Wednesday, December 28, 2011
new year resolution
For most people, New Year's Eve is the time to look ahead to the promises of the coming year, and reflect on the changes we want to make in our lives. Those of us living with Parkinson’s disease too often find ourselves on the sidelines, afraid to dream in the face of our uncertain future. This is unfair to ourselves and to those who care about us.
Each of us must find our own way to put fear, anger, and sadness behind us and get on with the business of living. Although life will never be the way we had planned in our pre-Parkinson’s days, “different” does not necessarily mean bad. More than 13 years into my own journey with Parkinson’s, I assure you that the daily choices we make will impact our quality of life down the road. I’ve chosen my 10 resolutions for 2012 with this in mind and I am sharing them here to inspire and motivate you to make your own resolutions to put yourself on the path to living well with our shared disease:
1. Make daily exercise a priority. Research reveals it is the one thing that may slow disease progression. It also improves overall health and makes us look and feel better.
2. Get more sleep. Sleeping less than 7 hours a night impairs our ability to concentrate, make decisions, and moderate our emotions. It also contributes to weight gain as well as “excessive daytime sleepiness” and “sleep attacks” that compromise safety behind the wheel and in the workplace.
3. Eat better. The foods we eat impact our fitness level and overall health.
4. Focus on what you can do, not what you can’t. I can do things now that I could not even dream of doing in my pre-Parkinson’s, like swimming half a mile at a time. Friends say I am in the best shape of my life except for the fact that I have PD. Yes, except for that!
5. Live in the moment. Do the best you can today and deal with tomorrow when it comes.
6. Don’t allow Parkinson’s to rob you of the good times still awaiting you. Since learning I had PD I have seen both my sons graduate from college and one from law school, danced at one son’s wedding, welcomed a wonderful daughter-in-law into our family, and seen both sons buy houses and host parties for friends and family. Had I given up from the start, look what I would have missed.
7. Take up a new hobby or learn something new.
8. Volunteer to help others and find new purpose for our lives. Each of us has a gift we can share to make a positive impact on the lives of others.
9. Remain an active participant in your healthcare, learning about clinical trials that may benefit you, regularly visiting the websites of the national Parkinson’s organizations to stay up on the latest Parkinson’s-related news, and attending symposia where I can learn from experts in the field.
10. Spend more time with family and friends, creating a support system that can provide outlets for expressing your feelings. Tending to our emotional health is as important as taking care of our physical health.
If your current mental or physical state is not what you desire, now is the time to change course and alter your destiny. The choice is yours.
Sheryl
Tuesday, December 27, 2011
medication errors causes of patient injury
Medication errors are one of the most preventable causes of patient injury, although its incidence varies in different healthcare settings. The sources and avoidance of medication errors are multifactorial and multidisciplinary.Healthcare providers and patients and/or their caregivers have their respective roles to play in reducing the occurrence of medication errors.Patients and/or their caregivers can do so by knowing the medicines, understanding and adhering to instructions, monitoring the effects of the medicines and ensuring there is good communication between patients and their healthcare providers.Dr Milton Lum is a member of the board of Medical Defence Malaysia. This article is not intended to replace, dictate or define evaluation by a qualified doctor. The views expressed do not represent that of any organisation the writer is associated
Thursday, December 22, 2011
seret recipe behind the mask
Hero TeoKuala Lumpur, Malaysiahttp://www.youtube.com/watch?v=sTpu_zBvDMEI
I often smiled when I watched the video recording of my kick-boxing exercise which I uploaded to You Tube. My trainers and videographer told me the same thing – “You do not look like a Parkinson’s patient at all”. Even my doctor shook his head in disbelief and said, “This is shocking. I can’t imagine a 70-year-old Parkinson’s patient doing a very strenuous exercise such as kickboxing. I am sure that you are the only Parkinson’s patient in Malaysia who is doing the kickboxing exercise.”As early as 1998, I already had both the motor and non-motor symptoms. Since my diagnosis in 2002, I went through a period of depression, anxiety, denial and anger. Subsequently, I bounced back after discovering a secret recipe for fighting Parkinson’s, which consisted of: knowledge (is power), exercise, medications, nutrition / supplements and prayer. In my quest for knowledge, I surfed various Parkinson’s websites, raining them with questions, questions and questions. I even started the first Parkinson’s blog in Malaysia (http://www.heroteo.com/). I tried to learn everything about Parkinson’s in order to overcome all complications - the Chinese heroes won the battles by understanding their enemy first. Animal experiments showed that exercise may be neuroprotective. Rats which were forced to exercise had a lesser degree of brain damage after they were exposed to poison. In mice which were made to undergo treadmill exercise, there was increased production of dopamine.Parkinson’s patients are comparable to the car. The medications are needed to help patients to start walking, while fuel or battery is needed to help start the car engine. Exercise is needed to improve the patients’ physical mobility and endurance, while driving helps to recharge the battery. Thus, exercise helps our “engines” warm up before leaving home and keep the “cars” going everyday. Even healthy people such as Bruce Lee, the Chinese Kung Fu master, know that exercise is beneficial. As such, since 2005, I decided to “get physical”. I spend 3-4 hours everyday at the California Fitness gym, doing a wide range of “heavy” exercise such as kick-boxing, weight-training and spinning (indoor cycling). Twice a week, I do yoga exercise at home with the guidance of a trainer.Since this year, my physical condition has drastically improved. I sleep and eat well (I eat to live, and live to eat). I enjoy driving around the Kuala Lumpur city with my wife everyday and going overseas for holiday. I managed to reduce the daily dose of Parkinson’s medications recently. Sometimes, I wonder whether I am just a “normal person” behind the mask.I know that it is technically difficult to prove that exercise has neuroprotective effect in Parkinson’s patients. Despite this, I believe that exercise has slowed down my disease progression. I hope that my video recording will bring hope and happiness to all Parkinson’s patients in this world, by reminding them that they can still live a physically active life.
Wednesday, December 21, 2011
PD swing their arms asmmetrically
Thursday, December 15, 2011
treatment for bipolar disorder
If you suspect that you or someone you know are suffering from bipolar disorder, seek help right away. The earlier you catch bipolar disorder and begin treating it, the better your chances of getting and staying well. An experienced mental health professional can make sure your symptoms are caused by bipolar disorder and get you the treatment you need.
Treatment for bipolar disorder can help you live life on your own terms, without the interference of mood swings. Effective bipolar disorder treatment relieves symptoms, reduces the frequency and intensity of manic and depressive episodes, and restores your ability to function.
