To live and to die is our life cycles. Born to live and to die in our journey.
To live with pride is better die in suffering with illness. Stay healthy is our wealth and the blessing.
Praise Lord
Monday, May 31, 2010
Wednesday, May 19, 2010
progression of PD
Symptoms of Parkinson's usually begin slowly, develop gradually and in no particular order.
Everyone with Parkinson's is very different and may have a different collection of symptoms and response to treatment.
The nature and severity of symptoms and the rate at which the condition progresses will also be individual. The symptoms may take years to progress.
However, since Parkinson's is a progressive condition, symptoms will worsen over
time and new ones may appear. It is difficult to estimate how quickly or slowly Parkinson's
will progress in each person. It may progress more quickly in people who are older when the
symptoms first begin.
Currently, there is no cure for Parkinson's. However, many of the motor symptoms can be
treated with medications. Medications used to treat the symptoms either replace the lost
dopamine or mimic the action of dopamine in the brain. Medications can alleviate the symptoms,
but do not slow the progression of Parkinson's. As the symptoms change, medications will need
to be adjusted
Everyone with Parkinson's is very different and may have a different collection of symptoms and response to treatment.
The nature and severity of symptoms and the rate at which the condition progresses will also be individual. The symptoms may take years to progress.
However, since Parkinson's is a progressive condition, symptoms will worsen over
time and new ones may appear. It is difficult to estimate how quickly or slowly Parkinson's
will progress in each person. It may progress more quickly in people who are older when the
symptoms first begin.
Currently, there is no cure for Parkinson's. However, many of the motor symptoms can be
treated with medications. Medications used to treat the symptoms either replace the lost
dopamine or mimic the action of dopamine in the brain. Medications can alleviate the symptoms,
but do not slow the progression of Parkinson's. As the symptoms change, medications will need
to be adjusted
complication of PD
Parkinson's disease is often accompanied by these additional problems:
■Depression. Depression is common in people with Parkinson's disease. Receiving treatment for depression can make it easier to handle the other challenges of Parkinson's disease.
■Sleep problems. People with Parkinson's disease often have trouble falling asleep and may wake up frequently throughout the night. They may also experience sudden sleep onset, called sleep attacks, during the day.
■Difficulty chewing and swallowing. The muscles you use to swallow may be affected in the later stages of the disease, making eating more difficult.
■Urinary problems. Parkinson's disease may cause either urinary incontinence or urine retention. Certain medications used to treat Parkinson's also can make it difficult to urinate.
■Constipation. Many people with Parkinson's disease develop constipation because the digestive tract works more slowly. Constipation may also be a side effect of medications used to treat the disease.
■Sexual dysfunction. Some people with Parkinson's disease may notice a decrease in sexual desire. This may stem from a combination of psychological and physical factors, or it may be the result of physical factors alone.
Medications for Parkinson's disease also may cause a number of complications, including involuntary twitching or jerking movements of the arms or legs, hallucinations, sleepiness, and a drop in blood pressure when standing up.
■Depression. Depression is common in people with Parkinson's disease. Receiving treatment for depression can make it easier to handle the other challenges of Parkinson's disease.
■Sleep problems. People with Parkinson's disease often have trouble falling asleep and may wake up frequently throughout the night. They may also experience sudden sleep onset, called sleep attacks, during the day.
■Difficulty chewing and swallowing. The muscles you use to swallow may be affected in the later stages of the disease, making eating more difficult.
■Urinary problems. Parkinson's disease may cause either urinary incontinence or urine retention. Certain medications used to treat Parkinson's also can make it difficult to urinate.
■Constipation. Many people with Parkinson's disease develop constipation because the digestive tract works more slowly. Constipation may also be a side effect of medications used to treat the disease.
■Sexual dysfunction. Some people with Parkinson's disease may notice a decrease in sexual desire. This may stem from a combination of psychological and physical factors, or it may be the result of physical factors alone.
Medications for Parkinson's disease also may cause a number of complications, including involuntary twitching or jerking movements of the arms or legs, hallucinations, sleepiness, and a drop in blood pressure when standing up.
early onset of PD progression
It is difficulty to interpret what and how the symptoms of early onset-slower progression?
