Does everbody get worse?

Does everybody with Parkinsons Disease get worse, or do some people stay the same for years, or even improve ?
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ahimsajackJoined: 25 Apr 2007Posts: 545
Posted: Tue Feb 26, 2008 8:12 am Post subject:

Sorry to say, everyone gets worse, although at different rates. Jack_________________We are what we think, with our thoughts we create our world.
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johnball20@gmail.comJoined: 23 Feb 2008Posts: 3
Posted: Tue Feb 26, 2008 11:15 am Post subject: Does everyone get worse?

Well, I am not sure I want to agree with Jack, but I know that he is right in at least the sense that there is no cure for the disease itself. It will progress, and the number of affected brain cells will increase over time. Parkinson's is a degenerative disease, but the brain has shown a lot more neuroplasticity than was previously believed possible. I know that strenuous exercise has kept me thinking clearly and physically functional over the last 25+ years of living with this disease. I do think we have the ability to develop strategies that help us manage the disease better. I know my Parkinson's symptoms are more severe today than they were 25 years ago when I was diagnmosed, but I also know that iam in better physical shape today than I was then. I can still do all the things I want to get done during the day because I plan better, I work smarter, I get help when or if I need it, and I don't try to rush through things. We can get better, in spite of the disease getting worse. John
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ahimsajackJoined: 25 Apr 2007Posts: 545
Posted: Tue Feb 26, 2008 11:24 am Post subject:

John, thanks for the reminder. I agree with you totally. Even though PD progresses and cannot be stopped, the way we cope with it makes a huge difference. Our overall well being can actually improve in spite of the PD. As with you, I make daily use of exercise, prayer, meditation, and a positive outlook. Jack_________________We are what we think, with our thoughts we create our world.
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John ShJoined: 05 Mar 2007Posts: 136Location: Arroyo Grande, California
Posted: Tue Feb 26, 2008 12:41 pm Post subject: Providentia

I went back over to PDrecoverers@yahoogroups.com a couple of days ago, and got some responses. Providencia wrote a very interesting message that pretty well mirrors how I feel. She goes by "risingsuntouch." Check it out. John S
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John ShJoined: 05 Mar 2007Posts: 136Location: Arroyo Grande, California
Posted: Tue Feb 26, 2008 12:44 pm Post subject: Sorry

I goofed, you get the Yahoo email address. Sorry, John S
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John ShJoined: 05 Mar 2007Posts: 136Location: Arroyo Grande, California
Posted: Tue Feb 26, 2008 1:07 pm Post subject: I'll try once more

Try this....John S http://health.groups.yahoo.com/group/PDrecoverers/
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Archduke Ferdinand IIJoined: 12 Aug 2007Posts: 179
Posted: Tue Feb 26, 2008 2:34 pm Post subject:

I heard from somebody today who had classic Parkinson's Disease who doesn't have it any more, and is no longer taking any drugs for it. It hasn't been all in the wrong direction for everyone.
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John ShJoined: 05 Mar 2007Posts: 136Location: Arroyo Grande, California
Posted: Tue Feb 26, 2008 6:39 pm Post subject:

Is this the woman that you mentioned who was taking the dopavite?
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Archduke Ferdinand IIJoined: 12 Aug 2007Posts: 179
Posted: Tue Feb 26, 2008 6:56 pm Post subject:

Yes
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John ShJoined: 05 Mar 2007Posts: 136Location: Arroyo Grande, California
Posted: Tue Feb 26, 2008 7:08 pm Post subject:

Do you think you could interest her in telling us about her experiences with it? John S (the dopavite)
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teokimhoeJoined: 03 Mar 2007Posts: 65Location: Malaysia
Posted: Wed Feb 27, 2008 9:53 am Post subject:

Parkinson's is a life times disease and is "not going away" as different what other illness. It is a progression's disease. Medications and exercises could slowdown the disease but it is not cure or the end. There is still life after Parkinson's. With the vast improvement of the treatment people would not die from Parkinson's disease but die on other sickness. At least we could have a choice on medications. There are sideeffects on medications and it is indvidualised. The doctor finds difficulty to diagnose on early parkinson's patient as it is an age agining disease but also find at the younger age. Consistencies, persistence, determination, and perseverance on exercises and medications relieve your slow movement and stiffness muscles. It is not the treatment._________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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Joined: 03 Mar 2007Posts: 65Location: Malaysia
Posted: Wed Feb 27, 2008 10:07 am Post subject:

I refer Dr.Chew Nee Kong" Understanding Parkinson"s Disease " that the progression and survival in Parkinson's Disease as follows: The "honeymoon " period Following the improvement in the symptoms of PD with drug treatment, the early stage of PD patients generally do well during the first to seven years of treatment.- the "honeymoon " period. Despite taking small and infrequent doses of medications patients can usually keep "going strong" in their daily life. In the "honeymoon period" there are still relatively adequate "reserve " brain cells during the early stage of illness. The progression in PD Unfortunately, life is not that kind nor straightforward. The "honeymoon " period is rather short-lived. After five to seven years of treatment with levodopa, PD patients will have increasing slowness of movement and tremor. The physical disability us due to the progression of PD itself, appearance of levodopa -resistant symptoms or development of motor complication It is important to note that while levodopa relieves the symptoms and physical disability of sufferers of Parkinson's it does not by itself slow down the progression of illness. The improvement of survival of patients by levodopar is due to the reduced risk of getting bedridden. In fact PD patients have a higher chance of dying of other common diseases of the elderly, such as heart attack and cancer, than succumbing to PD itself. In short levodopa treatment improved the quality of life of sufferers of Parkinson's even though is not a cure for PD. Thus PD should never be regarded as an old people's disease for which nothing can be done._________________to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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