In This Article:
What you need to know
Diagnosis
Types of bipolar disorder
Bipolar disorder vs. depression
Exploring treatment options
Medication
Therapy
Complementary treatments
Related links
Print Authors
Text Size
Bipolar disorder treatment: What you need to know
Bipolar disorder is a lifelong condition. It runs an unpredictable course of ups and downs. When left untreated, these ups and downs can be devastating. The recurring manic and depressive episodes that characterize the disease make it difficult to lead a stable, productive life. In the manic phase, you may be hyperactive and irresponsible. In the depressive phase, it may be difficult to do anything at all. Early diagnosis and treatment can help you avoid these problems.
Successful treatment of bipolar disorder depends on a combination of factors. Medication alone is not enough. In order to get the most out of treatment, it's important to educate yourself about the illness, communicate with your doctors and therapists, have a strong support system, make healthy lifestyle choices, and stick to your treatment plan.
Recovering from bipolar disorder doesn’t happen overnight. As with the mood swings of bipolar disorder, treatment has its own ups and downs. Finding the right treatments takes time and setbacks happen. But with careful management and a commitment to getting better, you can get your symptoms under control and live fully.
What are some things I can do that might help me feel better?
Know the difference between your symptoms and your true self. Your health care providers can help you separate your true identity from your symptoms by helping you see how your illness affects your behavior. Be open about behaviors you want to change and set goals for making those changes.
Educate your family and involve them in treatment when possible. They can help you spot symptoms, track behaviors and gain perspective. They can also give encouraging feedback and help you make a plan to cope with any future crises.
Work on healthy lifestyle choices. Recovery is also about a healthy lifestyle, which includes regular sleep, healthy eating, and the avoidance of alcohol, drugs, and risky behavior.
Find the treatment that works for you. Talk to your health care provider about your medications' effects on you, especially the side effects that bother you. There are many options for you to try. It is very important to talk to your health care provider first before you make any changes to your medication or schedule.
Source: Depression and Bipolar Support Alliance
Getting an accurate diagnosis for bipolar disorder
Getting an accurate diagnosis is the first step in bipolar disorder treatment. This isn’t always easy. The mood swings of bipolar disorder can be difficult to distinguish from other problems such as major depression, ADHD, and borderline personality disorder. For many people with bipolar disorder, it takes years and numerous doctor visits before the problem is correctly identified and treated.
Making the diagnosis of bipolar disorder can be tricky even for trained professionals, so it’s best to see a psychiatrist with experience treating bipolar disorder rather than a family doctor or another type of physician. A psychiatrist specializes in mental health, and is more likely to know about the latest research and treatment options. For help finding psychiatrists, psychologists, and other mental health professionals in your community, see Resources and References below
bipolar disorder symptoms
Bipolar disorder typically develops in late adolescence or early adulthood. However, symptoms of bipolar can also manifest during childhood, and some bipolar symptoms develop late in life. Bipolar may be difficult to diagnose as an illness, and some people may suffer for years before the mental illness is properly identified and treated.
The deep mood swings of bipolar disorder may last for weeks or months. Research suggests that bipolar disorder manifests a wide range of symptoms. The main characteristics of bipolar disorder are quick changes from mania to depression and back again. The periods of highs and lows are called "episodes". Mood episodes are intense. The feelings are strong and happen along with extreme changes in behavior and energy levels. The signs and symptoms of manic episodes and depressive episodes follow.
Signs of a manic episode/ mania
Agitation
Aggressive behavior
Decreased need for sleep without fatigue
Denial that anything is wrong
Difficulty concentrating
Drug abuse (especially cocaine, alcohol, and sleeping medications)
Exaggerated optimism
Excessively "high" or euphoric mood
Extreme irritability
Impulsiveness
Increased drive to perform or achieve goals
Increased physical and mental activity and energy
Increased restlessness
Increased sexual drive
Inflated self-esteem
Poor judgment
Provocative, intrusive, or aggressive behavior
Racing thoughts jumping from one idea to another
Risky behaviors
Shopping sprees
Talking very fast
Unrealistic beliefs in one's abilities and powers
Signs of a depressive episode / depression
Chronic pain not caused by physical illness or injury
Decreased energy,
Difficulty concentrating, remembering, making decisions
Feeling fatigued or of being "slowed down"
Feelings of guilt, worthlessness, or helplessness
Feelings of hopelessness or pessimism
Indifference
Irritability, anger, worry, agitation, anxiety
Loss of energy, persistent lethargy
Loss of interest or pleasure in activities once enjoyed, including sex
Recurring thoughts of death or suicide, or suicide attempts
Restlessness
Sad, anxious, or empty mood
Significant changes in appetite
Sleeping too much, or difficulty sleeping
Social withdrawal
Weight loss or gain (unintentional)
It may be helpful to think of the various mood states in bipolar disorder as a continuous range of moods. At one end is severe depression, which is followed by moderate depression and then mild low mood. Normal or balanced mood is somewhere in the middle of the continuum, after which comes mild to moderate mania and then severe mania.
Bipolar disorder may mimic a problem other than mental illness such as alcohol or drug abuse, poor school or work performance, or strained interpersonal relationships. Such problems, in fact, may be signs of an underlying mood disorder. If you experience any symptoms of bipolar disorder, seek medical help as soon as possible. In order to understand the ins and outs of diagnosis, read the next sectiowhich describes how doctors use a bipolar test here.Read more: Bipolar Disorder Symptoms http://ehealthforum.com/health/bipolar_disorder_symptoms-e88.html#ixzz1gZJX9Ul4
Wednesday, December 14, 2011
what does this mean?
PD is movement disorder caused by the brain not producing (enough) dopamine. It is a progressive neurodegenerative disease for which there is no cure. Someday the symptoms will affect my right leg, them my left arm and leg. Other conditions will also affect my mobility. What’s next? I will be making friends with others who have YOPD. Learning from them about their experiences. Sharing my story with them too. I am not the kind of person to just stand on the sidelines watching. I am sure I will become involved with some local and regional support groups. I will be living every day like any other day pre-YOPD. Admittedly, some things I will be a little slow at. When telling a friend about this situation he said to me, with a look of disbelief on his face, “You like a good challenge. You like to be challenged. You’ll do alright”. I shall maintain a positive mental attitude. I have places to go, people to see and things to do. As with all illnesses there is always hope and advancements in medicine. We will be following the medical research world as they work towards a cure
Sunday, December 11, 2011
bipolar and PD
,I am gone to research into bipolar and Parkinson's disorders
My experience why ARE the bipolar's medication after side effects SOME OF THE SYMPTOMS ARE pARKINSON'S DISORDERS'\Why Bipolar disorders is curable but not the Parkinson's disorders?THEY ARE THE SAME FAMILY WHY THEY ARE DIFFERENCES?kindly elaborateRegardsTEOKIMHOE
to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
#2 Dr. Okun
Advanced Member
Group: Ask the Doctor Moderators
Posts: 1,927
Joined: 19-January 07
LocationUniversity of Florida
Posted 28 September 2010 - 09:05 AM
Bipolar and PD are two completely different diseases.Interestingly some patients with bipolar can become Parkinsonian from chronic use of dopamine blocking drugs. Sometimes when in the manic phase the PD symptoms improve.Where they get confused is that they share a lot of the same brain circuitry.