As PD is a bouquet disease and is individual that have motor and non motor symptoms.
They do not come at the same time or together it is individual and the timing is different too.
As for me my PD is genetic/inherited as I have two brothers are PD. They are at the rate of three and four of PD and are at fast progression. They are at the age of 56 and 76 years old.
I have the symptoms of PD when I was at younger age.
I was diagnosed at the age of 65 years old as PD
Due to my determination and perservation and knowledge of the disease and medication I learn to fight the disease to slowdown from its progression. I am lucky by Lord grace I manage to slowdown my motor symptoms by strenous exercises however I still have non motor symptoms I pray the Lord for wisdom to be able to overcome early. Kindly visit website (Heroteo- the chronicles of a parkinson’s fighter ) .
4 people marked this post as helpful.
As PD is a bouquet disease and is individual that have motor and non motor symptoms.
They do not come at the same time or together it is individual and the timing is different too.
As for me my PD is genetic/inherited as I have two brothers are PD. They are at the rate of three and four of PD and are at fast progression. They are at the age of 56 and 76 years old.
I have the symptoms of PD when I was at younger age.
I was diagnosed at the age of 65 years old as PD
Due to my determination and perservation and knowledge of the disease and medication I learn to fight the disease to slowdown from its progression. I am lucky by Lord grace I manage to slowdown my motor symptoms by strenous exercises however I still have non motor symptoms I pray the Lord for wisdom to be able to overcome early. Kindly visit website (Heroteo- the chronicles of a parkinson’s fighter ) .
4 people marked this post as helpful.
Is PD a Disease?
Parkinson's disease does not have disastrous effects on earth. You are not the disease, coincidence or disease carrier who passes a disease to other people.
Knowledge is the power to help us to understand the disease. Accept the disease to change our life but not life threaten and lead a well balanced healthy life by attending to ALL your needs-- physical, emotional, intellectual, and spiritual--and strengthening your connection to others, nature, and the divine, you can achieve optimal welness and go beyond your disease. You can focus on living well inspite of the illness. PLM forum is the effective media for us to learn from each other the causes,treatment,symptoms, culture, belief, customs, languages and etc
PLM is opened for different colours to rasie the awareness of PD. PLM makes the world differences.
Knowledge is the power to help us to understand the disease. Accept the disease to change our life but not life threaten and lead a well balanced healthy life by attending to ALL your needs-- physical, emotional, intellectual, and spiritual--and strengthening your connection to others, nature, and the divine, you can achieve optimal welness and go beyond your disease. You can focus on living well inspite of the illness. PLM forum is the effective media for us to learn from each other the causes,treatment,symptoms, culture, belief, customs, languages and etc
PLM is opened for different colours to rasie the awareness of PD. PLM makes the world differences.
Sunday, May 16, 2010
PLM outlook for future
Billy, Teo, Kevin.....Thank you for your input in this topic. Your 3 different styles of assurance is what touched me the most. All 3 of you had much importance in what you said. That is what I love about PLM, everyone offers their own style and comes to the aid of someone when needed. Each one heartfelt and sincere. That is what makes this site so wonderful!
The People that offer Scientific and Medical info. is also a necessary contribution to this site, I appreciate your generous input too.
Thank you everyone, for being YOU!
I thank Lord for the blessing.
I count the blessings to be glad because of the good things that you have.
I do not have worry and there is a safe journey, protection and help from YOU.
The People that offer Scientific and Medical info. is also a necessary contribution to this site, I appreciate your generous input too.
Thank you everyone, for being YOU!
I thank Lord for the blessing.
I count the blessings to be glad because of the good things that you have.
I do not have worry and there is a safe journey, protection and help from YOU.
Friday, May 14, 2010
Tuesday, May 11, 2010
How often do your share your PD?
They are not interested unless they are PD sufferers.
Therefore I am selective to share with them.
I hate to be told that I am not a doctor and how I know so much?
Therefore I am selective to share with them.
I hate to be told that I am not a doctor and how I know so much?
