Sun Jan 27, 2008 7:43 pm Post subject: Saliva,dry mouth and rough tongue
Dear Doctor,
Sorry I keep on amending the emails. As lavodopa and dopamine agonsits have sideeffect of the above syndomes I am one of the sufferers,
The doctor prescribed me BENZHEXOL(anti-cholinergic) to treat the saliva as it's dryness instead it worsen the dryness saliva added more thicker, more sticky ,more dryness mouth and a rough tongue besides I have cracked both side of my lips. More water taking to mininise the dryness mouth. I did not have excessive saliva instead limited saliva as told by my dentist that I do not have drooling from my mouth and she introduced me to Bioteii mouth wash and gel to moiturize the dryness, taking ice tube to mininise it. I still continue taking requip 12mg daily. In view of the above my doctor replaces me amantadine 1/2 dosages and sinemet CR with sinemet 25/100 three times a day. I have stopped taking the Benzhexol but the sickness are still not improving. He would optimize the medication progressively. Kindly advise
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Tue Jan 29, 2008 4:06 pm Post subject:
Thanks for the question. I have responded to the question in a previous post a few minutes ago but let me add that dry mouth and anticholinergics can also lead to cavities----if you are on anticholinergics brush often._________________Michael S. Okun, M.D.
Thursday, January 31, 2008
Wednesday, January 30, 2008
REQUIP
Posted: Wed Dec 26, 2007 10:27 pm Post subject: Requip
Requip and compulsive behavior. This has become a nightmare for me. My Doctor has been involved in a study regarding this issue and feels dopamine agonists are a legitimate problem in some PD patients.Last edited by Zeusa on Mon Dec 31, 2007 8:13 am; edited 2 times in total
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johnball20Joined: 09 Mar 2007Posts: 135Location: Whittier, California
Posted: Thu Dec 27, 2007 12:28 am Post subject: Requip
Zeusa, You and your doctor should both be concerned with behavioral changes due to the dopamine agonist Requip, or any other similar drug. We have had far too many patients in the PD community who have lost greatly from addictive behaviors such as gambling or shopping out of control, or sexual behaviors. Don't take it lightly. You may want to discuss switching to a MAO-B inhibitor like selegiliene (Eldepryl or Zelopar) or rasagiline (Aziliect), or adding Comtan or Tasmar to your medication schedule. John_________________We are working to raise awareness and find a cure.
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ZeusaJoined: 26 Dec 2007Posts: 3
Posted: Thu Dec 27, 2007 6:48 am Post subject: Requip
Thank you John, I appreciate your reply about the side affects regarding requip. My Doctor and I do not take this lightly. I approached him about taking rasagaline but at this point his greatest concern is getting me off the requip first and then pursuing other options. I am also taking Sinemet and maybe that will be enough for now.Last edited by Zeusa on Fri Dec 28, 2007 10:13 pm; edited 1 time in total
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johnball20Joined: 09 Mar 2007Posts: 135Location: Whittier, California
Posted: Thu Dec 27, 2007 9:43 am Post subject: Reuip
Zeusa, I yhink your doctor is very much overstating the case if he believes that ALL Pd medications cause or are linked to compulsive behavior. I don't believe that is the case at all. The problem is almost exclusively with the dopamine agonists. It may be in combination or as a monotherapy, but an agonist has been involved in every case that I know of from conversations with hundreds of PD sufferers. I have not heard reliable data from any source that confirms changes in behavior, particularly compulsive behavior, when an agonist was not involved. That was certainly the case in my own behavioral concerns. John_________________We are working to raise awareness and find a cure.
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kmcclungJoined: 05 Mar 2007Posts: 49Location: Michigan
Posted: Thu Dec 27, 2007 12:01 pm Post subject:
Zeusa, Our thirty year old house has all new power outlets and fancy light switches. One of the bathrooms has a new blower fan and one of the other bathrooms would have a new fan if I had been able to get my stiff body into the crapped position to change it. The third bathroom doesn't have a fan but I was thinking about how I would put one in that room. Also replaced some ceiling lamps and one ceiling fan. Have a new water softener, new high efficiency furnace and high efficiency central air. Was considering purchasing a sound system for the family room as I dislike the quality of sound from the TV. Also I don't like the quality of the color that TV produces so was considering replacing it. I reduced my Mirapex from 4.5 mg a day to 3 mg a day. Because of convenience I switched neurologist and told the new neuro what I had done with my medication. She thought my action was okay. I later took myself down to 2 mg a day. When Azilect became available in the U.S. I waited a few months and then asked the neurologist if I could get off the Mirapex and take Azilect. She approved that so I am now taking 1 mg of Azilect daily. The furnace and central air were old and needed to be updated. The light switches are nice and when I plug the vacuum cleaner into an outlet the plug doesn't fall out. I still hate the sound and color from the TV and hopefully someday will replace that TV and put in a sound system. The point that I wish to make is that I feel much much much better not taking the Mirapex. The Azilect took a long time before it became effective. I started taking it last February 1st and it was May before I started feeling better. The neurologist said that I should have noticed a change within a few days but I did not. Other benefits: I gained a lot of weight while on Mirapex. I've lost 50 pounds from February to August. My weight is holding steady. Can cut my toe nails without difficulty and see my feet when I look straight down. Much of the stiffness in the trunk of my body has dissipated. If I accidentally walk into a door frame I no longer have pain shoot through my body. Just feel a little silly. I sleep at least four to five hours straight when I go to bed. On Mirapex it was normal to sleep 2 1/2 hours and than wake up and sleep a half hour or so and wake up and this continued until I got up. I had put myself on a driving restriction because of sleep attacks. Now I can drive without fear of falling asleep. Life is wonderful compared to what life was like on Mirapex. I must say that Mirapex and other agonist are good medications. Just not for me and for a few other people. In our Parkinson's support group one individual had hallucinations from Mirapex and another had sleep attacks. For others in our group agonist are working fine. For some individuals Azilect is ineffective, I feel sad about that because I know how much it helps me. Ken
hu Dec 27, 2007 7:01 pm Post subject: Requip
I should clarify John that I was referring to the agonists alone that have been causing my compulsive behavior. I am also on Sinemet and will stay on that. Sorry for the confusion.... Z
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gronholmJoined: 22 Jan 2008Posts: 3
Posted: Tue Jan 22, 2008 7:46 pm Post subject: Requip
if this need - Requip
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ghostgirlJoined: 11 Sep 2007Posts: 19
Posted: Wed Jan 23, 2008 11:28 am Post subject:
alcoholics havve beens shown to maintain higher thann normal adopaamine levels-dopaminee and addictiion go hand in hand....i'm wondeering if aall pd mmedds inherentlly ca;use compulsiive behavior problems.......... best to eveeryonne--gg
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Rogerstar1Joined: 14 Mar 2007Posts: 199
Posted: Fri Jan 25, 2008 11:22 pm Post subject:
Whether it is the meds, the PD or some combination of the two my experience suggests to me there is a correlation. Long ago when I was a beer drinker at a certain level before inebriation I could detect the endorphins or dopamine or whatever chemical was being triggered/produced cause a distinctive euphoria. It wasn't the onset of drunkeness but a unique rush brought on by dopamine I think. Since I've been ill in the early stages at least, some beer in the evening kept PD symptoms at bay. When I began Sinemet I switched to nonalcohol beer. Miripex, widely known to bring on compulsive behaviosr didn't work for me becase it induced fainting and nausea. Now my substantial ingestion of Sinemet encourages compulsions to buy and bid for things I don't need.....vigilence is required. Compulsions are real! best to you Ghostgirl
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ghostgirlJoined: 11 Sep 2007Posts: 19
Posted: Sat Jan 26, 2008 12:19 am Post subject:
hi Roger -thx forr the eeaarnest reply :) if we could just use the meds like training wheeells..entra;in ouur brains then drop them'.....bottom line...the 'vigilence for me is mmaintaining enough objectivity t;o know what makes me feel goood in my soul ...my first tryyy of mucuna had mmixed rressults -after only 2 dayss and a tottal of 1 tsp of powder-made me jittery aand feeell nott quittee mysellf-realizeed i am aa compulsive fire builder (in our wood stove) yours in vigileence sharilyn (gg)
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Rogerstar1Joined: 14 Mar 2007Posts: 199
Posted: Sat Jan 26, 2008 3:57 pm Post subject:
Case in point: I like maple syrup on Breyer's butter pecan ice cream...a lot. Wednesday I received two, 1 quart bottles of 100% pure MEDIUM AMBER grade - good enough and plenty to last me a lifetime. But the truly good stuff is LIGHT AMBER grade. Climate change has caused an abundance of medium and darker grades and a scarcity of light amber. Producers increasingly mis-grade...consumers beware. So Thursday I get right back on line, confirm genuine LIGHTAMBER grade and using Ebay's 'buy it now' mechanism purchase two more quarts and three glass 'nip' sized bottles of light amber maple syrup. Truth betold there's not that big of a difference. You tell me. Was it the Sinemet, PD or just a common lack of will power that has me sitting here feeling stupid? I no longer take agonists. Trivia for today: It takes 40 gallons of raw sap to produce one gallon of 100% pure maple syrup. R.
