some sideffects. They do not want to learn how to
manage the diseases to slowdown from its progression. As PD symptoms
aggravates every 3 to 5 years it is too late for them to be normal.
As movement disorder specialists teach the PD on how to control the PD by
medications they do not learn how to manage the diseases. Therefore some
PD patients find difficulty to manage the diseases. No program so far are
available for PD patients to learn how to manage the diseaes as it ia very
complicated and vary from one person by other. Research find difficulty to
prepare the programs as PD have different stages. The symptoms of PD
avery from one to others.
I hope the reseach can overcome the above to drawnup a programs for
different stages of PD on how to manage the disease.
TEO KIM HOE
Doctors find difficulty to detect when it comes at an early stage. As
human grows older our movement and coordination goes slow.Besides PD has
different symptoms on our bodies and varies one after by other
As PD is a progressive disease and does not check at early stage it turns
worsen as our movement goes stiffness and ridigity. It affects our
voice,digestion, eyes sight, face expression and slowdown our muscles
movements and coordination.
It is hard to recovery when it comes to certain stages of PD. They will
die on bed and die on liver, kidney affection or pneumoccal disease/
My family have three PD patients. Two of them do not believe that they are
PD. They do not trust doctors and physcial trainers that can help them to
slowdown the disease They regard it as aging as they grow older and some
doctors believe too.They take vitamins to supplement their bodies. It is a
waste of monies.
They do not believe PD medication that can slowdown the movement
disorders They see different field of specialists besides the PD
neurogolists. As the result it is too late to check the diseases. They are
in stage 3 to stage 4. They deserve themself for not believing and
trusting the doctors. Nobody can help unless they help themselves.
Kim HOe Teo
******************************
Dear Kim
Thank you for making some excellent points. In some people, PD can be very difficult to diagnose, and indeed, many people have been mis-diagnosed in the past. It is very important to find a good neurologist and physical therapist (and dietitian!) to help maintain good health.
Best regards,
Kathrynne Holden, MS, RD
--
For a Parkinson Tip of the Day visit:
http://
Posted: Sat Mar 24, 2007 9:39 am Post subject: medication and exercises 3
--------------------------------------------------------------------------------
In reply to your email and I am now increasing from 1 to 1 1/2 dose of Sinemet in the evening. You will be informed on any progress after the medications in a week.
Teo Kim Hoe
Back to top
Dr. Okun
Joined: 19 Jan 2007
Posts: 0
Location: University of Florida
Posted: Sat Mar 24, 2007 6:35 pm Post subject:
--------------------------------------------------------------------------------
Thanks. Be sure to only make changes under your doc's guidance.
_________________
Michael S. Okun, M.D.
Back to top
Anonymous
Posted: Sat Mar 31, 2007 6:10 am Post subject: medication and exercises 3
--------------------------------------------------------------------------------
I have increased my Sinemet from one to two doses in the evening.
After the medication I feel better and continue my exercises without tired and exhausted. I went to see my doctor and he was pleased that I was able to monitor and optimized my medication and PD as some of his patients did not know and had to depend on him each time.
What do you mean optimized i.e combination the medication with PD?
Is it very subjective? How to measure and optimize them?
Any differences for the increased medication to take it in the morning/ afternoon i.e optimize the effectivenss combination the medication with PD?
TEO KIM HOE
optimization is using the right combination of medications at the right times. You will know because you will feel like you are having consistent benefit throughout the day.
Yes, it is subjective. (As much as I as your doctor think you are doing well, you have the last word).
_________________
Ramon L Rodriguez, MD
Posted: Fri Mar 23, 2007 5:39 am Post subject: Q: medication and exercises
--------------------------------------------------------------------------------
I refer to my email on the above subject.
Is it that I am able to taking part gmx classes exercises for two to three hours in the year of 2005 to 2006 without feeling tired and exhausted as I have movement disorders?
Is it now I am feeling tired and exhausted during one hour gxm in the year of 2007 as I have overcome/ improvement my movement disorders after taking the medications and exercises?
Teo Kim Hoe
Back to top
Dr. Fernandez
Joined: 20 Jan 2007
Posts: 0
Posted: Fri Mar 23, 2007 4:08 pm Post subject:
--------------------------------------------------------------------------------
I believe I just answered your previous exercise question
Visual acuity is usually not impaired tremendously in PD. What is most commonly impaired is the ability of the eyes to work together. What may happen is that the person with PD develops what is called convergence insufficiency and this leads to double vision particularly when things are close to the eyes. Solutions include prisms and holding books and things further from the eyes.
There are many other causes of visual problems and therefore I always recommend a neuro-opthalmological examination.
Please note, to use the forum in the future you will need to log in at www.parkinson.org and register with a new username and password as we have updated the old system which will soon go offline.
Michael S. Okun, MD
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