Mental decline, Impulsive behavior
According to website MayoClinic.com, which offers tons of advice on mental and physical health related issues, impulsive behavior disorder is associated with two common misbehaviors, inattention and hyperactivity.
Inattention behavior includes; lack of ability to focus, regular instances of unreasonable distraction, unorganized conduct in thoughts and actions, resistance in putting forth effort, and irrational absentmindedness. While these are all typical behaviors that all children will present if they interfere with everyday life it could be considered an impulsive behavior disorder.
Hyperactivity behavior includes; continuous restlessness, inability to follow through when instructed, reckless activity which happens regularly, constant attention seeking by being loud and outrageous, impatience even during short time periods, and unawareness of common manners. As with inattention behaviors these signs individually are to be expected, but when excessive can lead to greater problems.
Inattention behavior includes; lack of ability to focus, regular instances of unreasonable distraction, unorganized conduct in thoughts and actions, resistance in putting forth effort, and irrational absentmindedness. While these are all typical behaviors that all children will present if they interfere with everyday life it could be considered an impulsive behavior disorder.
Hyperactivity behavior includes; continuous restlessness, inability to follow through when instructed, reckless activity which happens regularly, constant attention seeking by being loud and outrageous, impatience even during short time periods, and unawareness of common manners. As with inattention behaviors these signs individually are to be expected, but when excessive can lead to greater problems.
Progression of PD
Symptoms of Parkinson's usually begin slowly, develop gradually and in no particular order.
Everyone with Parkinson's is very different and may have a different collection of symptoms and response to treatment.
The nature and severity of symptoms and the rate at which the condition progresses will also be individual. The symptoms may take years to progress.
However, since Parkinson's is a progressive condition, symptoms will worsen over
time and new ones may appear. It is difficult to estimate how quickly or slowly Parkinson's
will progress in each person. It may progress more quickly in people who are older when the
symptoms first begin.
Currently, there is no cure for Parkinson's. However, many of the motor symptoms can be
treated with medications. Medications used to treat the symptoms either replace the lost
dopamine or mimic the action of dopamine in the brain. Medications can alleviate the symptoms,
but do not slow the progression of Parkinson's. As the symptoms change, medications will need
to be adjusted.
4 people marked this post as helpful.
Everyone with Parkinson's is very different and may have a different collection of symptoms and response to treatment.
The nature and severity of symptoms and the rate at which the condition progresses will also be individual. The symptoms may take years to progress.
However, since Parkinson's is a progressive condition, symptoms will worsen over
time and new ones may appear. It is difficult to estimate how quickly or slowly Parkinson's
will progress in each person. It may progress more quickly in people who are older when the
symptoms first begin.
Currently, there is no cure for Parkinson's. However, many of the motor symptoms can be
treated with medications. Medications used to treat the symptoms either replace the lost
dopamine or mimic the action of dopamine in the brain. Medications can alleviate the symptoms,
but do not slow the progression of Parkinson's. As the symptoms change, medications will need
to be adjusted.
4 people marked this post as helpful.
Monday, May 10, 2010
unsteadiness
Some patients do not notice early symptoms of the disease until all at once when they try to walk. Some patients initially end up taking on a type of stance or posture called the Parkinson's Gait. This is a type of unsteadiness and clumsiness that occurs when walking or standing. The body may lean forward or backward or may be hunched over. The patient may be forced to take small steps in a shuffling motion in order to reach their destination
Q & A
10 Questions to Ask Your Doctor About Parkinson’s
1. Can you determine the reason I developed Parkinson's disease?
2. What are my treatment options?
3. What are the pros and cons of each treatment?
4. What short-term and long-term side effects can I anticipate from the treatment? Is there anything I can do to minimize them?
5. Can you recommend any support groups for my family and me?
6. Are there any nondrug options that might help? What lifestyle modifications can I make to help me feel better?
7. Are there any foods, supplements, or over-the-counter medications I should avoid?
8. Where can I find more information about the illness?
9. Can you recommend any relaxation and stress-relief techniques?
10. Are there any clinical trials I can participate in?
WebMD Medical Reference
1. Can you determine the reason I developed Parkinson's disease?
2. What are my treatment options?
3. What are the pros and cons of each treatment?
4. What short-term and long-term side effects can I anticipate from the treatment? Is there anything I can do to minimize them?