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ghostgirlJoined: 11 Sep 2007Posts: 19
Posted: Sat Jan 26, 2008 10:31 pm Post subject:
Quote:
rivia for today: It takes 40 gallons of raw sap to produce one gallon of 100% pure maple syrup. are we not unlikke the maple trees?wiith the dark of wintter now is thee sseeason where the sap draws deep within thhe tree ...sso too does our energy draw in deepp ..its pressence in our deppth revealing and makking visible our infirmities---oohh bbut wwill sppring ever come gg
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teokimhoeJoined: 03 Mar 2007Posts: 41Location: Malaysia
Posted: Tue Jan 29, 2008 5:07 am Post subject: REQUIP (Ropinirole)
I think that the mental side effects of Requip (Ropinirole) such as pathological gambling and hypersexuality have been over-publicized. Based own my own personal experience, Requip seldom causes mental side effects. Very often, Parkinson's patients are on more than one drug. Therefore, the mental side effects which are attributed to Requip could be actually caused by other medications. Dr Chew Nee Kong, Kuala Lumpur, Malaysia._________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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johnball20Joined: 09 Mar 2007Posts: 135Location: Whittier, California
Posted: Tue Jan 29, 2008 9:57 am Post subject: Behavioral side effects of dopamine agonists
Teokimhoe, I'm afraid that the behavioral changes associaed with the dopamine agonists, not just Requip (ropinerole), are actually far more frequent than reported, rather than less. That is largely because many patients are unwilling to share the knowledge of these behaviors with their Parkinson's doctors, or their families in many cases, because they are ashamed, or because they have not tied the behavior to the drug. I hae personal experience with changes in behavior (hypersexuality) and know far too many PD patients who have experienced severe gambling addictioins and other disturbing compulsive behaviors. Once the problem is identified, a change in drug prescription produces a change in behavior and the compulsion is no longer a problem. John_________________We are working to raise awareness and find a cure.
Back to top
I was diagnosed as Parkinson's disease patient in 2005.I was prescribed by doctor with Sinemet 25/100 one each three times and Jumex 5 gm one each two times per day for the past of two years.As my physical agility is not too much improving and I decide to change Dr. NK Chew, Neurologist of Pantai Cheras Medical Centre for treatment on the month of July 07 . He optimises my medication to 4 gm Requip (ropinirole) each three times and one Sinemet 25/100 two times a day. I am surprised my agility is 90% improving as told by my two trainers. I am glad I am able to do stretching exercises and gmx classes ie. body combat, pump, yoga, spinning and box and kick exercises for three hours from Monday to Friday. I do massage on every Saturday to loosen my body tiredness. I rest on bed for an hour after my exercises. I find my Physical mobility and agility is normal and PD is very mild from now as told by Dr. Chew.I wish to take this forum to express my thanks to Dr. Chew Nee Kong for his excellent work and his contribution for the Parkinson's patients.TEOKIMHOE
Requip and compulsive behavior. This has become a nightmare for me. My Doctor has been involved in a study regarding this issue and feels dopamine agonists are a legitimate problem in some PD patients.Last edited by Zeusa on Mon Dec 31, 2007 8:13 am; edited 2 times in total
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johnball20Joined: 09 Mar 2007Posts: 135Location: Whittier, California
Posted: Thu Dec 27, 2007 12:28 am Post subject: Requip
Zeusa, You and your doctor should both be concerned with behavioral changes due to the dopamine agonist Requip, or any other similar drug. We have had far too many patients in the PD community who have lost greatly from addictive behaviors such as gambling or shopping out of control, or sexual behaviors. Don't take it lightly. You may want to discuss switching to a MAO-B inhibitor like selegiliene (Eldepryl or Zelopar) or rasagiline (Aziliect), or adding Comtan or Tasmar to your medication schedule. John_________________We are working to raise awareness and find a cure.
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ZeusaJoined: 26 Dec 2007Posts: 3
Posted: Thu Dec 27, 2007 6:48 am Post subject: Requip
Thank you John, I appreciate your reply about the side affects regarding requip. My Doctor and I do not take this lightly. I approached him about taking rasagaline but at this point his greatest concern is getting me off the requip first and then pursuing other options. I am also taking Sinemet and maybe that will be enough for now.Last edited by Zeusa on Fri Dec 28, 2007 10:13 pm; edited 1 time in total
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johnball20Joined: 09 Mar 2007Posts: 135Location: Whittier, California
Posted: Thu Dec 27, 2007 9:43 am Post subject: Reuip
Zeusa, I yhink your doctor is very much overstating the case if he believes that ALL Pd medications cause or are linked to compulsive behavior. I don't believe that is the case at all. The problem is almost exclusively with the dopamine agonists. It may be in combination or as a monotherapy, but an agonist has been involved in every case that I know of from conversations with hundreds of PD sufferers. I have not heard reliable data from any source that confirms changes in behavior, particularly compulsive behavior, when an agonist was not involved. That was certainly the case in my own behavioral concerns. John_________________We are working to raise awareness and find a cure.