Michael S. Okun, M.D.National Medical Director NPFUF Center for Movement Disorders & NeurorestorationRead More about Dr. Okun at: mdc.mbi.ufl.edu
Back to top of the page up there ^
Saturday, December 3, 2011
personal stories
Secret recipe behind the mask
Hero TeoKuala Lumpur, Malaysia
http://www.youtube.com/watch?v=sTpu_zBvDME
I often smiled when I watched the video recording of my kick-boxing exercise which I uploaded to You Tube. My trainers and videographer told me the same thing – “You do not look like a Parkinson’s patient at all”. Even my doctor shook his head in disbelief and said, “This is shocking. I can’t imagine a 70-year-old Parkinson’s patient doing a very strenuous exercise such as kickboxing. I am sure that you are the only Parkinson’s patient in Malaysia who is doing the kickboxing exercise.”
As early as 1998, I already had both the motor and non-motor symptoms. Since my diagnosis in 2002, I went through a period of depression, anxiety, denial and anger. Subsequently, I bounced back after discovering a secret recipe for fighting Parkinson’s, which consisted of: knowledge (is power), exercise, medications, nutrition / supplements and prayer. In my quest for knowledge, I surfed various Parkinson’s websites, raining them with questions, questions and questions. I even started the first Parkinson’s blog in Malaysia (www.heroteo.com). I tried to learn everything about Parkinson’s in order to overcome all complications - the Chinese heroes won the battles by understanding their enemy first.
Animal experiments showed that exercise may be neuroprotective. Rats which were forced to exercise had a lesser degree of brain damage after they were exposed to poison. In mice which were made to undergo treadmill exercise, there was increased production of dopamine.
Parkinson’s patients are comparable to the car. The medications are needed to help patients to start walking, while fuel or battery is needed to help start the car engine. Exercise is needed to improve the patients’ physical mobility and endurance, while driving helps to recharge the battery. Thus, exercise helps our “engines” warm up before leaving home and keep the “cars” going everyday. Even healthy people such as Bruce Lee, the Chinese Kung Fu master, know that exercise is beneficial.
As such, since 2005, I decided to “get physical”. I spend 3-4 hours everyday at the California Fitness gym, doing a wide range of “heavy” exercise such as kick-boxing, weight-training and spinning (indoor cycling). Twice a week, I do yoga exercise at home with the guidance of a trainer.
Since this year, my physical condition has drastically improved. I sleep and eat well (I eat to live, and live to eat). I enjoy driving around the Kuala Lumpur city with my wife everyday and going overseas for holiday. I managed to reduce the daily dose of Parkinson’s medications recently. Sometimes, I wonder whether I am just a “normal person” behind the mask.
I know that it is technically difficult to prove that exercise has neuroprotective effect in Parkinson’s patients. Despite this, I believe that exercise has slowed down my disease progression. I hope that my video recording will bring hope and happiness to all Parkinson’s patients in this world, by reminding them that they can still live a physically active life.
Thursday, November 24, 2011
Famous people with eating disorders | ||
Glossy magazines,the right angles, air-brushing and careful lighting sometimes give celebrities the image that they live in a picture-perfect, wrinkle-free, not-an-inch-more world of perfection. The result can wreak havoc on the self-esteem of women of average proportions, who may begin to wonder if there is something seriously wrong with their physical appearances because they do not possess a size zero body, perfectly straight and white teeth, glossy sleek hair and flawless skin. Famous personalities such as Calista Flockhart, Kate Beckingsale, Kelly Clarkson and even Princess Diana have admitted they have has eating disorders before. The fashion industry in particular bears much of the blame for encouraging the notion that 'thin is beautiful.' As supermodel Kate Moss once famously said: "Nothing tastes as good as skinny feels." Such obsession with weight can lead to dangerous eating disorders such as anorexia and bulimia nervosa. The anorexia suffer consumes just 600 to 800 calories per day (the average recommended calorie intake is 1,800 to 2,000 calories), and extreme cases of complete self-starvation are known. Anorexia, in addition to causing a host of health complications such as heart, kidney, gastro-intestinal and fertility issues, has one of the highest rates of mortality for any psychiatric condition. Bulimia - characterised by binge eating then purging by vomiting, taking laxatives or excessive exercise - can cause cardiac arrest, infertility, dehydration and erode the teeth. Read on to find out which celebrities suffered from eating disorders, and what it did to their bodies. |
Sunday, November 13, 2011
serotonin issue in PD
0
l
Group: Ask the Doctor Moderators
Posts: 1,865
Joined: 19-January 07
LocationUniversity of Florida
Posted Yesterday, 08:28 AM
Thank you for the question. You certainly have some of the symptoms of serotonin syndrome, but when we see it it is usually mixing medications together (like an antidepressant and a pain med like meperidine). Based on your description it sounds more like adverse events to the actual medication itself-- and also associated anxiety.Some of my patients with PD have very severe anxiety. We often try plain sinemet given frequently in a sufficient dose to help anxiety and avoid wearing off. This helps sometimes, and in severe cases patients may have to take meds every 2 hours. If this doesn't help, then we suspect a generalized or other type of anxiety disorder. In these cases it is very helpful to have a psychiatrist and also regular counseling. Some patients have a lot of medication sensitivity. For nausea we like to add a powerful medicine called domperidone.Anxiety in PD is very difficult to treat and we continue to search for better approaches.
Michael S. Okun, M.D.National Medical Director NPFUF Center for Movement Disorders & NeurorestorationRead More about Dr. Okun at: mdc.mbi.ufl.edu
0
Thursday, November 3, 2011
my story
Sunday, October 16, 2011
retirement
on a new role which is often difficult to accept. Retirees are often treated
lightly and made to feel unwanted or worthless.
Perhaps the biggest impact is felt by people who have occupied senior
positions in the civil service or in the private sector. Senior civil servants
are often pampered by underlings. A simple thing as a sudden withdrawal of a
personal driver just a day after retirement can unsettle the newly retired.