5. Can you recommend any support groups for my family and me?
6. Are there any nondrug options that might help? What lifestyle modifications can I make to help me feel better?
7. Are there any foods, supplements, or over-the-counter medications I should avoid?
8. Where can I find more information about the illness?
9. Can you recommend any relaxation and stress-relief techniques?
10. Are there any clinical trials I can participate in?
WebMD Medical Reference
PLM
I am very impressed by the influence of PatientsLikeMe make the world difference.
There is no boundary beyond the limit of what is acceptable or thought to be impossible. It is tremendous.
Thanking you
There is no boundary beyond the limit of what is acceptable or thought to be impossible. It is tremendous.
Thanking you
Other people do more, wife says
Posted on May 10th, 2010 by heroteo
must be blessed with my wife. Her care and concern for me has always been there and is even more so since I have the PD.
I do exercises in the gym centre daily in between 2 to three hours and surf internet PLM in the late afternoon. I have to strengthen my body and with knowledge to fight the disease.
With her it’s always the opposite..”you’re doing too much”. She’s normaly correct and it catches up with me at the end of the day. My neuro tells her to let me do what I can and so I do, but sometimes too much. As worrier mentioned, ‘PD is a thief’ and I’m going to do as much as I can to ’use it’ before it’s gone
must be blessed with my wife. Her care and concern for me has always been there and is even more so since I have the PD.
I do exercises in the gym centre daily in between 2 to three hours and surf internet PLM in the late afternoon. I have to strengthen my body and with knowledge to fight the disease.
With her it’s always the opposite..”you’re doing too much”. She’s normaly correct and it catches up with me at the end of the day. My neuro tells her to let me do what I can and so I do, but sometimes too much. As worrier mentioned, ‘PD is a thief’ and I’m going to do as much as I can to ’use it’ before it’s gone
Sunday, May 9, 2010
How open are you about sharing the fact you have PD
They are not interested unless they are PD sufferers.
Therefore I am selective to share with them.
I hate to be told that I am not a doctor and how I know so much?
Therefore I am selective to share with them.
I hate to be told that I am not a doctor and how I know so much?
Some tips on living with PD (long version)
10 Questions to Ask Your Doctor About Parkinson’s
1. Can you determine the reason I developed Parkinson's disease?
2. What are my treatment options?
3. What are the pros and cons of each treatment?
4. What short-term and long-term side effects can I anticipate from the treatment? Is there anything I can do to minimize them?
5. Can you recommend any support groups for my family and me?
6. Are there any nondrug options that might help? What lifestyle modifications can I make to help me feel better?
7. Are there any foods, supplements, or over-the-counter medications I should avoid?
8. Where can I find more information about the illness?
9. Can you recommend any relaxation and stress-relief techniques?
10. Are there any clinical trials I can participate in?
WebMD Medical Reference
1. Can you determine the reason I developed Parkinson's disease?
2. What are my treatment options?
3. What are the pros and cons of each treatment?
4. What short-term and long-term side effects can I anticipate from the treatment? Is there anything I can do to minimize them?
5. Can you recommend any support groups for my family and me?
6. Are there any nondrug options that might help? What lifestyle modifications can I make to help me feel better?
7. Are there any foods, supplements, or over-the-counter medications I should avoid?
8. Where can I find more information about the illness?
9. Can you recommend any relaxation and stress-relief techniques?
10. Are there any clinical trials I can participate in?
WebMD Medical Reference
It is difficulty to interpret what and how the symptoms of early onset-slower progression?
It is difficulty to interpret what and how the symptoms of early onset-slower progression?
As PD is a bouquet disease and is individual that have motor and non motor symptoms.
They do not come at the same time or together it is individual and the timing is different too.
As for me my PD is genetic/inherited as I have two brothers are PD. They are at the rate of three and four of PD and are at fast progression. They are at the age of 56 and 76 years old.