Back to top
kmcclungJoined: 05 Mar 2007Posts: 49Location: Michigan
Posted: Thu Dec 27, 2007 12:01 pm Post subject:
Zeusa, Our thirty year old house has all new power outlets and fancy light switches. One of the bathrooms has a new blower fan and one of the other bathrooms would have a new fan if I had been able to get my stiff body into the crapped position to change it. The third bathroom doesn't have a fan but I was thinking about how I would put one in that room. Also replaced some ceiling lamps and one ceiling fan. Have a new water softener, new high efficiency furnace and high efficiency central air. Was considering purchasing a sound system for the family room as I dislike the quality of sound from the TV. Also I don't like the quality of the color that TV produces so was considering replacing it. I reduced my Mirapex from 4.5 mg a day to 3 mg a day. Because of convenience I switched neurologist and told the new neuro what I had done with my medication. She thought my action was okay. I later took myself down to 2 mg a day. When Azilect became available in the U.S. I waited a few months and then asked the neurologist if I could get off the Mirapex and take Azilect. She approved that so I am now taking 1 mg of Azilect daily. The furnace and central air were old and needed to be updated. The light switches are nice and when I plug the vacuum cleaner into an outlet the plug doesn't fall out. I still hate the sound and color from the TV and hopefully someday will replace that TV and put in a sound system. The point that I wish to make is that I feel much much much better not taking the Mirapex. The Azilect took a long time before it became effective. I started taking it last February 1st and it was May before I started feeling better. The neurologist said that I should have noticed a change within a few days but I did not. Other benefits: I gained a lot of weight while on Mirapex. I've lost 50 pounds from February to August. My weight is holding steady. Can cut my toe nails without difficulty and see my feet when I look straight down. Much of the stiffness in the trunk of my body has dissipated. If I accidentally walk into a door frame I no longer have pain shoot through my body. Just feel a little silly. I sleep at least four to five hours straight when I go to bed. On Mirapex it was normal to sleep 2 1/2 hours and than wake up and sleep a half hour or so and wake up and this continued until I got up. I had put myself on a driving restriction because of sleep attacks. Now I can drive without fear of falling asleep. Life is wonderful compared to what life was like on Mirapex. I must say that Mirapex and other agonist are good medications. Just not for me and for a few other people. In our Parkinson's support group one individual had hallucinations from Mirapex and another had sleep attacks. For others in our group agonist are working fine. For some individuals Azilect is ineffective, I feel sad about that because I know how much it helps me. Ken
hu Dec 27, 2007 7:01 pm Post subject: Requip
I should clarify John that I was referring to the agonists alone that have been causing my compulsive behavior. I am also on Sinemet and will stay on that. Sorry for the confusion.... Z
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gronholmJoined: 22 Jan 2008Posts: 3
Posted: Tue Jan 22, 2008 7:46 pm Post subject: Requip
if this need - Requip
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ghostgirlJoined: 11 Sep 2007Posts: 19
Posted: Wed Jan 23, 2008 11:28 am Post subject:
alcoholics havve beens shown to maintain higher thann normal adopaamine levels-dopaminee and addictiion go hand in hand....i'm wondeering if aall pd mmedds inherentlly ca;use compulsiive behavior problems.......... best to eveeryonne--gg
Back to top
Rogerstar1Joined: 14 Mar 2007Posts: 199
Posted: Fri Jan 25, 2008 11:22 pm Post subject:
Whether it is the meds, the PD or some combination of the two my experience suggests to me there is a correlation. Long ago when I was a beer drinker at a certain level before inebriation I could detect the endorphins or dopamine or whatever chemical was being triggered/produced cause a distinctive euphoria. It wasn't the onset of drunkeness but a unique rush brought on by dopamine I think. Since I've been ill in the early stages at least, some beer in the evening kept PD symptoms at bay. When I began Sinemet I switched to nonalcohol beer. Miripex, widely known to bring on compulsive behaviosr didn't work for me becase it induced fainting and nausea. Now my substantial ingestion of Sinemet encourages compulsions to buy and bid for things I don't need.....vigilence is required. Compulsions are real! best to you Ghostgirl
Back to top
ghostgirlJoined: 11 Sep 2007Posts: 19
Posted: Sat Jan 26, 2008 12:19 am Post subject:
hi Roger -thx forr the eeaarnest reply :) if we could just use the meds like training wheeells..entra;in ouur brains then drop them'.....bottom line...the 'vigilence for me is mmaintaining enough objectivity t;o know what makes me feel goood in my soul ...my first tryyy of mucuna had mmixed rressults -after only 2 dayss and a tottal of 1 tsp of powder-made me jittery aand feeell nott quittee mysellf-realizeed i am aa compulsive fire builder (in our wood stove) yours in vigileence sharilyn (gg)
Back to top
Rogerstar1Joined: 14 Mar 2007Posts: 199
Posted: Sat Jan 26, 2008 3:57 pm Post subject:
Case in point: I like maple syrup on Breyer's butter pecan ice cream...a lot. Wednesday I received two, 1 quart bottles of 100% pure MEDIUM AMBER grade - good enough and plenty to last me a lifetime. But the truly good stuff is LIGHT AMBER grade. Climate change has caused an abundance of medium and darker grades and a scarcity of light amber. Producers increasingly mis-grade...consumers beware. So Thursday I get right back on line, confirm genuine LIGHTAMBER grade and using Ebay's 'buy it now' mechanism purchase two more quarts and three glass 'nip' sized bottles of light amber maple syrup. Truth betold there's not that big of a difference. You tell me. Was it the Sinemet, PD or just a common lack of will power that has me sitting here feeling stupid? I no longer take agonists. Trivia for today: It takes 40 gallons of raw sap to produce one gallon of 100% pure maple syrup. R.
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ghostgirlJoined: 11 Sep 2007Posts: 19
Posted: Sat Jan 26, 2008 10:31 pm Post subject:
Quote:
rivia for today: It takes 40 gallons of raw sap to produce one gallon of 100% pure maple syrup. are we not unlikke the maple trees?wiith the dark of wintter now is thee sseeason where the sap draws deep within thhe tree ...sso too does our energy draw in deepp ..its pressence in our deppth revealing and makking visible our infirmities---oohh bbut wwill sppring ever come gg
Back to top
teokimhoeJoined: 03 Mar 2007Posts: 41Location: Malaysia
Posted: Tue Jan 29, 2008 5:07 am Post subject: REQUIP (Ropinirole)
I think that the mental side effects of Requip (Ropinirole) such as pathological gambling and hypersexuality have been over-publicized. Based own my own personal experience, Requip seldom causes mental side effects. Very often, Parkinson's patients are on more than one drug. Therefore, the mental side effects which are attributed to Requip could be actually caused by other medications. Dr Chew Nee Kong, Kuala Lumpur, Malaysia._________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to top
johnball20Joined: 09 Mar 2007Posts: 135Location: Whittier, California
Posted: Tue Jan 29, 2008 9:57 am Post subject: Behavioral side effects of dopamine agonists
Teokimhoe, I'm afraid that the behavioral changes associaed with the dopamine agonists, not just Requip (ropinerole), are actually far more frequent than reported, rather than less. That is largely because many patients are unwilling to share the knowledge of these behaviors with their Parkinson's doctors, or their families in many cases, because they are ashamed, or because they have not tied the behavior to the drug. I hae personal experience with changes in behavior (hypersexuality) and know far too many PD patients who have experienced severe gambling addictioins and other disturbing compulsive behaviors. Once the problem is identified, a change in drug prescription produces a change in behavior and the compulsion is no longer a problem. John_________________We are working to raise awareness and find a cure.