The maxim "people only respect the chair you sit on" often rings true.
Financial challenges, loneliness, loss of status and plain idleness can lead
to depression, or what is commonly known as post retirement blues. This is seen
more in men. It is said that women handle retirement better than men because
women also look after children and do household chores despite being career
minded.
Our own Tan Sri Rafidah Aziz admitted that even at the height of her career
as a cabinet minister, she used to try to rush home and cook for her family.
That probably explains why she is all smiles these days!
Friday, October 7, 2011
YOGA AND SCIENCE
We do not need to classify yoga as belonging to a certain sect,religion, country,race or spirituality. It is a standalone science . a science of mind body balance and an advanced mind development tool.
Yoga is and can only be known by practise, it is too abstract to be known by philosophical discussions, debates,study of the yoga tests, worship of gurus,nor by intellectual
Tuesday, October 4, 2011
yoga
IT takes lots of practice to reap the benefits of hatha yoga. Like any other form of exercise, discipline is also required.
Many people today have bloating and constipation problems attributed to over-eating and lack of fibre respectively.
"Yoga can be performed even by those with medical problems," says P. Manisekaran, president of Malaysian Yoga Society And Malaysian Association Of Yoga Instructors.
"Yoga does not require much physical strength or energy. Those who are fasting, semi-fasting or just out of the hospital after a surgery can perform the postures. The best part is that the practice of yoga and its benefits are best attained when done on an empty stomach."
One doesn't strain certain body parts because of the low-impact postures.
"But once a person experiences a faster heart beat, it's best to stop and relax," says Manisekaran, who's had 15 years of experience in practising and teaching yoga.
Manisekaran recommends certain poses beneficial to the digestive system. In addition to these postures, one should eat more vegetables and fruit.
monitoring
Most medicines have side effects and they can be minimised by taking certain measures, eg eating prior to taking a medicine to reduce abdominal upset, avoiding alcohol, etc. It is advisable to ask the doctor or pharmacist about these measures.
You should also know what to do when side effects are experienced and when to inform the doctor.
When taking a medicine, you should be aware of how you feel and whether there are any bodily changes. If there are any changes, it is advisable to write it down so that you can remember to inform the doctor, pharmacist or nurse.
You should also know when an improvement will be felt and when the next appointment with the doctor is.
Monday, October 3, 2011
understanding depression
We all feel sad from time to time. But when this sadness never seems to fade away, it might be a symptom of depression. Knowing how to spot depression can help protect you and your loved ones. With early detection, you can beat the blues.
What is depression?
Depression is more than feeling down or being sad. Depression may affect your work, interest in activities and quality of life. It is not a sign of weakness and it does not just 'go away'. Depression can happen to anyone.
Depression is a medical condition that affects how you think and behave, and the way you feel and function. It is one of the most common mental health problems and is faced by over 121 million people worldwide. In Singapore, an estimated 5.6 per cent of the population are affected by depression during their lifetime.
» Learn more about myths and common misconceptions about depression
How to recognise depression
Depression is different from normal sadness as it interferes with your day-to-day life making it hard for you to work, rest and have fun. People with depression experience five (5) or more of the following symptoms almost every day, for two weeks or longer:
Persistent sadness or emptiness
Loss of interest in all or almost all activities
Decrease or increase in appetite; unintentional weight loss or gain
Difficulty in sleeping or sleeping excessively
Restlessness or feeling agitated
Fatigue and lacking in energy
Difficulty concentrating or having trouble thinking and making decisions
Frequent thoughts of death or suicide
Feelings of worthlessness or excessive guilt
» Take our quiz to find out if you may be experiencing symptoms of depression
Risk factors for depression
Challenging life events can increase your risk of depression especially when you find it difficult to cope with them. Some of the life stressors that can increase the risk of depression may include:
Relationship problems
Financial difficulties
Physical illnesses
Unemployment
Lack of support
Loss of a loved one
Thursday, September 29, 2011
Symptoms of Alzheimer's
Alzheimer's disease can affect different people in different ways, but the most common symptom pattern begins with difficulty in remembering new information. This is because disruption of brain cell function usually begins in regions involved in forming new memories.
As damage spreads, individuals experience other difficulties. The following are some warning signs of Alzheimer's:
Progressive memory loss, especially forgetting recently learned information
Behavioural, mood and personality changes
Difficulty finding the right words and performing familiar tasks
Misplacing things or putting them in unusual places, like milk in the bathroom
Problems with abstract thinking, loss of initiative and poor judgment
Getting lost in familiar surroundings, and disorientation
Previous << >> Next
Wednesday, September 28, 2011
testimonal
I was diagnosed with Parkinson's at 45 years old. I cried all the way home. As a physical therapist, I knew what to expect from having worked with Parkinson's patients.
But I am pretty optimistic, so I was able get on with my life. I found the Parkinson's part I could live with. The worst was the dystonia. My arms would go up, and my head would arch back. It is really painful. It stretches and pulls at your muscles, and you can't do anything about it. It was stealing my life away.
Allow yourself to cry... but don't stay there.
So I went to the University of Florida Center for Movement Disorders & Neurorestoration in Gainesville, an NPF Center of Excellence, where I met Dr. Okun and Dr. Foote. Dr. Okun said they could help me, and I almost burst into tears.
In 2009, I underwent one deep brain stimulation (DBS) surgery, followed by a second outpatient surgery to install the battery pack in my chest. As soon as they started to test my limbs during the first surgery, I started giggling because I was so happy — they were moving my limbs and there was no stiffness! It was amazing. The difference between my life then and now is night and day.
If you have Parkinson's, you need to educate yourself. Know how to communicate with your healthcare team so you can help manage your own health. Keep hoping — there is always hope for a cure. Allow yourself to cry because it makes you feel better sometimes just to get that all out. But don't stay there and feel sorry for yourself, continue. It is a battle.
Parkinson's may be part of your life, but it doesn't have to take over your life.
Thanks to the generous support of friends like you, the National Parkinson Foundation can continue its life-changing work.
Sincerely,
Michele Holderby
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Friday, September 23, 2011
PD isn't the end of your life
Tuesday, August 2, 2011
for people w1th parkinson's
The words “you have Parkinson’s” have changed your life. For some of you, it is fresh, raw and startling news—often poorly told. Others may have grown more accustomed over the years. Some of you have loving support of friends and family. Others may feel very alone. For everyone who hears those words, life is forever changed.