I have the symptoms of PD when I was at younger age.
I was diagnosed at the age of 65 years old as PD
Due to my determination and perservation and knowledge of the disease and medication I learn to fight the disease to slowdown from its progression. I am lucky by Lord grace I manage to slowdown my motor symptoms by strenous exercises however I still have non motor symptoms I pray the Lord for wisdom to be able to overcome early. Kindly visit website (Heroteo- the chronicles of a parkinson's fighter )
As PD is a bouquet disease and is individual that have motor and non motor symptoms.
They do not come at the same time or together it is individual and the timing is different too.
As for me my PD is genetic/inherited as I have two brothers are PD. They are at the rate of three and four of PD and are at fast progression. They are at the age of 56 and 76 years old.
I have the symptoms of PD when I was at younger age.
I was diagnosed at the age of 65 years old as PD
Due to my determination and perservation and knowledge of the disease and medication I learn to fight the disease to slowdown from its progression. I am lucky by Lord grace I manage to slowdown my motor symptoms by strenous exercises however I still have non motor symptoms I pray the Lord for wisdom to be able to overcome early. Kindly visit website (Heroteo- the chronicles of a parkinson's fighter )
negative thought to deminish my ability to fight the disease
have experience sideeffect on PD medication interaction with my other medication caused me dizzness, blood pressure,facial masked, sleepless, vivid dream, constipation and slurred speech.
As the result I stopped my vitamin supplements Vit 6, Prostate Xatral, Controlot. I am now normal.
It is affecting my negative thought to deminish my ability to fight the disease.
1 person marked this post as helpful.
As the result I stopped my vitamin supplements Vit 6, Prostate Xatral, Controlot. I am now normal.
It is affecting my negative thought to deminish my ability to fight the disease.
1 person marked this post as helpful.
Wondering too, about how life is for our companions
Life with our partner changes with times.
We have gone good or bad, sweet or sour in our relationship. Shoulder rain and shine together.
I have five years with Parkinson's disease. I am very fortunate by Lord grace that I have retired from business I could spend times doing my research on PD on how to fight the diseases. Praise Lord I manage to slowdown its progression and am glad I am looking normal. Surf PLM forum Secret recipe behind the mask.
My partner is pleased to see my progress and we share our knowledge together on PD. We work together as we have understanding on PD how it affecting our lifestyle- Life changing but not life threatening.
Life is wonderful and full of care. It makes the world go round. There is no time to stand and fear. Be positive or life threaten.
Let us work together to fight the disease. Thank PLM provide us a forum to air our news on how to slowdown tthe PD and the latest medical research on the disease.
Praise Lord
We have gone good or bad, sweet or sour in our relationship. Shoulder rain and shine together.
I have five years with Parkinson's disease. I am very fortunate by Lord grace that I have retired from business I could spend times doing my research on PD on how to fight the diseases. Praise Lord I manage to slowdown its progression and am glad I am looking normal. Surf PLM forum Secret recipe behind the mask.
My partner is pleased to see my progress and we share our knowledge together on PD. We work together as we have understanding on PD how it affecting our lifestyle- Life changing but not life threatening.
Life is wonderful and full of care. It makes the world go round. There is no time to stand and fear. Be positive or life threaten.
Let us work together to fight the disease. Thank PLM provide us a forum to air our news on how to slowdown tthe PD and the latest medical research on the disease.
Praise Lord
Tips for staying up to date on PatientsLikeMe!
It is not enough. PLM should help to be displayed : entry and reporting of medical prescription,its sideeffects, and interactions with parkinson's and other illness.
As some patients have other illness and have interactions/sideeffects with Parkinson's. Some doctors do not have knowledges as they specialise only their own field. Therefore knowledge is power. PLM is a forum for us to share the experiences,understanding the symptoms,treatments,issues,problems: entry and reporting sideeffects, interactions with medications on illness. Evaluate the effectiveness of different drugs and how well the medication is working as well as other illness.
PLM is a record of history of patients how the illness come to them. It is the performance appraisal how well the illness working.