Back to top
I was diagnosed as Parkinson's disease patient in 2005.I was prescribed by doctor with Sinemet 25/100 one each three times and Jumex 5 gm one each two times per day for the past of two years.As my physical agility is not too much improving and I decide to change Dr. NK Chew, Neurologist of Pantai Cheras Medical Centre for treatment on the month of July 07 . He optimises my medication to 4 gm Requip (ropinirole) each three times and one Sinemet 25/100 two times a day. I am surprised my agility is 90% improving as told by my two trainers. I am glad I am able to do stretching exercises and gmx classes ie. body combat, pump, yoga, spinning and box and kick exercises for three hours from Monday to Friday. I do massage on every Saturday to loosen my body tiredness. I rest on bed for an hour after my exercises. I find my Physical mobility and agility is normal and PD is very mild from now as told by Dr. Chew.I wish to take this forum to express my thanks to Dr. Chew Nee Kong for his excellent work and his contribution for the Parkinson's patients.TEOKIMHOE
saliva,dry mouth and rough tongue
Posted: Sun Jan 27, 2008 5:23 pm Post subject: Saliva,dry mouth and rough tongue
As lavodopa and dopamine agonsits have sideeffect of the above syndomes I am one of the sufferers, The doctor prescribed me BENZHEXOL to treat the saliva as it's dryness and as it should avoided in the elderly as it adds more thick and sticky saliva, dry mouth and rough tingue desides crack on both side of lips. I do not excessive saliva as told by my dentist that drooling and she introduced me to Bioteii moutn wash and gel to moiturize the dryness. The doctor replaces me amantadine 1/2 dosages and sinemet CR with sinemet 25/100 three times a day. I have stopped taking the Benzhexol but are still not improving. He would optimize progressively. Kindly advise
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Tue Jan 29, 2008 4:04 pm Post subject:
It has not been my experience that levodopa and agonists lead to dry mouth. In fact a lot of times levodopa helps the swallowing which then helps to keep the mouth fresh and not dry. The anticholinergics however as you have observed may result in dry mouth/tongue. Besides cutting dose or not using them I am at a loss to address this issue. Perhaps someone on the forum has a tip?_________________Michael S. Okun, M.D.
As lavodopa and dopamine agonsits have sideeffect of the above syndomes I am one of the sufferers, The doctor prescribed me BENZHEXOL to treat the saliva as it's dryness and as it should avoided in the elderly as it adds more thick and sticky saliva, dry mouth and rough tingue desides crack on both side of lips. I do not excessive saliva as told by my dentist that drooling and she introduced me to Bioteii moutn wash and gel to moiturize the dryness. The doctor replaces me amantadine 1/2 dosages and sinemet CR with sinemet 25/100 three times a day. I have stopped taking the Benzhexol but are still not improving. He would optimize progressively. Kindly advise
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Tue Jan 29, 2008 4:04 pm Post subject:
It has not been my experience that levodopa and agonists lead to dry mouth. In fact a lot of times levodopa helps the swallowing which then helps to keep the mouth fresh and not dry. The anticholinergics however as you have observed may result in dry mouth/tongue. Besides cutting dose or not using them I am at a loss to address this issue. Perhaps someone on the forum has a tip?_________________Michael S. Okun, M.D.
Benzhexol z(anti-cholinergics)
Post subject: Benzhexol (Anti-cholinergics)
I'd like to share the following Information about Benzhexol HCL 2MG (anti-cholinergics) that I am taking HALF DOSE THREE TIMES daily. to stop the excessive saliva caused by sideeffect of dopamine agnoists and lavodopa therapies. However it worsen the saliver and turn it more thicker and stringy ,more dryness mouth and Crack on both side of lips. I think it should be avoided in the ealderly patients. In fact I do not have excessive saliva as toldby my dentist instead thick saliva and dryness mouth. In view of the above I have stopped taking. Kindly advise
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'
Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Tue Jan 29, 2008 5:47 pm Post subject:
I agree with your move! Yours,_________________
I'd like to share the following Information about Benzhexol HCL 2MG (anti-cholinergics) that I am taking HALF DOSE THREE TIMES daily. to stop the excessive saliva caused by sideeffect of dopamine agnoists and lavodopa therapies. However it worsen the saliver and turn it more thicker and stringy ,more dryness mouth and Crack on both side of lips. I think it should be avoided in the ealderly patients. In fact I do not have excessive saliva as toldby my dentist instead thick saliva and dryness mouth. In view of the above I have stopped taking. Kindly advise
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'
Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Tue Jan 29, 2008 5:47 pm Post subject:
I agree with your move! Yours,_________________
Is levodopa slowdown progression of PD?
It only relieves the symptoms and physical disability of sufferes of parkinson but not the treatment. In fact nowsaday PD patients have a higher chance of dying of other common diseases of elderly i.e. heart attack, cancer, pneumonia than PD by itself. However Levodopa treatment improved the quality of life of PD Kindly elaborate?
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Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Tue Jan 29, 2008 5:55 pm Post subject:
Levodopa clearly has changed the lives of millions of PD patients. They now live longer and more rewarding lives and have much less and slower disability compared to before its availability. This positive effect is felt for many years...even up to 11-15 years and beyond. However, levodopa is not a cure. It does not relieve all symptoms. Not all patients respond to it beautifully, although most do respond well. It also has it side effects--some PD populations more susceptible than others, so it needs to be used "wisely". As to whether levodopa slows disease progression in PD, the jury is still out. The data are conflicting. We have a large clinical trial that showed that those on the highest dose of levodopa had the best motor function and had the slowest decline, but the imaging arm of that same study showed that the highest dose also had the biggest decrease in dopamine uptake in the basal ganglia (signifying lesser amounts of surviving dopaminergic neurons). We are unable to definitively explain this discrepancy between the clinical finding and the imaging results. Although most authorities (myself included) give heavier weight on clinical findings. I hope this gives you some insight on this great drug! Yours,_________________Hubert H. Fernandez
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behaviour side effects of dopamine agonists
Posted: Tue Jan 29, 2008 5:07 am Post subject: REQUIP (Ropinirole)
I think that the mental side effects of Requip (Ropinirole) such as pathological gambling and hypersexuality have been over-publicized. Based own my own personal experience, Requip seldom causes mental side effects. Very often, Parkinson's patients are on more than one drug. Therefore, the mental side effects which are attributed to Requip could be actually caused by other medications. Dr Chew Nee Kong, Kuala Lumpur, Malaysia._________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to to
johnball20Joined: 09 Mar 2007Posts: 135Location: Whittier, California
Posted: Tue Jan 29, 2008 9:57 am Post subject: Behavioral side effects of dopamine agonists
Teokimhoe, I'm afraid that the behavioral changes associaed with the dopamine agonists, not just Requip (ropinerole), are actually far more frequent than reported, rather than less. That is largely because many patients are unwilling to share the knowledge of these behaviors with their Parkinson's doctors, or their families in many cases, because they are ashamed, or because they have not tied the behavior to the drug. I hae personal experience with changes in behavior (hypersexuality) and know far too many PD patients who have experienced severe gambling addictioins and other disturbing compulsive behaviors. Once the problem is identified, a change in drug prescription produces a change in behavior and the compulsion is no longer a problem. John_________________We are working to raise awareness and find a cure.