Parkinson’s is an extremely individual syndrome. And you have a great deal of power to decide how your life will unfold. Yes, it is still possible to live your best life. The information on these pages is intended to arm you with knowledge, understanding, and power. This portal will help you take an active role in educating yourself and give you the tools to live to the fullest with Parkinson's.
PD 101: Read more to understand the symptoms, diagnosis, treatment and how to live well with the disease.
PD Library: Gain access to a comprehensive listing of articles, checklists, books, DVDs, videos, webcasts and web sites to help you learn more about PD.
Local Resources: Search for a health care professional, center, chapter or support group in your area.
Discussion Forums: Get connected with professionals and other people diagnosed with PD.
Personal Stories: Learn how others continue to live well with this experience.
On the Blog: Stay up-to-date with the latest in PD research, "What's Hot in PD?"
Clinical Trials: Interested in participating in a PD research study
Saturday, July 30, 2011
Crisis
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I survived DBS...
created by Kindle July 25, 2011
Tags for this topic: Deep brain stimulation (DBS) (3)
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Add to My Favorites Saving... Jul 25, 2011 06:44PM Kindle
First Symptom: 10/08
KindleSex: F Data Quality: 0 stars Parkinson's: 2 yrs Hoehn-Yahr 1 Type: Parkinson's disease On Mouth/throat: none Arms: mild Chest: none Legs: none
68 posts , 37 helpful marks I just did Unilateral Thalamic DBS one week ago, and wanted to share my experience with anyone who is interested. I have never been diagnosed with Parkinson's disease, although the doctors are always quick to tell me I may have it "some day". I had a severe tremor on my right side (leg and arm), and muscle contractions on my right side.
DBS was first scheduled for July 6, at UVA (University of Virginia) which is 3 hours from here. My husband and I left at 2 the day before to drive over there, and as soon as I got in the car I called to the neurosurgery department because I wanted confirmation that they had gotten preauthorization for the surgical procedure. (Previously they had only told me they would call me if it was denied or there was a problem - in other words, no news is good news. I'm an accountant, and I wanted to hear the words that it had been authorized.) I was told it wasn't authorized yet, but they were working on it and it should be fine, so we just kept going. Three hours and three phone calls later as we pulled into the parking lot of our hotel, they called and said they had to cancel the surgery because the insurance company hadn't gotten back in time. AGGHHH! It's hard enough to get yourself emotionally prepared for this! Needless to say my husband and I were very frustrated, ended up staying the night in the hotel since we had to pay for it anyway, and came back home the next day.
As soon as I got home, I called my insurance company, and at 11:00 they said, "it's authorized!" When I asked them when, they said at 9:00 that morning. I wanted to strangle somebody.
Moral of this story: MAKE SURE YOUR INSURANCE COMPANY HAS AUTHORIZED THE PROCEDURE IN ADVANCE!!!
The consolation prize was that the neurosurgeon said he would install both the electrode and the neurostimulator in one surgery, and my surgery was rescheduled for July 18.
So on July 17, we are on the road again...I was told nothing to eat or drink after midnight...I could drink water only up until 3:30, and had to be at the hospital at 5:30.
We were there on time, and were quickly taken up to the surgical floor. For the next hour I did a combination of changing into a hospital gown, having an IV started, vitals taken, and everyone on the surgical team stopping by to introduce themselves, to make sure I was the correct patient, to confirm what was being done to me, to confirm I hadn't had anything to eat and drink...
Somewhere around 6:30-7:00, I got wheeled into the room where the stereodactic frame was so they could install that. I had 4 shots of lidocaine on my head, and then it was literally screwed onto my head. Honestly, I didn't feel a thing other than the shots. And in April I had just completed 12 weeks of treatment for myfascial pain dysfunction (trigger spots), and so I quickly got over my fear of needles from that. The injections in the head didn't even phase me. My doctor told me that putting the frame on was probably the most painful part of the procedure.
Then it was downstairs for a CT scan with the frame on. I read somewhere previously that that was so they could get gps readings of your brain to find the best angle to put the electrodes in. Then it was one more stop back to my room to say goodbye to my husband, and it was off to surgery.
Now I was not anesthetized at all except for local anesthetic, except for the very end when they tunnel the wires and install the neurotransmitter. So I could hear all the conversation in the room, and my neurosurgeon was very good at narrating what was happening. I knew when they shaved the area, did the incision, could hear the suction thing running, and (this was where I almost lost it) WHEN THE DRILLING WAS HAPPENING! That part just about did me in. It sounded like a jackhammer was going against my head! It was so LOUD!! I was holding the anesthesiologist's hand on my left side, and the Medtronics rep on the right, and I'm sure they were very happy when I finally relaxed. I heard the anesthesiologist say, "her blood pressure is rising! Do you want me to give her a beta blocker?" To which the neurosurgeon said no, he was almost finished.
I felt absolutely nothingwhen they put the electrodes in-not pressure, nothing! I didn't even know they had done it until the three surgeons were standing in front of me (1 attending and 2 residents) waiting for the programmer to do his thing. Now, before I tell you about the next part, let me tell you about my symptoms. I had a very severe right sided tremor. My medication (sinemet/klonapin) were only good for at the most 5-6 hours, and even with that I still had tremor, just somewhat reduced. I always have had muscle contractions on the right side - primarily my right shoulder blade. That problem resulted in myfascial pain dysfunction-severe shoulder pain from trigger spots. I had just finished 12 weeks of treatment for that. The 2nd week in June my right foot started turning in severely so that I couldn't walk on it in the mornings until I had taken my first sinemet. That was happening almost every day. So I had bought a set of crutches just to get around in the morning. I'm an accountant, and had reduced my work hours to 5-6 a day (the amount of time I could get out of the sinemet), but I was very borderline disabled. If this procedure didn't work for me, I was going to have to call it quits.
So my doctor nodded to the programmer, who "turned me on!" (I still think that's a funny expression!) And, within seconds, my tremor stopped. Completely. Unbelievably. I just couldn't believe it. Everything relaxed - all the muscles on my right side. I cried - I was totally overwhelmed emotionally. You spend a lot of emotional energy wondering: is this it? Is this as good as it gets? And trying to prepare yourself for the worst. I was never worried about the procedure - I was worried about the outcome. I couldn't bring myself to believe this was reallly going to work for me. (Maybe for everyone else, but not me!) I did the infamous spiral, and it was nice and smooth! I could write like you write on the blackboard. I was OK again. Then they turned me off.
From the time they wheeled me into surgery to that point was only 1 hour. Soon after that they put me under to finish the rest.