As some patients have other illness and have interactions/sideeffects with Parkinson's. Some doctors do not have knowledges as they specialise only their own field. Therefore knowledge is power. PLM is a forum for us to share the experiences,understanding the symptoms,treatments,issues,problems: entry and reporting sideeffects, interactions with medications on illness. Evaluate the effectiveness of different drugs and how well the medication is working as well as other illness.
PLM is a record of history of patients how the illness come to them. It is the performance appraisal how well the illness working.
Why did you join, and why do you use PLM?
The reasons why I join the PLM Forum because I wanted to tell the world how I fight my Parkinson's disease and hopefully send a message to the readers that there are people suffering from Parkinson disease ("PD") who need public awareness of the existence of PD and the effects physically, emotionally and mentally. With this PLM Forum, I hope to help PD patients to understand the disease and let them know that they are not alone.PD sufferers have movement disorders which could be misdiagnosed or misunderstood as effects of ageing. This misdiagnosis or misunderstanding can be unfortunate for PD patients as PD is a progressive disease whereby early treatment would slowdown the progression of the disease.There are also patients who are reluctant to accept they have PD when they are diagnosed by doctors as they consider themselves suffering from the effect of ageingAs far as I am aware, 2% of the world's population above the age of 60 years are PD sufferers . There are also a small percentage of younger persons who also develop the disease.There are 3 out of 1000 people age 50 and above suffering from this disorder. This number is likely to increase as the population ages.Besides, PD does not have any social, ethnic, economic or geographic boundaries either.I hope that my blog would share my experience on how I cope with PD and to counter /slowdown the degenerative effects of the disease.There are effective medication for the symptoms and patients who seek earlier treatment can continue to lead independent and fruitful lives.Exercise is also essential to the PD sufferer because of the need to maintain good muscle tone, strength and posture.
PLM forum has no boundary between country to country and the limit of what is acceptable or thought to be possible. It is a world organization consisting medical teams, businessmen who are generously give in kind and enjoy giving knowledges,times helping PD sufferers to aware the illness and mean and end to help them.
PLM make the world differences
PLM forum has no boundary between country to country and the limit of what is acceptable or thought to be possible. It is a world organization consisting medical teams, businessmen who are generously give in kind and enjoy giving knowledges,times helping PD sufferers to aware the illness and mean and end to help them.
PLM make the world differences
What is PLM?
I am very impressed by the influence of PatientsLikeMe make the world difference.
There is no boundary beyond the limit of what is acceptable or thought to be impossible. It is tremendous.
Thanking you
There is no boundary beyond the limit of what is acceptable or thought to be impossible. It is tremendous.
Thanking you
Comments about PLM from www.viartis.net
The objective of PLM: providing a better, more effective way to capture valuable results and share them with patients, healthcare professionals, and industry organizations that are trying to treat the disease.
The goal is to enable people to share information that can improve the lives of patients diagnosed with life-changing diseases.
The purpose for patientslikeme.com are created for collecting and sharing real world, outcome-based patient data and are establishing data-sharing partnerships with doctors, pharmaceutical and medical device companies, research organizations, and non-profits.
It is an universal organization and work together beyond colours,culture, customs,languages for the benefit of well being.
Therefore PLM is worth to be trusted by us 'Give and Recieve' for knowlege,health,medication and treatment.
PLM is our family and bad for non members/organization to interfare by twisted our purpose.
Abraham Lincoln once said that you can please some of the people all of the time and all of the people some of the time, but you can't please all of the people all of the time
.
The goal is to enable people to share information that can improve the lives of patients diagnosed with life-changing diseases.
The purpose for patientslikeme.com are created for collecting and sharing real world, outcome-based patient data and are establishing data-sharing partnerships with doctors, pharmaceutical and medical device companies, research organizations, and non-profits.
It is an universal organization and work together beyond colours,culture, customs,languages for the benefit of well being.
Therefore PLM is worth to be trusted by us 'Give and Recieve' for knowlege,health,medication and treatment.
PLM is our family and bad for non members/organization to interfare by twisted our purpose.
Abraham Lincoln once said that you can please some of the people all of the time and all of the people some of the time, but you can't please all of the people all of the time
.
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