Back to
I think that the mental side effects of Requip (Ropinirole) such as pathological gambling and hypersexuality have been over-publicized. Based own my own personal experience, Requip seldom causes mental side effects. Very often, Parkinson's patients are on more than one drug. Therefore, the mental side effects which are attributed to Requip could be actually caused by other medications. Dr Chew Nee Kong, Kuala Lumpur, Malaysia._________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to to
johnball20Joined: 09 Mar 2007Posts: 135Location: Whittier, California
Posted: Tue Jan 29, 2008 9:57 am Post subject: Behavioral side effects of dopamine agonists
Teokimhoe, I'm afraid that the behavioral changes associaed with the dopamine agonists, not just Requip (ropinerole), are actually far more frequent than reported, rather than less. That is largely because many patients are unwilling to share the knowledge of these behaviors with their Parkinson's doctors, or their families in many cases, because they are ashamed, or because they have not tied the behavior to the drug. I hae personal experience with changes in behavior (hypersexuality) and know far too many PD patients who have experienced severe gambling addictioins and other disturbing compulsive behaviors. Once the problem is identified, a change in drug prescription produces a change in behavior and the compulsion is no longer a problem. John_________________We are working to raise awareness and find a cure.
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saliva,dry moutn and rought tongue
: Sun Jan 27, 2008 7:43 pm Post subject: Saliva,dry mouth and rough tongue
Dear Doctor, Sorry I keep on amending the emails. As lavodopa and dopamine agonsits have sideeffect of the above syndomes I am one of the sufferers, The doctor prescribed me BENZHEXOL(anto-cholinergic) to treat the saliva as it's dryness and it worsen the syndoms as saliva turn more thicker, more sticky ,more dryness mouth and rough tongue besides crack on both side of lips. More water taking to mininise the dryness mouth.
I did not have excessive saliva as told by my dentist that drooling from my mouth and she introduced me to Bioteii mouth wash and gel to moiturize the dryness, taking ice tube to mininise it.
I still continue taking requip 12mg daily. In view of the above my doctor replaces me amantadine 1/2 dosages and sinemet CR with sinemet 25/100 three times a day. I have stopped taking the Benzhexol but the sickness are still not improving. He would optimize the medication progressively. Kindly advise
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'
Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Tue Jan 29, 2008 4:06 pm Post subject:
Thanks for the question. I have responded to the question in a previous post a few minutes ago but let me add that dry mouth and anticholinergics can also lead to cavities----if you are on anticholinergics brush often._________________Michael S. Okun, M.D
Dear Doctor, Sorry I keep on amending the emails. As lavodopa and dopamine agonsits have sideeffect of the above syndomes I am one of the sufferers, The doctor prescribed me BENZHEXOL(anto-cholinergic) to treat the saliva as it's dryness and it worsen the syndoms as saliva turn more thicker, more sticky ,more dryness mouth and rough tongue besides crack on both side of lips. More water taking to mininise the dryness mouth.
I did not have excessive saliva as told by my dentist that drooling from my mouth and she introduced me to Bioteii mouth wash and gel to moiturize the dryness, taking ice tube to mininise it.
I still continue taking requip 12mg daily. In view of the above my doctor replaces me amantadine 1/2 dosages and sinemet CR with sinemet 25/100 three times a day. I have stopped taking the Benzhexol but the sickness are still not improving. He would optimize the medication progressively. Kindly advise
Back to top
'
Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Tue Jan 29, 2008 4:06 pm Post subject:
Thanks for the question. I have responded to the question in a previous post a few minutes ago but let me add that dry mouth and anticholinergics can also lead to cavities----if you are on anticholinergics brush often._________________Michael S. Okun, M.D
thick , sticky saliva, and dryness mouth?
rough tongue
As lavodopa and dopamine agonsits have sideeffect of the above syndomes I am one of the sufferers, The doctor prescribed me BENZHEXOL to treat the saliva as it's dryness and as it should avoided in the elderly as it adds more thick and sticky saliva, dry mouth and rough tingue desides crack on both side of lips. I do not excessive saliva as told by my dentist that drooling and she introduced me to Bioteii moutn wash and gel to moiturize the dryness. The doctor replaces me amantadine 1/2 dosages and sinemet CR with sinemet 25/100 three times a day. I have stopped taking the Benzhexol but are still not improving. He would optimize progressively. Kindly advise
Back to top
');
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Tue Jan 29, 2008 4:04 pm Post subject:
It has not been my experience that levodopa and agonists lead to dry mouth. In fact a lot of times levodopa helps the swallowing which then helps to keep the mouth fresh and not dry. The anticholinergics however as you have observed may result in dry mouth/tongue. Besides cutting dose or not using them I am at a loss to address this issue. Perhaps someone on the forum has a tip?_________________Michael S. Okun, M.D.
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As lavodopa and dopamine agonsits have sideeffect of the above syndomes I am one of the sufferers, The doctor prescribed me BENZHEXOL to treat the saliva as it's dryness and as it should avoided in the elderly as it adds more thick and sticky saliva, dry mouth and rough tingue desides crack on both side of lips. I do not excessive saliva as told by my dentist that drooling and she introduced me to Bioteii moutn wash and gel to moiturize the dryness. The doctor replaces me amantadine 1/2 dosages and sinemet CR with sinemet 25/100 three times a day. I have stopped taking the Benzhexol but are still not improving. He would optimize progressively. Kindly advise
Back to top
');
//-->
Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Tue Jan 29, 2008 4:04 pm Post subject:
It has not been my experience that levodopa and agonists lead to dry mouth. In fact a lot of times levodopa helps the swallowing which then helps to keep the mouth fresh and not dry. The anticholinergics however as you have observed may result in dry mouth/tongue. Besides cutting dose or not using them I am at a loss to address this issue. Perhaps someone on the forum has a tip?_________________Michael S. Okun, M.D.
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Tuesday, January 29, 2008
Are Diets delaying PD Progression?
Mon Jan 28, 2008 11:49 am Post subject: Are diets delaying PD progression?
What's about small amounts of liqour or beer per day as it shown that there is a decreased risk on heart attack and stroke on some people? It relieves the risk of sideeffect of Levodopa and Dopamine Agonists taking. and slowdown or delaying PD progression_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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GautamJoined: 01 Mar 2007Posts: 39Location: Goa, India
Posted: Tue Jan 29, 2008 2:33 am Post subject:
Are you asking a question or making a statement? I used to love a glass of beer or red wine before, but after PD I find it difficult to tolerate alcohol .
What's about small amounts of liqour or beer per day as it shown that there is a decreased risk on heart attack and stroke on some people? It relieves the risk of sideeffect of Levodopa and Dopamine Agonists taking. and slowdown or delaying PD progression_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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GautamJoined: 01 Mar 2007Posts: 39Location: Goa, India
Posted: Tue Jan 29, 2008 2:33 am Post subject:
Are you asking a question or making a statement? I used to love a glass of beer or red wine before, but after PD I find it difficult to tolerate alcohol .