I woke up in the post-anesthesia care unit, and was there for several hours before getting taken to an actual room (not ICU, just a normal room). I had compression units on both legs to make sure my blood kept circulating. I was given heparin, an antiobiotic to fight off any staff infection, and I can't remember the rest. I was very tired that day, into the next. I had an MRI that night which was very uncomfortable, and the next morning my doctor told me no swelling, bleeding, and that the electrodes had good placement. My surgeon told within a week I would feel perfectly fine and could do anything I wanted within reason. When I asked about work, he told me to wait for the turn on for that one.
I was discharged the next day, and felt every bump on the three hour trip from the hospital to my house.
By day 4, I just felt a mild discomfort where the neurotransmitter was installed. By day 5, I felt perfectly fine.
Just from the surgery, my symptoms have been greatly reduced. I understand this is the "honeymoon period", and I'll take whatever I can get.
My turn on date is August 2 - can't wait.
The neurotransmitter is an Activa PC. It's bigger than I thought it would be, and it does stick up from your chest a little. I also notice the weight, but I'm pretty small (5'4", 118 lbs.) The only problem I've had post-surgery is I feel something pushing against my throat on my left side (the side the neurotransmitter was installed), which affects my swallowing and speech. It could be drainage, swelling, or something else. I will ask the surgeon when we visit next.
Let me mention...my head was not shaved. They just did a little bit of shaving in the same area as my natural part. I've only been home a week, and anyone who has seen me since then who didn't know I had gone through the procedure didn't even notice. But, I will comment, the goop they put on your hair for the surgery makes your fair feel like straw! Then you can't wash your hair for so many days. Definitely a challenge if you have any length at all!
That's all I can think of for now. I've gotten a lot out of reading other people's stories, and wanted to give back if I could.
9 | Mark this post as helpful ..Jul 26, 2011 12:26AM vigwig
First Symptom: 04/98
Dx: 07/98
vigwigSex: M Data Quality: 0 stars Parkinson's: 13 yrs Hoehn-Yahr 3 Type: Parkinson's disease On Mouth/throat: mild Arms: mild Chest: mild Legs: mild
1861 posts , 1159 helpful marks Kindle,
I am amazed at your recall of everything. It was so good of you to write down as much as you did. I remember the sign-in desk, or counter, and the people there, the friendly faces, the nurse who got me ready with thrombosis hose and gown, IV and all that. Then being wheeled out to be parked in the hall alone for awhile like a railroad car on a siding. Then two nurses who came around to survey what they were going to shave and me asking them to "take a little off the sides," knowing that Dr Simpson would cut it all off when I asked him that beforehand and him saying that turning people out with half a haircut wasn't his style. I considered it part of the stuff you put up with to get the operation done without any complications. Then the anesthesiologist and me confirming that Dr Simpson's first name wasn't Homer. There was a lady who came and said was it alright if she observed because she was with the manufacturer (I have an ANS unit) and I referred to her as a government agent. It was a scary thing to go through. I had an old-fashioned halo that was screwed to my head. The drilling WAS like a jack-hammer and at one point I asked him if there was any "thing" left he could give me as a souvenir and his reply that there was nothing to save.
There was also a nurse holding my hand and relaying info between patient and surgeon. I asked for her to come back and holdmy hand wen she left for awhile; I was in need of childish reassurance. Then I conked out and came to in the recovery room. After some jocularity on my part with whoever would listen to my jokes, they finally found me a place in NICU (no, not the neonatal one) and I was allowed to have my mp3 player and about 1 a.m. they made me turn it off because my singing along with my oldies was not well received. I went home later the second day.
I came back in 14 days to have the second stage done. It hurt afterwards while the first one didn't. I went home the same day as I went in for the second one. I was programmed in December, the whole operational thing taking 5 or 6 weeks. I was a poster child for DBS. Still am.
Have had the batteries and wiring replaced once already. The conventional wisdom is ANS batteries wear out kind of fast. And you can break those wires. Enough already.
Vic
4 | Mark this post as helpful ..Jul 26, 2011 08:54AM Kindle
First Symptom: 10/08
KindleSex: F Data Quality: 0 stars Parkinson's: 2 yrs Hoehn-Yahr 1 Type: Parkinson's disease On Mouth/throat: none Arms: mild Chest: none Legs: none
68 posts , 37 helpful marks It sounds like you recalled quite a bit also! (Are you sure that hand holding thing didn't have a side motive?!)
I was much more sore from the neurostimulator that from what they did to my head. My head just had a dull headache for a couple of days, and then it was fine. And really, the neurostimulator was really sore for only 3 days, which is nothing to complain about. The 4th day was just mild discomfort.
So far so good. If I can get this pressure on my throat addressed, I'll be good to go.
1 | Mark this post as helpful ..Jul 26, 2011 08:54AM Kindle
First Symptom: 10/08
KindleSex: F Data Quality: 0 stars Parkinson's: 2 yrs Hoehn-Yahr 1 Type: Parkinson's disease On Mouth/throat: none Arms: mild Chest: none Legs: none
68 posts , 37 helpful marks I forgot to mention a weird thing that happened the night I was in the hospital. I had the surgery in the morning, and about 5:00 pm I started hearing a ticking sound (like a clock ticking). I looked around the hospital room trying to figure out where it was coming from, and asked my husband if he heard it (he didn't). Eventually I figured out it was coming from my head! I talked to the nurse about it a couple of times, and she talked to the neurosurgery resident, who said it was nothing to worry about. I saw my doctor in the morning, and he said it was from loss if cerebral spinal fluid, and said it refreshes within a day. And, I didn't hear it again. So I guess he was right.
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this post was last edited by Kindle on Jul 28, 2011 04:09PM
..Jul 26, 2011 09:28AM Mdgirl51
member since Nov 2008
Mdgirl51Data Quality: 0 stars Sex: Female Age: 53 Condition: Quality of Life:
Social: Unreported Mental: Unreported Physical: Unreported I am: None
Caregiver
266 posts , 163 helpful marks YAY!!!!!!!!!!!!! So happy you survived the DBS!!!!! I've been thinking about you and am so pleased with your outcome! I pray to God every day that Jeff will have great results when he gets his approval, if it ever happens. They are giving us the run around and Jeff just steadily declines...SO HAPPY FOR YOU KINDLE!!!!!
1 | Mark this post as helpful ..Jul 26, 2011 09:46AM HarleyNutz
First Symptom: 02/94
Dx: 01/95
HarleyNutzSex: F Data Quality: 2 stars Parkinson's: 17 yrs Hoehn-Yahr 2 Type: Parkinson's disease On Mouth/throat: none Arms: none Chest: none Legs: mild
628 posts , 759 helpful marks Kindle -- GREAT NEWS! Your description of the process and experience was EXACTLY like mine with one exception -- I was sedated enough during the drilling that I remember nothing about that part, which I was thankful for since I've heard that's the worst part. Your detailed description will be very helpful to those who are considering DBS but are concerned about the process. Good luck with your programming!
