Sun Jan 20, 2008 4:49 am Post subject: The Dilemma of early Parkinson's patient?
As an early PD patient I experience emotional disorders - anxiety,depression, apathy, uncertainties and stress. : I have fear as follows:- When do I tell others, and what do I say? Whether to tell " is a question posed by many people in the early stage of PD disease. 1. Is it jeopardize my job? Don't let other people feel sorry for me and for my wife and children? 2. Keep it yourself as secret and privacy and once it reveals you feel sorry as you cannot take it back. 3. I feel relieve as I tell out and I could get some support. 4. It is hard to keep it secret as PD is a not ' going on "disease and the tension of hiding it. 5. It helps more people to aware the diseases_________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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Rogerstar1Joined: 14 Mar 2007Posts: 191
Posted: Thu Jan 24, 2008 5:44 pm Post subject:
Teokimhoe- I disclosed to my family the day I was diagnosed many years ago and have never regretted doing so. And to friends within days. As a trial lawyer with a busy schedule of serious cases it was professionally and ethically incumbent to make immediate, full disclosure to my clients and courts before whom I appeared. So I had no option. The further points you raise favoring disclosure I agree with. Thanks for posting and all the best to you, Teokimhoe. Rogerstar
Hi Teokimhoe and welcome to the forum. You have raised an extremely valid and important point. I was dx'd at age 41, 11 years back. My family knew about my ailment and were extremely supportive. However, I did not want to reveal it to my friends and started going in to a shell, withdrawing myself from all social get-togethers and activities. Being an extrovert, my friends were puzzled at the change and tried to draw me out, but eventually gave up and I became a recluse, wallowing in self pity – the ‘Why Me’ syndrome as I call it! Luckily Geeta my wife of 29 years, stood besides me like a rock, putting up with my depression, tantrums and the perpetual chip on my shoulders!! In addition to the support she gave me, she also had to ensure that our 2 young kids were not traumatised by their dad's strange behaviour and had to cope with her own fears as well. I am eternally grateful to her. I then came across the wonderful bunch of folks in this forum and cannot quantify the support I received from them. Today, I tell people right away that I have Parkinson’s and find that they are more comfortable once they know my problem. I normally give the example of Diabetics and their need to take synthetic insulin. If there is no social stigma against Diabetics, why should there be against PWP’s? Finally, I thank God that it’s just PD, it could have been something much worse!! All the best and keep participating actively in the forum. Regards Gautam
Joined: 09 Mar 2007Posts: 133Location: Whittier, California
Posted: Sat Jan 26, 2008 11:39 am Post subject: Early diagnosis of PD
Gautam, What a great posting! I think you said it very well. It is such a pleasure to see you back on the forum. I hope you are well. John_________________We are working to raise awareness and find a cure.
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pdgoawayJoined: 25 Jan 2008Posts: 3
Posted: Sat Jan 26, 2008 4:13 pm Post subject:
Hello, Teokimhoe Massage is very good to cure emotion disorder. Chines Tuina, Accupress massage, Japanese Tsiashu can help you a lot. Meanwhile, take the treatment of Chiropratic or ostheopathic to keep your neck spin in good placement, these treatments work together to prevent the developing of PD. Practice streching yoga (If the yoga teacher knows well the structure of spine and design the yoga posture special for you, it could be better.), running, swimming like fish to make the joins of your spine loosen, all these will be special good for the early pd patient. If you find a good massotherapist, the immediate relaxation will drive the bad emotion away from you. Once a month enough. Then you will have interest to do other things. I have two early pd patients, their pd doesn't develop, just a little bit tremor.
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GautamJoined: 01 Mar 2007Posts: 37Location: Goa, India
Posted: Sun Jan 27, 2008 11:32 pm Post subject:
Thanks John, good to be back. Have been quite busy and have not been on the net for quite some time. Will try and participate more often. Regards Gautam
Joined: 09 Mar 2007Posts: 133Location: Whittier, California
Posted: Sat Jan 26, 2008 11:39 am Post subject: Early diagnosis of PD
Gautam, What a great posting! I think you said it very well. It is such a pleasure to see you back on the forum. I hope you are well. John_________________We are working to raise awareness and find a cure.
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pdgoawayJoined: 25 Jan 2008Posts: 3
Posted: Sat Jan 26, 2008 4:13 pm Post subject:
Hello, Teokimhoe Massage is very good to cure emotion disorder. Chines Tuina, Accupress massage, Japanese Tsiashu can help you a lot. Meanwhile, take the treatment of Chiropratic or ostheopathic to keep your neck spin in good placement, these treatments work together to prevent the developing of PD. Practice streching yoga (If the yoga teacher knows well the structure of spine and design the yoga posture special for you, it could be better.), running, swimming like fish to make the joins of your spine loosen, all these will be special good for the early pd patient. If you find a good massotherapist, the immediate relaxation will drive the bad emotion away from you. Once a month enough. Then you will have interest to do other things. I have two early pd patients, their pd doesn't develop, just a little bit tremor.
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GautamJoined: 01 Mar 2007Posts: 37Location: Goa, India
Posted: Sun Jan 27, 2008 11:32 pm Post subject:
Thanks John, good to be back. Have been quite busy and have not been on the net for quite some time. Will try and participate more often. Regards Gautam
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