Are nutrients associated with PD progression?
Fri Jan 25, 2008 4:02 am Post subject: Are nutrients associated with PD progression?
As Parkinson's disease (Lifetime partner) is a not going away disease we need nutrient(weapon) to battle the diseases from it's progression and slowdown the diseases. Besides exercises to strenthen your muscle stiffness and rigidity and mobilities nutrients are important for us to arm ourself to fight the PD. As Parkinson's have motor and non motor symptoms, Nutrients help patient stay healthy and keep fit._________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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Joe or BobJoined: 12 Aug 2007Posts: 79
Posted: Sun Jan 27, 2008 3:26 pm Post subject:
Dopamine doesn't just make itself. Nutrients such as L-tyrosine, ferrous iron and pyridoxine are essential for the formation of dopamine. The formation of dopamine increases or decreases according to their concentrations. see Biochemistry of Parkinson's Disease http://viartis.net/parkinsons.disease/biochemistry.htm
As Parkinson's disease (Lifetime partner) is a not going away disease we need nutrient(weapon) to battle the diseases from it's progression and slowdown the diseases. Besides exercises to strenthen your muscle stiffness and rigidity and mobilities nutrients are important for us to arm ourself to fight the PD. As Parkinson's have motor and non motor symptoms, Nutrients help patient stay healthy and keep fit._________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to top
Joe or BobJoined: 12 Aug 2007Posts: 79
Posted: Sun Jan 27, 2008 3:26 pm Post subject:
Dopamine doesn't just make itself. Nutrients such as L-tyrosine, ferrous iron and pyridoxine are essential for the formation of dopamine. The formation of dopamine increases or decreases according to their concentrations. see Biochemistry of Parkinson's Disease http://viartis.net/parkinsons.disease/biochemistry.htm
Sunday, January 27, 2008
Is Exercise harmful or worsen Parkinson ;pateint?
Joined: 03 Mar 2007Posts: 33Location: Malaysia
Posted: Sun Jan 20, 2008 4:40 am Post subject: Is Exercise harmful or worsen Parkinson patient?
Exercise is helpful for PD to slowdown from it's progression. However, some exercises are not suitable for PD. It depends on individual's physcial abilities/endurance. Let us discuss what are exercises suitable for PD and not worsen the diseases?_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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GautamJoined: 01 Mar 2007Posts: 36Location: Goa, India
Posted: Fri Jan 25, 2008 4:51 am Post subject:
I am not sure which exercises are harmfull for PD, but I recommend Yoga, Tai Chi, Deep breathing exercises and swimming. In addition, stretching exercises are a must. Cycling, provided you can still maintain your balance!! Gautam
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wheelersceJoined: 02 Mar 2007Posts: 270Location: MI
Posted: Fri Jan 25, 2008 7:42 am Post subject:
I walk and do Curves. I've wondered if any of the other women out there do Curves. It may not be as good for stiffness and balance as Yoga or Tai Chi, but I figure something is better than nothing when it comes to exercise, and this works well with my schedule and lifestyle. sw
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granniDJoined: 21 Oct 2007Posts: 71Location: Calgary Alberta Canada
Posted: Sat Jan 26, 2008 12:49 pm Post subject: Curves Grannid
wheelersce wrote:
I walk and do Curves. I've wondered if any of the other women out there do Curves. It may not be as good for stiffness and balance as Yoga or Tai Chi, but I figure something is better than nothing when it comes to exercise, and this works well with my schedule and lifestyle. swI go to Curves as much as I can I have had to take a 3 months break because the weather keeps me confined for alot of days. and my shoulder was acting up Anyway it helped me a lot and I wasn't really aware of how much it did for me until I quit going. It is very good for the legs and feet and the depression. Somehow i don't know why but exercise lifts the Spirit as well. I will be going back in April for sure Grannid
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Posted: Sun Jan 20, 2008 4:40 am Post subject: Is Exercise harmful or worsen Parkinson patient?
Exercise is helpful for PD to slowdown from it's progression. However, some exercises are not suitable for PD. It depends on individual's physcial abilities/endurance. Let us discuss what are exercises suitable for PD and not worsen the diseases?_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to top
GautamJoined: 01 Mar 2007Posts: 36Location: Goa, India
Posted: Fri Jan 25, 2008 4:51 am Post subject:
I am not sure which exercises are harmfull for PD, but I recommend Yoga, Tai Chi, Deep breathing exercises and swimming. In addition, stretching exercises are a must. Cycling, provided you can still maintain your balance!! Gautam
Back to top
wheelersceJoined: 02 Mar 2007Posts: 270Location: MI
Posted: Fri Jan 25, 2008 7:42 am Post subject:
I walk and do Curves. I've wondered if any of the other women out there do Curves. It may not be as good for stiffness and balance as Yoga or Tai Chi, but I figure something is better than nothing when it comes to exercise, and this works well with my schedule and lifestyle. sw
Back to top
granniDJoined: 21 Oct 2007Posts: 71Location: Calgary Alberta Canada
Posted: Sat Jan 26, 2008 12:49 pm Post subject: Curves Grannid
wheelersce wrote:
I walk and do Curves. I've wondered if any of the other women out there do Curves. It may not be as good for stiffness and balance as Yoga or Tai Chi, but I figure something is better than nothing when it comes to exercise, and this works well with my schedule and lifestyle. swI go to Curves as much as I can I have had to take a 3 months break because the weather keeps me confined for alot of days. and my shoulder was acting up Anyway it helped me a lot and I wasn't really aware of how much it did for me until I quit going. It is very good for the legs and feet and the depression. Somehow i don't know why but exercise lifts the Spirit as well. I will be going back in April for sure Grannid
Back to top
Patient's with deficient sodium?
Posted: Sat Jan 26, 2008 7:22 pm Post subject: Patient's with deficient sodium
Parkinson's patient with deficient sodium What are the symptoms for parkinson's patient with deficient sodium? What are the signs of sodium deficiency for parkinson's patient? What are the function of sodium in our body? What are the causes of deficiency? One major cause of sodium deficiency is excess sweating.
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Sun Jan 27, 2008 8:12 am Post subject:
Serum sodium is an electrolyte in the blood and its deficiency is often a reflection of the hydration status as well as an indirect measure of its balance (blood versus excretion). In PD we have not discovered any link between sodium and the neurodegeneration. We treat deficiency (usually an internist or family practice doc) by identifying the cause and addressing it. Abnormal sodium in anyone including PD patients can be seen with symptoms including things like dehydration, seizures, mental status issues (confusion). Abnormal electrolytes can theoretically worsen the clinical symptoms in a patient with a neurodegenerative disease such as PD and that is why we aggressive correct these problems when identified. Serum sodium if very deficient has to be corrected slowly to prevent damage to the brainstem (central pontine myelinolysis).______
Parkinson's patient with deficient sodium What are the symptoms for parkinson's patient with deficient sodium? What are the signs of sodium deficiency for parkinson's patient? What are the function of sodium in our body? What are the causes of deficiency? One major cause of sodium deficiency is excess sweating.