Lori
1 | Mark this post as helpful ..Jul 26, 2011 09:50AM amh612
First Symptom: 04/10
Dx: 09/10
amh612Sex: M Data Quality: 0 stars Parkinson's: 1 yr Hoehn-Yahr 3 Type: Parkinsonism (unknown cause) Mouth/throat: none Arms: mild Chest: none Legs: mild
10 posts , 8 helpful marks Most of the patients on this forum report really good results from DBS, which is encouraging. However, my neurologist has told me horror stories about some Parkinson's patients who've had the procedure. Incidentally, were you able to drive before the DBS?
1 | Mark this post as helpful ..Jul 26, 2011 04:32PM fowki
First Symptom: 01/98
Dx: 05/06
fowkiSex: F Data Quality: 0 stars Parkinson's: 13 yrs Hoehn-Yahr 3 Type: Parkinson's disease Mouth/throat: none Arms: moderate Chest: none Legs: mild
25 posts , 15 helpful marks I, too, survived DBS. It has been a lttle over a year (06/22/2010) and I am 100% DRUG FREE!!! I tell everyone that it is nothing short of a miracle.
I had a very similar experience, except that I was under when they placed the frame, and was brought out in the O.R. I tell people that the drilling was like having a giant MixMaster in my head. I never realized just how much the skull muffles sound, until I had that done!
I also got "turned on" in the O.R. and it was a very emotional moment for me too! I begged to be left "on", but, alas, no one would cooperate with that request....
I had both procedures on the same day, so they put me back under to implant the IPG. That was really the only pain I had, the IPG surgical site. I didn't expect it to be so big, even though I had seen one of the units at a symposium. Now I can "see" it under the skin, but my daughters have both told me that looking at me front-on, if they didn't know to look for it, they wouldn't notice it.
I was in the hospital just overnight. Less time for brain surgery, than for my Aunt's knee replacment!
I was going for programming every two months, but this time I have gone four months! My next appointment is the first week of August. The worst part of programming is when they turn the settings almost "off"....I am amazed that I ever lived "like that"!
There needs to be DBS support groups where those who are pending DBS can talk to those of who have survived it....the good and the bad experiences.
5 | Mark this post as helpful ..Jul 26, 2011 08:21PM Mintex
First Symptom: 06/05
Dx: 12/08
MintexSex: M Data Quality: 2 stars Parkinson's: 6 yrs Hoehn-Yahr 3 Type: Parkinson's disease On Mouth/throat: mild Arms: mild Chest: mild Legs: mild
851 posts , 1245 helpful marks Great news Kindle!
Steve
Mark this post as helpful ..Jul 26, 2011 11:29PM blader44
First Symptom: 12/06
Dx: 03/07
blader44Sex: M Data Quality: 3 stars Parkinson's: 4 yrs Hoehn-Yahr 2 Type: Parkinsonism (unknown cause) On Mouth/throat: none Arms: mild Chest: none Legs: none
503 posts , 502 helpful marks Now Methodist Medical Center in Brooklyn now has DBS surgery.
Maybe some local candidates may not have to travel far out-of-town
for the procedure. I personally am not ready for it, but for someone
it may be a useful thought.
Blader
Mark this post as helpful ..Jul 27, 2011 01:00PM rgduncan
First Symptom: 02/09
Dx: 07/09
rgduncanSex: M Data Quality: 2 stars Parkinson's: 2 yrs Hoehn-Yahr 1 Type: Parkinson's disease Off Mouth/throat: none Arms: mild Chest: none Legs: none
100 posts , 104 helpful marks Thanks for recording your DBS experiences kindle. I expect to "go there" some day and your account was very helpful.
Richard
1 | Mark this post as helpful ..Jul 28, 2011 04:16PM Kindle
First Symptom: 10/08
KindleSex: F Data Quality: 0 stars Parkinson's: 2 yrs Hoehn-Yahr 1 Type: Parkinson's disease On Mouth/throat: none Arms: mild Chest: none Legs: none
68 posts , 37 helpful marks AMH612-I could drive, but my right leg tremor was getting so bad I started driving with my left leg! (I don't recall that being illegal!) I really didn't feel comfortable doing that, but I was still trying to work and had to get back and forth. Anytime my husband and I were together he drove.
No one has told me I can't drive since the surgery either. I've just been cautious, and didn't drive until yesterday (day 10).
MDGIRL - Keep praying and I will for you also. The wait can be agonizing.
Thanks to everyone else for the good wishes...
Mark this post as helpful ..Jul 28, 2011 06:57PM Mdgirl51
member since Nov 2008
Mdgirl51Data Quality: 0 stars Sex: Female Age: 53 Condition: Quality of Life:
Social: Unreported Mental: Unreported Physical: Unreported I am: None
Caregiver
266 posts , 163 helpful marks AMH612...I can't understand why your neurologist would tell you horror stories about dbs. Yes, any surgery has it's risks but man, I have met sooo many people who have said it's "life changing". Jeff and I can't wait for the day to arrive, it could be as early as 6 months!!!! His neuro suggested it, even said he should have done it yrs ago........
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Friday, April 1, 2011
defination a Cure
Symptomatic therapy is when a therapy helps improve individual symptoms.
Disease modification is when a therapy improves the course or slows the course of the disease.
Hope that helps.
Michael S. Okun, M.D.
Sunday, March 20, 2011
anxiety and parkinson's
If your doctor does prescribe an anti-depressant for you, start out with a super low dosage to avoid any uncomfortable side effects in the beginning. I started with a 10 mg tablet (not capsule) that I cut in half for a 5 mg dose and took that for the first week or so and then upped it to 10 mg for the next week and then very slowly upped it to the dose my physician prescribed for me. This way I avoided all side effects, which can be very disturbing for a week or so, if you start on a higher dose.
That was my experience. Hopefully it will be helpful for you.
Lexie
Saturday, March 5, 2011
Date: 10/25/2006
Most people think of PD as shaky hands (tremor), stiffness (bradykinesia), slow movements (bradykinesia), and trouble with balance or walking (postural instability). However, PD can also lead to many other challenges. These include constipation, trouble with controlling or emptying the bladder, difficulty swallowing, excessive sweating, sexual difficulties, and control of blood pressure. All of these problems—known as nonmotor symptoms—are related to a part of the nervous system called the autonomic nervous system. This article focuses on problems with blood pressure that is too low when you stand up or sit up after lying down, called orthostatic hypotension. Future articles will address other nonmotor symptoms of PD.