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Sun Jan 27, 2008 8:12 am Post subject:
Serum sodium is an electrolyte in the blood and its deficiency is often a reflection of the hydration status as well as an indirect measure of its balance (blood versus excretion). In PD we have not discovered any link between sodium and the neurodegeneration. We treat deficiency (usually an internist or family practice doc) by identifying the cause and addressing it. Abnormal sodium in anyone including PD patients can be seen with symptoms including things like dehydration, seizures, mental status issues (confusion). Abnormal electrolytes can theoretically worsen the clinical symptoms in a patient with a neurodegenerative disease such as PD and that is why we aggressive correct these problems when identified. Serum sodium if very deficient has to be corrected slowly to prevent damage to the brainstem (central pontine myelinolysis).______
Saturday, January 26, 2008
Is it a shame for the medical world?
Fri Jan 25, 2008 3:53 am Post subject: Is it a shame for the medical world?
Do you agree that Parkinson's progression with time? Despite there are new medications i.e one, second and third lines for Parkinson's treatment there are still no way to stop it's progression with time. Is it a shame for the medical world?_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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GautamJoined: 01 Mar 2007Posts: 36Location: Goa, India
Posted: Fri Jan 25, 2008 4:58 am Post subject:
Now thats going in to the Danger Zone! Just make sure that your Neuro or MDS isn't reading your postings in this forum
Joined: 12 Aug 2007Posts: 77
Posted: Sun Jan 27, 2008 3:28 pm Post subject:
I've known people who have rid or reduced their symptoms. It's not all one way. In future you won't have Parkinson's Disease. Nor will anyone else
Posted: Fri Jan 25, 2008 3:53 am Post subject: Is it a shame for the medical world?
Do you agree that Parkinson's progression with time? Despite there are new medications i.e one, second and third lines for Parkinson's treatment there are still no way to stop it's progression with time. Is it a shame for the medical world?_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to top
GautamJoined: 01 Mar 2007Posts: 45Location: Goa, India
Posted: Fri Jan 25, 2008 4:58 am Post subject:
Now thats going in to the Danger Zone! Just make sure that your Neuro or MDS isn't reading your postings in this forum!!
Back to top
Joe or BobJoined: 12 Aug 2007Posts: 88
Posted: Sun Jan 27, 2008 3:28 pm Post subject:
I've known people who have rid or reduced their symptoms. It's not all one way. In future you won't have Parkinson's Disease. Nor will anyone else.
Do you agree that Parkinson's progression with time? Despite there are new medications i.e one, second and third lines for Parkinson's treatment there are still no way to stop it's progression with time. Is it a shame for the medical world?_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to top
GautamJoined: 01 Mar 2007Posts: 36Location: Goa, India
Posted: Fri Jan 25, 2008 4:58 am Post subject:
Now thats going in to the Danger Zone! Just make sure that your Neuro or MDS isn't reading your postings in this forum
Joined: 12 Aug 2007Posts: 77
Posted: Sun Jan 27, 2008 3:28 pm Post subject:
I've known people who have rid or reduced their symptoms. It's not all one way. In future you won't have Parkinson's Disease. Nor will anyone else
Posted: Fri Jan 25, 2008 3:53 am Post subject: Is it a shame for the medical world?
Do you agree that Parkinson's progression with time? Despite there are new medications i.e one, second and third lines for Parkinson's treatment there are still no way to stop it's progression with time. Is it a shame for the medical world?_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to top
GautamJoined: 01 Mar 2007Posts: 45Location: Goa, India
Posted: Fri Jan 25, 2008 4:58 am Post subject:
Now thats going in to the Danger Zone! Just make sure that your Neuro or MDS isn't reading your postings in this forum!!
Back to top
Joe or BobJoined: 12 Aug 2007Posts: 88
Posted: Sun Jan 27, 2008 3:28 pm Post subject:
I've known people who have rid or reduced their symptoms. It's not all one way. In future you won't have Parkinson's Disease. Nor will anyone else.
Friday, January 25, 2008
The dilemma of early parkinson's patient?
Sun Jan 20, 2008 4:49 am Post subject: The Dilemma of early Parkinson's patient?
As an early PD patient I experience emotional disorders - anxiety,depression, apathy, uncertainties and stress. : I have fear as follows:- When do I tell others, and what do I say? Whether to tell " is a question posed by many people in the early stage of PD disease. 1. Is it jeopardize my job? Don't let other people feel sorry for me and for my wife and children? 2. Keep it yourself as secret and privacy and once it reveals you feel sorry as you cannot take it back. 3. I feel relieve as I tell out and I could get some support. 4. It is hard to keep it secret as PD is a not ' going on "disease and the tension of hiding it. 5. It helps more people to aware the diseases_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to top
Rogerstar1Joined: 14 Mar 2007Posts: 191
Posted: Thu Jan 24, 2008 5:44 pm Post subject:
Teokimhoe- I disclosed to my family the day I was diagnosed many years ago and have never regretted doing so. And to friends within days. As a trial lawyer with a busy schedule of serious cases it was professionally and ethically incumbent to make immediate, full disclosure to my clients and courts before whom I appeared. So I had no option. The further points you raise favoring disclosure I agree with. Thanks for posting and all the best to you, Teokimhoe. Rogerstar
Hi Teokimhoe and welcome to the forum. You have raised an extremely valid and important point. I was dx'd at age 41, 11 years back. My family knew about my ailment and were extremely supportive. However, I did not want to reveal it to my friends and started going in to a shell, withdrawing myself from all social get-togethers and activities. Being an extrovert, my friends were puzzled at the change and tried to draw me out, but eventually gave up and I became a recluse, wallowing in self pity – the ‘Why Me’ syndrome as I call it! Luckily Geeta my wife of 29 years, stood besides me like a rock, putting up with my depression, tantrums and the perpetual chip on my shoulders!! In addition to the support she gave me, she also had to ensure that our 2 young kids were not traumatised by their dad's strange behaviour and had to cope with her own fears as well. I am eternally grateful to her. I then came across the wonderful bunch of folks in this forum and cannot quantify the support I received from them. Today, I tell people right away that I have Parkinson’s and find that they are more comfortable once they know my problem. I normally give the example of Diabetics and their need to take synthetic insulin. If there is no social stigma against Diabetics, why should there be against PWP’s? Finally, I thank God that it’s just PD, it could have been something much worse!! All the best and keep participating actively in the forum. Regards Gautam
Joined: 09 Mar 2007Posts: 133Location: Whittier, California
Posted: Sat Jan 26, 2008 11:39 am Post subject: Early diagnosis of PD
Gautam, What a great posting! I think you said it very well. It is such a pleasure to see you back on the forum. I hope you are well. John_________________We are working to raise awareness and find a cure.
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');
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pdgoawayJoined: 25 Jan 2008Posts: 3
Posted: Sat Jan 26, 2008 4:13 pm Post subject:
Hello, Teokimhoe Massage is very good to cure emotion disorder. Chines Tuina, Accupress massage, Japanese Tsiashu can help you a lot. Meanwhile, take the treatment of Chiropratic or ostheopathic to keep your neck spin in good placement, these treatments work together to prevent the developing of PD. Practice streching yoga (If the yoga teacher knows well the structure of spine and design the yoga posture special for you, it could be better.), running, swimming like fish to make the joins of your spine loosen, all these will be special good for the early pd patient. If you find a good massotherapist, the immediate relaxation will drive the bad emotion away from you. Once a month enough. Then you will have interest to do other things. I have two early pd patients, their pd doesn't develop, just a little bit tremor.