What is blood pressure?
Blood pressure is the force created by your blood against the walls of the blood vessels that carry blood away from your heart. When healthcare professionals check your blood pressure, they usually record two numbers in the form of XXX/XX, for example, 137 over 75. These numbers represent the pressure when your heart is squeezing and pumping the blood through your body (systolic blood pressure) over the pressure when your heart is at rest between beats (diastolic blood pressure). Your blood pressure should ideally be less than 120/80, but not too low. To get an accurate reading, your blood pressure should be checked about five minutes after you lie down, when you're sitting, when you first stand up, and about one to two minutes after you stand up.
Your blood pressure depends upon many different things, including
* How well your regulatory system and autonomic nervous system are working
* Air temperature
* Whether you have been drinking enough fluids
* Whether you are standing, sitting, or lying down
* How long you've been sitting or lying down
What is orthostatic hypotension and what causes it?
Because of gravity, your blood tends to pool in the veins of your legs when you stand up. Your body responds to this pooling by increasing your heart rate and squeezing or constricting the blood vessels to send the blood to your brain and other vital organs. If you have orthostatic hypotension, something interferes with your body's response. Instead of increasing, your blood pressure falls 20 or more points when you stand up or when you sit up after lying down. Another problem in people with PD is a similar fall in blood pressure that occurs soon after you eat a large meal. This is called postprandial hypotension.
Some people have a combination of high blood pressure when they are lying down and low blood pressure when they are standing up. This type of problem is particularly difficult to treat. You will need to work closely with your doctor to find ways to regulate your blood pressure if you have this problem.
A number of things can cause orthostatic hypotension in people with PD. These include underlying problems with the autononmic nervous system and side effects of medicines used to treat PD.
How can orthostatic hypotension be treated in someone with PD?
People who have orthostatic hypotension and PD should keep in mind some simple points:
* Drink plenty of water.
* Eat five or six small meals throughout the day rather than two or three large meals.
* Use more salt on your food (check with your doctor before doing this if you have the combination of orthostatic hypotension and high blood pressure when lying down).
* Wear thigh-high compression stockings that gently squeeze your legs to prevent the pooling of blood in your legs.
* Don't sit with your legs crossed.
* Stand up slowly after you have been sitting.
* Sit up slowly after you have been lying down, and sit on the side of the bed for a few minutes before standing to let your body adjust to the new position.
* Use blocks to raise the head of your bed about 10 to 20 degrees.
If necessary, there are also medicines that the doctor can order for you to raise your blood pressure. If you find that you are having problems with dizziness, lightheadedness, or even fainting, make sure that you discuss this with your doctor. Working together, communicating about orthostatic hypotension, and finding solutions will help you have a better quality of life with PD.
The Autonomic Nervous System
The autonomic nervous system (ANS) is the part of the nervous system that controls the involuntary functions of your body. These functions, which happen without you thinking about them or "making them happen," include heart rate, breathing, blood pressure, the breakdown of the food that you eat (digestion), and others. Although you're not often aware of it, the ANS is constantly regulating glands and muscles through the release or uptake of chemicals that control the messages that nerve cells use to communicate with each other.
The ANS is made up of three parts: the sympathetic, parasympathetic, and enteric systems. The sympathetic nervous system prepares your body for emergencies or times of stress. This part of the ANS is responsible for your body's "fight or flight" response when you are faced with a dangerous situation. During this response, your heart rate and blood pressure increase, the pupils of your eyes get bigger, and your digestive system slows down. The parasympathetic system helps your body's functions return to normal after they have been stimulated by the sympathetic nervous system and also helps your body to fight off or respond to infections. The enteric nervous system is made up of nerve fibers that send signals to your stomach, intestines, pancreas, and gall bladder. After you eat, these nerve fibers send signals to your brain to drive more blood to this area of your body to help process or digest your food.
E-MOVE Editor: Richard Robinson, NASW, WE MOVE
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•A Core Curriculum in Movement Disorders: The
Wednesday, February 16, 2011
anxiety
Friday, February 11, 2011
shoes for parkinson's patients
It helps you walk upright and swing your arm whilst go jogging.
1.Improve posture and Giat.
2. Activates neglected muscles
3.Tones and shape the body.
4. Can help with back,hip, leg and foot problems.
5.Reduce stress and knees and hip joint.
I am putting on "MBT" shoes
I am sure there are shoes besides "MBT" suitable for Parkinson's patient.
However it is individual choice.
The benefits are as follows:
1. Improve posture and Giat. 2. Activates neglected muscles 3.Tones and shape the body. 4. Can help with back,hip, leg and foot problems. 5.Reduce stress and knees and hip joint I am sure there are shoes besides MBT suitable for Parkinson's patient. However it is individual choice.
2 people marked this post as helpful.
Sunday, January 30, 2011
shortness of breath
I have gone through CT Chest and Lung XR and confirmed I have short of breath caused by Parkinson’s.
My medications daily are as follows:
9 dosages Prednisolone (Stiroid)
1 ” Nexium 40mg (gastric)
Kindly comment
Regards
TEOKIMHOE
Posted 30 December 2010 - 03:13 PM
Are you on any Parkinson medication? Parkinsons can cause the shortness of breath due to the smooth muscle contraction/spasm. If you are on any PD medication, this should help limit these issues.
Prednisone can also cause muscle cramps or pain, muscle weakness, and pain in arms, back, hips, legs, ribs, or shoulders. These issues can also exacerbate the PD symptoms or sometimes mimic them.
Best of health,
Mark R. Comes R.Ph.
“Ask The Pharmacist”
www.parkinson.org
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#3 MComes RPH
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Posted 30 December 2010 - 03:16 PM
I also wanted to let you know that you should separate nexium from yourPD Meds by a couple of hours. Any medication that can increase or decrease stomach acid acid or GI movement, can alter the absorbyion time of your PD, and other Meds, also.
Best of health,
Mark R. Comes R.Ph.
“Ask The Pharmacist”
www.parkinson.org
Tags: General |
Tuesday, January 4, 2011
Sunday, January 2, 2011
about myself
I feel proud I joined PLM Forum for the awareness of PD and able to discuss PD with PLM forum members all over the world irrespective of colours, language, culture, education,religion,practice. We are in one family.
I feel proud I am able to contribute my experience and knowledge how I confronted with PD emotional and non emotional disorders and slow down its progression.
I do not suffer from depression by positive attitude to life. I am not alone.
1 person marked this post as helpful.