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GautamJoined: 01 Mar 2007Posts: 37Location: Goa, India
Posted: Sun Jan 27, 2008 11:32 pm Post subject:
Thanks John, good to be back. Have been quite busy and have not been on the net for quite some time. Will try and participate more often. Regards Gautam
Joined: 09 Mar 2007Posts: 133Location: Whittier, California
Posted: Sat Jan 26, 2008 11:39 am Post subject: Early diagnosis of PD
Gautam, What a great posting! I think you said it very well. It is such a pleasure to see you back on the forum. I hope you are well. John_________________We are working to raise awareness and find a cure.
Back to top
pdgoawayJoined: 25 Jan 2008Posts: 3
Posted: Sat Jan 26, 2008 4:13 pm Post subject:
Hello, Teokimhoe Massage is very good to cure emotion disorder. Chines Tuina, Accupress massage, Japanese Tsiashu can help you a lot. Meanwhile, take the treatment of Chiropratic or ostheopathic to keep your neck spin in good placement, these treatments work together to prevent the developing of PD. Practice streching yoga (If the yoga teacher knows well the structure of spine and design the yoga posture special for you, it could be better.), running, swimming like fish to make the joins of your spine loosen, all these will be special good for the early pd patient. If you find a good massotherapist, the immediate relaxation will drive the bad emotion away from you. Once a month enough. Then you will have interest to do other things. I have two early pd patients, their pd doesn't develop, just a little bit tremor.
Back to t0p
GautamJoined: 01 Mar 2007Posts: 37Location: Goa, India
Posted: Sun Jan 27, 2008 11:32 pm Post subject:
Thanks John, good to be back. Have been quite busy and have not been on the net for quite some time. Will try and participate more often. Regards Gautam
As an early PD patient I experience emotional disorders - anxiety,depression, apathy, uncertainties and stress. : I have fear as follows:- When do I tell others, and what do I say? Whether to tell " is a question posed by many people in the early stage of PD disease. 1. Is it jeopardize my job? Don't let other people feel sorry for me and for my wife and children? 2. Keep it yourself as secret and privacy and once it reveals you feel sorry as you cannot take it back. 3. I feel relieve as I tell out and I could get some support. 4. It is hard to keep it secret as PD is a not ' going on "disease and the tension of hiding it. 5. It helps more people to aware the diseases_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
Back to top
Rogerstar1Joined: 14 Mar 2007Posts: 191
Posted: Thu Jan 24, 2008 5:44 pm Post subject:
Teokimhoe- I disclosed to my family the day I was diagnosed many years ago and have never regretted doing so. And to friends within days. As a trial lawyer with a busy schedule of serious cases it was professionally and ethically incumbent to make immediate, full disclosure to my clients and courts before whom I appeared. So I had no option. The further points you raise favoring disclosure I agree with. Thanks for posting and all the best to you, Teokimhoe. Rogerstar
Hi Teokimhoe and welcome to the forum. You have raised an extremely valid and important point. I was dx'd at age 41, 11 years back. My family knew about my ailment and were extremely supportive. However, I did not want to reveal it to my friends and started going in to a shell, withdrawing myself from all social get-togethers and activities. Being an extrovert, my friends were puzzled at the change and tried to draw me out, but eventually gave up and I became a recluse, wallowing in self pity – the ‘Why Me’ syndrome as I call it! Luckily Geeta my wife of 29 years, stood besides me like a rock, putting up with my depression, tantrums and the perpetual chip on my shoulders!! In addition to the support she gave me, she also had to ensure that our 2 young kids were not traumatised by their dad's strange behaviour and had to cope with her own fears as well. I am eternally grateful to her. I then came across the wonderful bunch of folks in this forum and cannot quantify the support I received from them. Today, I tell people right away that I have Parkinson’s and find that they are more comfortable once they know my problem. I normally give the example of Diabetics and their need to take synthetic insulin. If there is no social stigma against Diabetics, why should there be against PWP’s? Finally, I thank God that it’s just PD, it could have been something much worse!! All the best and keep participating actively in the forum. Regards Gautam
Joined: 09 Mar 2007Posts: 133Location: Whittier, California
Posted: Sat Jan 26, 2008 11:39 am Post subject: Early diagnosis of PD
Gautam, What a great posting! I think you said it very well. It is such a pleasure to see you back on the forum. I hope you are well. John_________________We are working to raise awareness and find a cure.
Back to top
');
//-->
pdgoawayJoined: 25 Jan 2008Posts: 3
Posted: Sat Jan 26, 2008 4:13 pm Post subject:
Hello, Teokimhoe Massage is very good to cure emotion disorder. Chines Tuina, Accupress massage, Japanese Tsiashu can help you a lot. Meanwhile, take the treatment of Chiropratic or ostheopathic to keep your neck spin in good placement, these treatments work together to prevent the developing of PD. Practice streching yoga (If the yoga teacher knows well the structure of spine and design the yoga posture special for you, it could be better.), running, swimming like fish to make the joins of your spine loosen, all these will be special good for the early pd patient. If you find a good massotherapist, the immediate relaxation will drive the bad emotion away from you. Once a month enough. Then you will have interest to do other things. I have two early pd patients, their pd doesn't develop, just a little bit tremor.
Back to top
GautamJoined: 01 Mar 2007Posts: 37Location: Goa, India
Posted: Sun Jan 27, 2008 11:32 pm Post subject:
Thanks John, good to be back. Have been quite busy and have not been on the net for quite some time. Will try and participate more often. Regards Gautam
Joined: 09 Mar 2007Posts: 133Location: Whittier, California
Posted: Sat Jan 26, 2008 11:39 am Post subject: Early diagnosis of PD
Gautam, What a great posting! I think you said it very well. It is such a pleasure to see you back on the forum. I hope you are well. John_________________We are working to raise awareness and find a cure.
Back to top
pdgoawayJoined: 25 Jan 2008Posts: 3
Posted: Sat Jan 26, 2008 4:13 pm Post subject:
Hello, Teokimhoe Massage is very good to cure emotion disorder. Chines Tuina, Accupress massage, Japanese Tsiashu can help you a lot. Meanwhile, take the treatment of Chiropratic or ostheopathic to keep your neck spin in good placement, these treatments work together to prevent the developing of PD. Practice streching yoga (If the yoga teacher knows well the structure of spine and design the yoga posture special for you, it could be better.), running, swimming like fish to make the joins of your spine loosen, all these will be special good for the early pd patient. If you find a good massotherapist, the immediate relaxation will drive the bad emotion away from you. Once a month enough. Then you will have interest to do other things. I have two early pd patients, their pd doesn't develop, just a little bit tremor.
Back to t0p
GautamJoined: 01 Mar 2007Posts: 37Location: Goa, India
Posted: Sun Jan 27, 2008 11:32 pm Post subject:
Thanks John, good to be back. Have been quite busy and have not been on the net for quite some time. Will try and participate more often. Regards Gautam
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